LUPUS/Fibromyalgia and more: Support for all

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If my friends have wondered where I have been here is the reason why...
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Started this discussion. Last reply by LORI Aug. 2, 2008.

just need to talk

Replied Jun. 26, 2008

Tiffanies father passed away...

Replied Jun. 20, 2008

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At 10:35am on July 4, 2009, Dorothy Moniz said…: Spicecomments.com - July 4th Comments

......Texaspigtails

At 10:49pm on May 21, 2009, Stacey [Pinkdrgfly] said…

At 9:41am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 11:31pm on April 26, 2009, Stacey [Pinkdrgfly] said…

At 10:26am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 2:18pm on March 18, 2009, DebrAngel said…: I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 2:41pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 3:05am on February 13, 2009, ressiej said…

At 2:30pm on February 4, 2009, DebrAngel said…: Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo

At 1:04pm on January 27, 2009, ressiej said…

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Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

I have Fibro, Type I Diabeties, Hypothyroidism, Coronary Heart disease and Rhuematoid Arthritis. I want to live life to the fullest...(who doesn't?) my rhuematologist prescribed lyrcia and flexeril and this has helped with fibromyalgia, yet you still have bad days, sometime. I am on remicade (every six weeks), mtx, and and a sulfa drug for R.A. I have neuropathy but elavil and ultram are helping, but I sure wish there was more help with neuropathy pain. That is a bummer!! I have had 2 minor heart attacks, but I have only had stents placed in my heart. (No major heart surgery) I try to keep my diabeties under control. Genetic factors on both sides predispose me to heart problems, so I keep a strict diet. Have had cataract surgery with crystallens implants done. Recently I was diagnosed (6/23/08) with glacoma, but am taking drops to halt the progression of this disease. Good grief!! I feel like am falling apart!! Every year something new goes caput!

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

Being dependent on others physically. Not being able physically to do all I would like to do. Being alone, and disabled.

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

yes

Would you refer others?

I have..

Most Important, how did you hear about this site?

friends

For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear: I will help you. Isaiah 41:13

Ellen's Blog

Just slept

I have been sleeping for the last two days for some reason, and can't seem to quit.... To all my buddies, so sorry I haven't been on here, but I start to do something and it just doesn't seem to be quite as important so I sit down and the next thing I am waking up from a three or four hour nap.. Then I am going to bed at regular hours...Maybe rip van winkle will get her sleepy time hour over with... See you guys later....
Love,
Ellen
P/S I am going to bed. 0)

Posted on June 26, 2008 at 10:00pm —

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New Here 2 Replies

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