This holiday season, please consider giving the Gift of Hope. Any gift you make to the Lupus Foundation of America will help support life-saving research and life-enhancing services to patients and families. Thanks to you, all people affected by the devastating disease of lupus will begin the new year with renewed hope for better treatments and ultimately, a cure!
There are several ways to give a Gift of Hope. They include: making a donation in someone's memory or in someone's honor, giving a g…
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Added by William Davis on December 4, 2009 at 10:42am —
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The Lupus Foundation of America (LFA) joined more than 11,000 rheumatologists and allied health professionals at the American College of Rheumatology's (ACR) 2009 Annual Scientific Meeting in Philadelphia, Pennsylvania in mid-October. The program included more than 260 abstracts, plenary or special session presentations specifically about lupus.
Representatives of the LFA attended the meeting to report on new developments in basic, clinical, translational, and epidemiological research on lupus.…
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Added by William Davis on November 19, 2009 at 9:30am —
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The Lupus Foundation of America (LFA) joined more than 11,000 rheumatologists and allied health professionals at the American College of Rheumatology's (ACR) 2009 Annual Scientific Meeting in Philadelphia, Pennsylvania in mid-October. The program included more than 260 abstracts, plenary or special session presentations specifically about lupus.
Representatives of the LFA attended the meeting to report on new developments in basic, clinical, translational, and epidemiological research on lupus.…
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Added by William Davis on November 19, 2009 at 9:30am —
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The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST.
LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions.
Questions can be submitted in advance.…
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Added by William Davis on November 11, 2009 at 7:55am —
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The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST.
LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions.
Questions can be submitted in advance.…
Continue
Added by William Davis on November 11, 2009 at 7:55am —
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The Lupus Foundation of America (LFA) is participating in America’s Giving Challenge ... and we need you and your friends and family to help us win!
Winning $50,000 would mean so much to LFA and the people we support. That amount would fund a national research grant seeking to find the causes and a cure for lupus. As you know, the FDA has not approved a new drug for lupus in more than 50 years!
Or, if LFA won three daily challenges then we could fund an additional Gina M. Finzi Memorial Studen…
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Added by William Davis on October 21, 2009 at 4:08pm —
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Hello. I am glad to be blogging with you once again. What an episode we had last night. Down to the final five! It had the best and worst of what can take place in the culinary world. You can see how each person expresses themselves in their food, and how a lack of concentration and no communication can ruin a service.
Let’s start with the challenge. This is one of the things that every chef enjoys doing. Creating a dish that is uniquely them and putting their skills to the test against other c…
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Added by William Davis on October 2, 2009 at 11:29am —
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We've made it easy for you to create and promote your own personal fundraising pages. Honor someone special in the fight against lupus. Celebrate a special event. It's easy help raise funds to find the causes and the cure for lupus by creating a
Page of Hope.
You can easily customize and build a
Page of Hope, then invite family and friends to give in honor or in memory of someone in lieu of giving or getting gifts. It’s a powerful way to make a difference and give a message of Hop…
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Added by William Davis on September 14, 2009 at 9:55am —
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The Lupus Foundation of America (LFA) and Schwan’s Home Service recently joined forces to fund lupus research.
Schwan’s Home Service brings more than 350 delicious frozen foods right to your door, all with a 100% quality guarantee. From now until Saturday, September 19, when you place a food order at
schwans.com or call 1-888-SCHWANS, use promotion code "LF" at check out. Schwan’s Home Service will donate 10% of the funds from your orde…
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Added by William Davis on September 8, 2009 at 8:24am —
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Hello. It is a pleasure to be blogging with you once again. I hope everyone enjoyed Tuesday's episode. I am glad that more of my personality came across in this episode. I am not as quiet as what has been shown to date.
I was shocked that we lost the challenge. I mean, how do you lose to the blue team when their ingredients include figs, apples, angel hair pasta, tomatoes, and haddock? All I can say is that Gordon must have had pity on them or something. This was by far the worst punishment we…
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Added by William Davis on August 27, 2009 at 9:12am —
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The fall
Walk for Lupus Now season has begun, with monies raised from these events going to support lupus research, lupus education programs, and patient and family support services.
Here is a listing of Walks through mid-September 2009. They are alphabetical by state.
Anchorage, Alaska --
September 19, 2009
Los Angeles, California --…
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Added by William Davis on August 26, 2009 at 8:46am —
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Hello all! I hope you all had a chance to watch this week’s episode of Hell's Kitchen. It was one of my favorites to-date. I think it shows that when the teams are equal that the sides are pretty evenly matched.
The fact that we knocked the low calorie meal out of the park was a highlight of the series for me. Especially being someone who tries to eat healthy and keep the diet balanced to help my battle with lupus.
There was no way I was gonna miss out on a day at the beach, with sun, sand, fu…
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Added by William Davis on August 21, 2009 at 7:45am —
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Lately we’ve been hearing a lot of questions from parents about the safety of vaccinations for their children with lupus. That started us thinking about the safety of vaccinations for adults with the disease, too. So we went where everyone goes for questions like these: to the Centers for Disease Control and Prevention (CDC).
The “why” of getting vaccinated is easy: Immunization reduces the risk of infection and the chance of catching certain diseases -- and that’s of the utmost importance for…
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Added by William Davis on August 19, 2009 at 8:22am —
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On Thursday, August 6, 2009 Sen. John D. Rockefeller IV (D-WV) introduced S.1630, “The Affordable Access to Prescription Medications Act of 2009.” The Lupus Foundation of America applauds and supports Senator Rockefeller for creating this important legislation which will provide Americans with chronic diseases vastly improved access to life-saving medications.
“The Affordable Access to Prescription Medications Act of 2009” will protect people with lupus and other chronic diseases from high out-…
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Added by William Davis on August 12, 2009 at 8:00am —
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Hello once again. It is awesome to be blogging with you. What can I say about this week's episode? I must admit that I was in the midst of a pretty bad lupus flare during this part of the show and my recollection was not the best. I can say that I had been in the hospital and once I got back later that day, I was determined to fight like hell to stay. Most of that was not aired but you can see I am not feeling well if you look closely at me.
I was really struggling to keep my station on point a…
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Added by William Davis on August 11, 2009 at 8:13am —
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Provides Protection for People with Lupus and other Chronic Diseases
The Lupus Foundation of America (LFA) President and Chief Executive Officer, Sandra C. Raymond, issued the following statement regarding S.1630 "The Affordable Access to Prescription Medications Act of 2009" introduced on Thursday, August 6, 2009 by Senator John (Jay) D. Rockefeller IV (D-WV).
"We support and applaud Senator Rockefeller for this important bill which will provide all Americans with vastly improved acces…
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Added by William Davis on August 10, 2009 at 7:53am —
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There are many different ways to follow the LFA online. Wanted to share some of them with you.
Facebook
Join the LFA's cause in Facebook.
MySpace
Follow the LFA on MySpace.
Twitter
Follow the LFA on Twitter.
If you want to join in the discussion, then…
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Added by William Davis on July 27, 2009 at 9:05am —
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We have a lot for you in the new Summer issue of
Lupus Now magazine! In particular, the articles cover topics that were requested by our readers in past surveys.
Understanding how lupus runs in families, and why, led to our cover story on the heredity of lupus. It will get you thinking about your own family history, and whether autoimmune diseases have a foothold in your family tree.
And if lupus has caused your path in life to skip outside the lines, or even turn a right angle,…
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Added by William Davis on June 24, 2009 at 8:40am —
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Foundation’s CEO Testifies Before Senate Defense Appropriations Subcommittee
Last Friday, Sandra C. Raymond, President and Chief Executive Officer of the Lupus Foundation of America, appeared before the Senate Defense Appropriations Subcommittee to testify about lupus, the prototypical autoimmune disease that principally affects young women in their child-bearing years. Ms. Raymond also described the impact of the disease on men and young children and the disproportionate impact of the d…
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Added by William Davis on June 22, 2009 at 8:32am —
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Here is the
Walk for Lupus Now event taking place this weekend, June 20-21.
Minneapolis, Minnesota --
June 21, 2009
If you live in this area, I certainly hope you will join us. Or if you have friends or family in this area, please share this with them as well.
To see what other
Walk for Lupus Now events are taking place near you, please visit
http://www.lupus.…
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Added by William Davis on June 16, 2009 at 8:54am —
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