LUPUS/Fibromyalgia and more: Support for all
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Stacey [Pinkdrgfly]
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Stacey [Pinkdrgfly]'s Groups
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all topics-good, bad a...
30 members
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Birthday Group
14 members
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PH Chatters
41 members
Hello my friends :)
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Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- I was dx'ed in May 2008 with Fibromyalgia with years of symptoms. Latex Allergy. Migraines. Still under going more tests.
I had an cervical MRI done that showed 2 slipped dics, 3 bone spurs, spinal stenosis & DDD.
I recently had a bone scan which showed bone loss in my hips and spine.
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Snakes, worms, Dying, drowning, burning.
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yes!
The forums and main page are great places for helpful information.
- Would you refer others?
- Yes
- Most Important, how did you hear about this site?
- ProHealth Chat
Stacey [Pinkdrgfly]'s Photos
Stacey [Pinkdrgfly]'s Videos
Stacey [Pinkdrgfly]'s Blog
![Stacey [Pinkdrgfly]](http://api.ning.com/files/nNlVF55NSv0l9zqYm9XlW7I5*xXpaBU2H1caVsZ88NWtvmjpeBd-9bYdlGctAzVUk*yrlnb22379apHSRkVLxwor6uA*opc8/me.jpg?width=32&height=32&crop=1%3A1){kind=small}
RAAM Durango, Colorado Monday Morning
Posted on June 22, 2009 at 1:52pm —
RAAM First Morning
Posted on June 22, 2009 at 1:51pm —
RAAM First 140 Miles
Posted on June 22, 2009 at 1:49pm —
RAAM Race Across America
Posted on June 22, 2009 at 1:49pm —
Hello Everyone...
Posted on June 22, 2009 at 8:00am —
About
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ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
My Hysterectomy and HRT 1 Reply
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr Nov 22.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Fibromyalgia & Disability Benefits? 8 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
anyone with fibro living inyorkshire England
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME? Nov 13.
New Here 1 Reply
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.
Lymphoma, or just the lupus??? 21 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.
ANYBODY LIVING IN FLORIDA?? 3 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
The Cancer Cure Video that circled the globe in 31 minutes
The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
Scared about Cytoxan 2 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.
Finding a Cure
Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...
Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.
Quantum Physicist reveals how to master “The Secret”!!download free e-book
http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...
Tagged: http://www.believeandmanife...
Started by Sandy Medine in AWARENESS WORK Oct 19.
New Body Templates Coming Soon!
-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...
Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body
Started by Sandy Medine in MISCELLANEOUS Oct 18.
In Severe Pain 4 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.
Has anybody been diagnosed with lupus with a negative ANA? 32 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.
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Hugs and love
Martha
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Sorry I am so slow at getting back to you.........better late than never I hope. I'm hoping things are going OK with you. Our challenges always seem to be there don't they?
I haven't been chatting much over the past year, but have recently been going back to PH chat in the evenings and have seen a few of our old chatters and meeting some new ones. Also have been going to a site and chat that chgrushfan (remember her) created here on Ning. Lately it's been pretty quiet there, but hopefully more people with be around. You might try it:
http://friendscametogether.ning.com/. Tiffanie, Hearttugs, blue-eyed girl, Ginner....ummmmm and some others go there. Don't know where everyone has been lately. Also soulten, if you remember her, started one too, but I haven't been there for a while either. Recently had a computer crash, so I don't have the site on hand at the moment, but I'll get back to you. I have to find it again. I would like to be able to chat with everyone like we did last year, but it seems everyone has scattered or moved on or something.
I think of you and always enjoy looking at your photos. Maybe I'll run in to you at one of the chat places. I noticed you have found a new place?
Hugs
Linda
Yuwie&MySpace Comments at welovecomments.com
Hugs and love
Martha
Much love and blessings, kris
HUGS!!
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