BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Stacey [Pinkdrgfly]

Stacey [Pinkdrgfly]'s Blog (74)

RAAM Durango, Colorado Monday Morning

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Added by Stacey [Pinkdrgfly] on June 22, 2009 at 1:52pm — No Comments

RAAM First Morning

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Added by Stacey [Pinkdrgfly] on June 22, 2009 at 1:51pm — No Comments

RAAM First 140 Miles

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Added by Stacey [Pinkdrgfly] on June 22, 2009 at 1:49pm — No Comments

RAAM Race Across America

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Added by Stacey [Pinkdrgfly] on June 22, 2009 at 1:49pm — No Comments

Hello Everyone...

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Added by Stacey [Pinkdrgfly] on June 22, 2009 at 8:00am — No Comments

To Everyone

Have A Beautiful Weekend Butterfly Butterflies Pictures, Images and Photos Continue

Added by Stacey [Pinkdrgfly] on June 19, 2009 at 5:00pm — No Comments

San Francisco Walk For Lupus Now

Walk for Lupus Now® is the signature event of the Lupus Foundation of America, Inc. In more than 50 cities across America, thousands of people walk to make a difference in the lives of those affected by lupus and raise essential funds for research, education, and support services. It is estimated that 1.5 million Americans and 170,000 in the state of California have a form of lupus. Lupus is an acute and chronic (lifelong) au… Continue

Added by Stacey [Pinkdrgfly] on June 19, 2009 at 4:50pm — No Comments

Race Across America

This Saturday is All Wheels 4 Fibromyalgia. It looks as if they have surpassed their goal of raising 50,000. You can contribute by clicking on "Source" at the bottom of this post. You will see the campaign banner on the right. Click to donate. I'm very excited to watch this event. I'm still hoping to broadcast it live on my BLOG. If not, I will provide the link to watch it. A cycling team of four cyclists and 12 crew members will race nonstop for 3,… Continue

Added by Stacey [Pinkdrgfly] on June 18, 2009 at 7:44pm — No Comments

Vitamin D Deficiency

I just took 50,000 u.i of Vit. D the doctor prescribed me. I didn't make it to Andrews game tonight. I'm just not feeling to good. My back hurts really bad and I can barely stand because my feet & toes hurt so bad. I think I might have over done it the last few days with Easter and all. Continue

Added by Stacey [Pinkdrgfly] on April 13, 2009 at 7:30pm — 2 Comments

Happy St. Patrick's Day

StPat Quote Pictures, Images and Photos Continue

Added by Stacey [Pinkdrgfly] on March 17, 2009 at 5:18pm — No Comments

My Update

butterfly Pictures, Images and Photos I'm trying to get back to being able to stand up right and walk normally. The aqua therapy and other physical therapy is starting to help a bit. After all the work on my neck there are nights were I can't seem to lay my head down it hurts soooooo bad. I was prescribed a c… Continue

Added by Stacey [Pinkdrgfly] on February 24, 2009 at 2:00pm — No Comments

I hope 2009 brings happiness & better health to everyone! x0x0x Stacey

New Year Pictures, Images and Photos I hope 2009 brings happiness & better health to everyone! x0x0x Stacey Continue

Added by Stacey [Pinkdrgfly] on January 2, 2009 at 6:28pm — No Comments

Silent Night

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Added by Stacey [Pinkdrgfly] on December 18, 2008 at 4:25pm — No Comments

My MRI Results

I have two bulging cervical(neck) discs. Well, that might explain the horrible pain all the way down to my hands and feet and perhaps my inability to use my left arm. There is more on the report my doctor didn't explain. I will also have another MRI done of my back this time and I was given a referral to see a specialist. what joy...ho ho ho Continue

Added by Stacey [Pinkdrgfly] on December 10, 2008 at 4:00pm — 8 Comments

Dusty

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Added by Stacey [Pinkdrgfly] on December 9, 2008 at 10:06pm — No Comments

So Frustrated!

okay my appointment with my doctor is not on dec 9th @10am it's on dec 10th@ 9am! I'm not sure how I did that one LOL I drove all the way out there and I realized the traffic was so bad I better call the office and tell them I might be 5 mins late..haha they confirmed I had "NO" appointment today...it figures...I will try again 2maro!! I'm really curious about the report from the MRI of my cervical spine..even tho it's my back between my shoulder blades that hurts soooooooooo very badly. I also… Continue

Added by Stacey [Pinkdrgfly] on December 9, 2008 at 5:40pm — No Comments

My Happy Poem

QUOTATION HAPPY FACE Pictures, Images and Photos © By Amanda R. Quigley So here it is, The happy one. Today I'll have a bit of fun. A rhapsody. A melody. My opus and my symphony. A delectable, delightful treat. A candy, oh, a wicked sweet. My soul. A stroll. Completely droll. Delightfully out of contr… Continue

Added by Stacey [Pinkdrgfly] on December 8, 2008 at 4:41pm — No Comments

As My Debt Grows, So My Love Does, Too

love Pictures, Images and Photos As my debt grows, so my love does, too. What you give I cannot half repay. Your love for me inflames my love for you. I can't help being moody, often blue, Irritable, anxious, sad, and yet you stay. As my debt grows, so my love does, too. I know I'm lucky to have someone who Will love me through this, day b… Continue

Added by Stacey [Pinkdrgfly] on December 8, 2008 at 4:13pm — No Comments

When life becomes a sea of pain

[Little] pink beach Pictures, Images and Photos And every moment agony I must endure again, again, It is a curse to have to be. And every moment agony, And every longing fixed on death; It is a curse to have to be And fight by instinct for each breath. And every longing fixed on d… Continue

Added by Stacey [Pinkdrgfly] on December 8, 2008 at 3:59pm — No Comments

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Dotti Obert

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 6 hours ago.

julie

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 6 hours ago.

Michelle

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley 7 hours ago.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley 7 hours ago.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley 7 hours ago.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio 8 hours ago.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Donna J Farr

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

joy

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

Roxanne

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

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