BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Stacey [Pinkdrgfly]
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Replied Apr 26

Poems

Replied Apr 26

Poems
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Started this discussion. Last reply by Stacey [Pinkdrgfly] Apr 26.

 

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Stacey [Pinkdrgfly] added 5 blog posts
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Stacey [Pinkdrgfly] and Tiffanie are now friends
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Stacey [Pinkdrgfly] added a discussion
Butterflies in the Sky Butterflies, Butterflies in the sky You seem so free with your wings up high. I love watching you appear in the spring. I can only imagine myself being as free as a butterfly But my wings have been clipped by lupus and its ...
April 26
a place to talk about anything, ask advice, vent, give support, nothing off limits, kinda a misc site
April 26

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I was dx'ed in May 2008 with Fibromyalgia with years of symptoms. Latex Allergy. Migraines. Still under going more tests.
I had an cervical MRI done that showed 2 slipped dics, 3 bone spurs, spinal stenosis & DDD.

I recently had a bone scan which showed bone loss in my hips and spine.
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
Snakes, worms, Dying, drowning, burning.
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
Yes!
The forums and main page are great places for helpful information.
Would you refer others?
Yes
Most Important, how did you hear about this site?
ProHealth Chat





Stacey [Pinkdrgfly]'s Photos

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Stacey [Pinkdrgfly]'s Blog

Stacey [Pinkdrgfly]

RAAM Durango, Colorado Monday Morning

Posted on June 22, 2009 at 1:52pm —

Stacey [Pinkdrgfly]

RAAM First Morning

Posted on June 22, 2009 at 1:51pm —

Stacey [Pinkdrgfly]

RAAM First 140 Miles

Posted on June 22, 2009 at 1:49pm —

Stacey [Pinkdrgfly]

RAAM Race Across America

Posted on June 22, 2009 at 1:49pm —

Stacey [Pinkdrgfly]

Hello Everyone...

Posted on June 22, 2009 at 8:00am —

Comment Wall (496 comments)

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At 10:48pm on July 16, 2009, Katnet1 (Kat) said…
Hi Stacey..hope all is well with you. I haven't been on here in a long time.

Take Care :)
At 10:44pm on July 7, 2009, ,Martha said…
GO TO PASSION4PROFILES.COM
PASSION4PROFILES.COM
At 10:17pm on June 25, 2009, ,Martha said…

Myspace Comments Have a good Friday
Hugs and love
Martha
At 10:59pm on June 18, 2009, ,Martha said…

Friday MySpace Comments and Graphics

Comments - Graphics - Layouts - Photobucket

At 3:43pm on June 7, 2009, lolder (Linda) said…
Hi Stacey!!!
Sorry I am so slow at getting back to you.........better late than never I hope. I'm hoping things are going OK with you. Our challenges always seem to be there don't they?
I haven't been chatting much over the past year, but have recently been going back to PH chat in the evenings and have seen a few of our old chatters and meeting some new ones. Also have been going to a site and chat that chgrushfan (remember her) created here on Ning. Lately it's been pretty quiet there, but hopefully more people with be around. You might try it:
http://friendscametogether.ning.com/. Tiffanie, Hearttugs, blue-eyed girl, Ginner....ummmmm and some others go there. Don't know where everyone has been lately. Also soulten, if you remember her, started one too, but I haven't been there for a while either. Recently had a computer crash, so I don't have the site on hand at the moment, but I'll get back to you. I have to find it again. I would like to be able to chat with everyone like we did last year, but it seems everyone has scattered or moved on or something.
I think of you and always enjoy looking at your photos. Maybe I'll run in to you at one of the chat places. I noticed you have found a new place?
Hugs
Linda
At 11:06pm on June 5, 2009, ,Martha said…
Yuwie/MySpace Graphics
Yuwie&MySpace Comments at welovecomments.com
At 10:40pm on May 27, 2009, ,Martha said…

MySpace Graphics Praying you have a low pain level
Hugs and love
Martha
At 10:19am on May 24, 2009, Katnet1 (Kat) said…
Hi Stacey, How are you doing? Are you feeling any better?? I had a sleep study done and got on a CPAP and I am doing way better!!! So much more energy. Doc said i stopped breathing 45 times in an hour. Now I know why I never felt like I slept! Hope you have a great Memorial Day Weekend :) Take Care, Kathy (katnet1)
At 7:47am on May 23, 2009, Kristin Pugh said…
Thanks for the hug sweetie, I really needed that!! Hope you have a wonderful holiday weekend and have as little pain as possible!! Take care!
Much love and blessings, kris
At 9:33pm on May 22, 2009, Noreen "Ma Butterfly" said…
HAVE A WONDERFUL WEEKEND!!!
HUGS!!


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