LUPUS/Fibromyalgia and more: Support for all

William Davis's Blog (83)

Julian Lennon and James Scott Cook Raise Awareness and Funds for Lupus Research

Proceeds from the song, “LUCY,” will be donated to the Lupus Foundation of America and the St. Thomas Lupus Trust Julian Lennon, son of the legendary John Lennon, and James Scott Cook announced today that they will donate a portion of the proceeds from their song, “LUCY,” to fund research on the disease lupus. The song was created to honor Cook’s 92-year-old grandmother, Lucy Cook, who has been living with lupus for years and Lucy Vodden, a childhood friend of Lennon’s who recently passe… Continue

Added by William Davis on November 30, 2009 at 7:53am — No Comments

Lupus Blog Spotlight: My Life Works Today!

Good morning everyone. Hope you're getting ready for the Thanksgiving holiday. I know I'm looking forward to it. I'm traveling to Jersey to see family. Should be a lot of fun. It's been a while since I did a lupus blog spotlight, so I thought I would this morning. I want to share this blog with you. It is called My Life Works Today! Here's a little bit about Maria, a blogger living in Oregon who runs this site. "The mission of… Continue

Added by William Davis on November 23, 2009 at 9:20am — No Comments

Lupus Blog Spotlight: My Life Works Today!

Added by William Davis on November 23, 2009 at 9:20am — No Comments

Store Spotlight: "The Right Moves for Lupus Fitness" DVD

If lupus has you on the sidelines rather than in the middle of the action, this new low-impact exercise program, designed specifically for people with lupus, may be "just right" for you. Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving -- and to improve your well-being in the process.… Continue

Added by William Davis on November 20, 2009 at 8:15am — No Comments

Store Spotlight: "The Right Moves for Lupus Fitness" DVD

Added by William Davis on November 20, 2009 at 8:15am — No Comments

LFA Releases Video Series on the Latest Lupus Research

The Lupus Foundation of America (LFA) joined more than 11,000 rheumatologists and allied health professionals at the American College of Rheumatology's (ACR) 2009 Annual Scientific Meeting in Philadelphia, Pennsylvania in mid-October. The program included more than 260 abstracts, plenary or special session presentations specifically about lupus. Representatives of the LFA attended the meeting to report on new developments in basic, clinical, translational, and epidemiological research on lupus.… Continue

Added by William Davis on November 19, 2009 at 9:30am — No Comments

LFA Releases Video Series on the Latest Lupus Research

Added by William Davis on November 19, 2009 at 9:30am — No Comments

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

Reminder -- the Lupus Foundation of America's webchat is next Monday afternoon, November 23, at 3 p.m. Eastern Time. The LFA welcomes Dr. Sam Lim, who will serve as the guest expert for the "Medication Adherence" webchat. This is your opportunity to ask questions and learn from an expert. Dr. Lim is Assistant Professor of Medicine at Emory University Sch… Continue

Added by William Davis on November 16, 2009 at 8:12am — No Comments

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

Added by William Davis on November 16, 2009 at 8:00am — No Comments

Save the Date: LFA's Lupus Advocacy Day on Capitol Hill to be Held March 15-16, 2010

The LFA Annual Advocacy Day provides lupus advocates from across the nation the opportunity to participate in meetings with their U.S. Senators and Representatives to educate policy makers on lupus and discuss public policies that affect people with lupus. L’Enfant Plaza Hotel, in downtown Washington DC, will be our headquarters hotel. More details will be coming soon. Continue

Added by William Davis on November 13, 2009 at 7:47am — No Comments

Participate in the BENLYSTA Research Update Call on Monday, November 30, 2009

The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST. LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions. Questions can be submitted in advance.… Continue

Added by William Davis on November 11, 2009 at 7:55am — No Comments

Participate in the BENLYSTA Research Update Call on Monday, November 30, 2009

Added by William Davis on November 11, 2009 at 7:55am — No Comments

H1N1 (Swine) Flu Advisory for People with Lupus

The LFA is consulting with the Centers for Disease Control and Prevention (CDC), as well as our National Medical-Scientific Advisory Council, on the possible impact of this virus on people with lupus. The Lupus Foundation of America (LFA) is aware of the concern that people with lupus may have about the recent outbreak of the H1N1 (Swine) Flu. Get the latest update on H… Continue

Added by William Davis on November 9, 2009 at 8:22am — 1 Comment

MicroRNA’s Role in Interferon’s Contribution to Inflammation

Interferons (IFNs) are proteins produced by immune cells when the immune system is activated. They send different instructions to cells depending on the needs of the immune response; this can lead to cells making certain inflammatory proteins. IFNs communicate with the cells by linking up with receptor proteins along the cell surface, the way a key fits into a lock. This action sends a signal into the cell that eventually either turns on or turns off the process we recognize as inflammation. Th… Continue

Added by William Davis on November 6, 2009 at 8:19am — No Comments

LFA's "Social Wellness ... and Helping Others Understand Lupus" Webchat to be Held Wednesday, November 11 at 3 p.m. Eastern

Reminder -- the Lupus Foundation of America's webchat is next Wednesday afternoon, November 11, at 3 p.m. Eastern Time. The LFA welcomes Ms. Cindy Coney, who will serve as the guest expert for the "Social Wellness, Making Connections and Helping Others Understand What You Go through with Lupus" webchat. This is your opportunity to ask questions and learn… Continue

Added by William Davis on November 4, 2009 at 9:14am — No Comments

Promise of a New Lupus Treatment is a Groundbreaking Achievement

BENLYSTA™ Successful in Second Pivotal Clinical Trial Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) today announced positive results from BLISS-76, the second of two large-scale phase III clinical trials of BENLYSTA™ (belimumab) for treating systemic lupus. A full presentation of results from BLISS-52 was recently shared at the 73rd Annual Scientific meeting of the American College of Rheumatology. Both trials succeeded in meeting their primary endpoints, which should make BENLYS… Continue

Added by William Davis on November 2, 2009 at 8:18am — No Comments

Nominate the Lupus Foundation of America for “Best Non-Profit Use of Social Media” in Mashable's 2009 Open Web Awards

Mashable, in partnership with MOTOBLUR, is conducting the 3rd Annual Open Web Awards: Social Media Edition. The 2009 Open Web Awards is Mashable’s international online voting competition that covers major innovations in web technology and social media. The Lupus Foundation of America (LFA) is participating, and would like to take the category of “Best Non-Profit Use of Social Media.” We need you and your friends and family to help us win! How You Can Help Once a day, every day between… Continue

Added by William Davis on October 28, 2009 at 12:47pm — No Comments

Factors That Influence Pregnancy Outcomes in Women with Lupus

Although women with lupus used to be advised to avoid getting pregnant, out of fear of complications for the mother, the baby, or both, a better understanding of the complications of lupus and improved management of lupus pregnancies have resulted in improved outcomes. Today at least 85 percent of lupus pregnancies result in live births. However, doctors still advise women who have active lupus kidney disease (lupus nephritis, or LN) not to get pregnant until their disease has been inactive fo… Continue

Added by William Davis on October 26, 2009 at 7:56am — No Comments

Help the LFA Win $50,000 via America’s Giving Challenge

The Lupus Foundation of America (LFA) is participating in America’s Giving Challenge ... and we need you and your friends and family to help us win! Winning $50,000 would mean so much to LFA and the people we support. That amount would fund a national research grant seeking to find the causes and a cure for lupus. As you know, the FDA has not approved a new drug for lupus in more than 50 years! Or, if LFA won three daily challenges then we could fund an additional Gina M. Finzi Memorial Studen… Continue

Added by William Davis on October 21, 2009 at 4:08pm — No Comments

Seeking People with Lupus to Participate in a Survey

Between October 19 – November 9, BioVid Corp. -- a market research firm – is conducting a survey. Specifically, they want to survey people living with lupus about their experiences with, and attitudes toward, the management of some health conditions. Anyone living in the United States is eligible to participate. BioVid is looking for up to 100 people to take part in this survey, which will take about 45 minutes to complete. For those selected to participate in the survey, there’s a $75 stipend.… Continue

Added by William Davis on October 16, 2009 at 8:25am — 2 Comments

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In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 6 hours ago.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 6 hours ago.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley 7 hours ago.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley 7 hours ago.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley 7 hours ago.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio 8 hours ago.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.