BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Stacey [Pinkdrgfly]
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Poems

Replied Apr 26

Poems

Replied Apr 26

Poems
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Started this discussion. Last reply by Stacey [Pinkdrgfly] Apr 26.

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Stacey [Pinkdrgfly] added 5 blog posts
June 22
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Stacey [Pinkdrgfly] added 3 blog posts
June 19
Stacey [Pinkdrgfly] updated their profile photo
May 20
Stacey [Pinkdrgfly] and Tiffanie are now friends
May 6
April 27
Stacey [Pinkdrgfly] added a discussion
Butterflies in the Sky Butterflies, Butterflies in the sky You seem so free with your wings up high. I love watching you appear in the spring. I can only imagine myself being as free as a butterfly But my wings have been clipped by lupus and its ...
April 26
a place to talk about anything, ask advice, vent, give support, nothing off limits, kinda a misc site
April 26

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At 10:48pm on July 16, 2009, Katnet1 (Kat) said…
Hi Stacey..hope all is well with you. I haven't been on here in a long time.

Take Care :)
At 10:44pm on July 7, 2009, ,Martha said…
GO TO PASSION4PROFILES.COM
PASSION4PROFILES.COM
At 10:17pm on June 25, 2009, ,Martha said…

Myspace Comments Have a good Friday
Hugs and love
Martha
At 10:59pm on June 18, 2009, ,Martha said…

Friday MySpace Comments and Graphics

Comments - Graphics - Layouts - Photobucket

At 3:43pm on June 7, 2009, lolder (Linda) said…
Hi Stacey!!!
Sorry I am so slow at getting back to you.........better late than never I hope. I'm hoping things are going OK with you. Our challenges always seem to be there don't they?
I haven't been chatting much over the past year, but have recently been going back to PH chat in the evenings and have seen a few of our old chatters and meeting some new ones. Also have been going to a site and chat that chgrushfan (remember her) created here on Ning. Lately it's been pretty quiet there, but hopefully more people with be around. You might try it:
http://friendscametogether.ning.com/. Tiffanie, Hearttugs, blue-eyed girl, Ginner....ummmmm and some others go there. Don't know where everyone has been lately. Also soulten, if you remember her, started one too, but I haven't been there for a while either. Recently had a computer crash, so I don't have the site on hand at the moment, but I'll get back to you. I have to find it again. I would like to be able to chat with everyone like we did last year, but it seems everyone has scattered or moved on or something.
I think of you and always enjoy looking at your photos. Maybe I'll run in to you at one of the chat places. I noticed you have found a new place?
Hugs
Linda
At 11:06pm on June 5, 2009, ,Martha said…
Yuwie/MySpace Graphics
Yuwie&MySpace Comments at welovecomments.com
At 10:40pm on May 27, 2009, ,Martha said…

MySpace Graphics Praying you have a low pain level
Hugs and love
Martha
At 10:19am on May 24, 2009, Katnet1 (Kat) said…
Hi Stacey, How are you doing? Are you feeling any better?? I had a sleep study done and got on a CPAP and I am doing way better!!! So much more energy. Doc said i stopped breathing 45 times in an hour. Now I know why I never felt like I slept! Hope you have a great Memorial Day Weekend :) Take Care, Kathy (katnet1)
At 7:47am on May 23, 2009, Kristin Pugh said…
Thanks for the hug sweetie, I really needed that!! Hope you have a wonderful holiday weekend and have as little pain as possible!! Take care!
Much love and blessings, kris
At 9:33pm on May 22, 2009, Noreen "Ma Butterfly" said…
HAVE A WONDERFUL WEEKEND!!!
HUGS!!


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Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I was dx'ed in May 2008 with Fibromyalgia with years of symptoms. Latex Allergy. Migraines. Still under going more tests.
I had an cervical MRI done that showed 2 slipped dics, 3 bone spurs, spinal stenosis & DDD.

I recently had a bone scan which showed bone loss in my hips and spine.
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
Snakes, worms, Dying, drowning, burning.
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
Yes!
The forums and main page are great places for helpful information.
Would you refer others?
Yes
Most Important, how did you hear about this site?
ProHealth Chat





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Stacey [Pinkdrgfly]'s Blog

Stacey [Pinkdrgfly]

RAAM Durango, Colorado Monday Morning

Posted on June 22, 2009 at 1:52pm —

Stacey [Pinkdrgfly]

RAAM First Morning

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RAAM First 140 Miles

Posted on June 22, 2009 at 1:49pm —

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RAAM Race Across America

Posted on June 22, 2009 at 1:49pm —

Stacey [Pinkdrgfly]

Hello Everyone...

Posted on June 22, 2009 at 8:00am —

 
 

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julie

Lymphoma, or just the lupus??? 20 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!! Mar 19.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Roxanne

New Here

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES Oct 20.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

Dotti Obert

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Dotti Obert

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

John A  "Dad Butterfly"

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.

Sandy Medine

Vigorous debate about health insurance reform 1 Reply

Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...

Tagged: insurance, reform, health, about, debate

Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.

Chelae

I need some advice. 2 Replies

I am new to this site and this is my first time posting. My name is Chelae and I was diagnosed with SLE and Lupus Nephritis in October 2008. I spent 9 weeks in the hospital with complications from ...

Started by Chelae in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Jayne Oct 4.

Danielle McNeil

HAS ANY ONE HAD HIGH CALCIUM AND HIGH VITAMIN A LEVELS?

MY LEVELS ARE VERY HIGH AND MY DR'S CANT FIGURE OUT WHERE ITS COMING FROM. ONE DR SAID I WOULD HAVE TO EAT POLAR BEAR LIVER EVERYDAY TO GET A VITAMIN A LEVEL THAT HIGH! HELP!

Started by Danielle McNeil in I'M IN NEED OF SUPPORT PLEASE!! Oct 3.

Sandy Medine

A Triple Threat: Lupus, Heart Disease, and Osteoporosis 1 Reply

A Triple Threat: Lupus, Heart Disease, and Osteoporosis Reviewed by QualityHealth's Medical Advisory Board There's ample evidence showing that lupus increases a woman's risk of heart disease by fiv...

Tagged: Disease, and, Osteoporosis, Heart, Lupus

Started by Sandy Medine in MISCELLANEOUS. Last reply by GoldenLadyNiecy Oct 3.

MRS.YANKSTER

Jesus the Great Fixer...

Its seem thier is so much bad news with all my dear friend latley I just want everyone to know Iam thinking of you all and you are all in my Prayers Many blessings You may be knocked down with you...

Started by MRS.YANKSTER in I'M IN NEED OF SUPPORT PLEASE!! Sep 30.

 

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