BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

missnadia
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  • Beltsville, MD
  • United States
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At 9:32am on May 8, 2009, DebrAngel said…
Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

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Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'
At 10:18am on April 16, 2009, DebrAngel said…
Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

Color changing Rose Blue Rose
At 2:03pm on March 18, 2009, DebrAngel said…
I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

St. Patrick's Day Myspace Comments
St. Patrick's Day Myspace Comments
At 2:35pm on February 14, 2009, DebrAngel said…
Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 2:23pm on February 4, 2009, DebrAngel said…
Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo
Lifes' journey
At 1:40pm on January 19, 2009, DebrAngel said…
I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo
Serenity
At 3:41pm on December 29, 2008, DebrAngel said…
Wishing you all the best for the New Year! Love and thoughts, Debra xoxo
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Hugs
At 1:09pm on December 13, 2008, DebrAngel said…


Wishing you Love and Peace this Holiday Season!Love, DebrAngel xoxo
At 1:11pm on December 11, 2008, DebrAngel said…
Hi, wishing you all the best for you and your loved ones this Holiday Season! Take care and God bless! Love, DebrAngel xoxo

Wizemen xmas card

At 1:39pm on December 8, 2008, niki said…
orkutwishes.com
Orkut Wishes.com Sending a wish for a Happy Holiday

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I have Lupus, a mild case of Raynaud's, and hypothyroid
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
Birthday 9/20
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
I may never be able to have children.

I will be stuck at the grocery store with out a mitten to reach into the freezer for a bag of frozen peas.
Favorite pastimes? (You may want to share in GROUPS!! :)
I like crossword & sudoku puzzles, and when my joints allow it i also enjoy sewing, knitting and cross stitching. I also love reading and plan on writing a book about lupus soon.

Oh and swimming...I have always had a passion for swimming which works out great, because my doc says not exercises that will put impact my joints. I can do laps for hours. It is my time to reflect and look into myself to see how I am really feeling. I usually reach a zen moment at about lap 30 but sometimes it doesn't come until lap 60 or so...that is how I know i'm done for the day.
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes, this site is so helpful!
Would you refer others?
yes
Most Important, how did you hear about this site?
a friend posted the link in another chat room



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Missnadia's Blog

missnadia

Feelin Better - sort of...

Well i it has been a couple of weeks since the doc put me back on the prednisone. I am starting to feel pretty good. The joint pain has mostly subsided. My joints still seem a little stiff and swollen, but they don't hurt, so that helps me get through the day. Hopefully by the time I go back to the doc in the middle of august, I will be through this flare and back to "normal life".

Other than the joints which is just one of those things you have to deal with, the thing that is bothering me the… Continue

Posted on July 18, 2008 at 6:57am — 1 Comment

missnadia

help me make your voice heard!

Hi Everyone!

I am writing a book about lupus and I need your help. I have more posted info in the forum, please check it out:

http://lupusbutterflies.ning.com/forum/topic/show?id=1301214%3ATopic%3A112907


I would love to hear from as many people as possible to help this little train make it up the mountain.

Take care!
Nadia

Posted on July 9, 2008 at 4:00pm —

missnadia

the hardest part about having lupus

Went to the rheumatologist today. I have been having trouble with my joints the past couple of months, she decided to get me back on prednisone. :( I know she is doing what is best for me. She knows we want to have a baby, so no plaquenil yet. So start with the steroids, go back in 6 weeks to see if there is progress.

So...here goes...the hardest part about having lupus


For me, the hardest part about having Lupus is when you are feeling healthy, but then something or someone comes along to re… Continue

Posted on July 7, 2008 at 2:00pm —

 
 

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Discussion Forum

Kimber

wonderful chilli chees dip-very simple

1 large velvetta cheese stick 1 can rotel 1 can chilli Add all together in microwave bowl. Put in microwave and melt.

Started by Kimber Dec. 2, 2008.

Kimber

Potato Candy-Wonderful Christmas Candy

1 small potato 1 box white confectioners' sugar peanut butter Boil potato, mash while hot. Add sugar, roll out and spread peanut butter over all. Roll over to make a log. Cut in thin slices. You can…

Started by Kimber Dec. 2, 2008.

LORI

Cap'n Crunch Shake... ( Lowfat Ladies)

HG's Cravin' Cap'n Crunch Shake PER SERVING (entire shake): 182 calories, 3g fat, 245mg sodium, 35g carbs, 4g fiber, 18g sugars, 4g protein -- POINTS® value 3* Ingredients: 5 oz. Unsweetened Vanill…

Started by LORI Jun. 1, 2008.

ellen

Taco Casserole that is Yummy!

TACO CASSEROLE Crust: 8 oz of dry corn bread stuffing mix from a box 1 14 oz. can of creamed corn 1/2 Cup of water Mix together,,,place in bottom of a 9x13 pan sprayed with non-stick spray. BAKE at…

Started by ellen May. 19, 2008.

ellen

Bacon-Stuffed Mushrooms

Bacon-Stuffed Mushrooms Yield: approximately 4 dozen Preparation: 25 minutes Cook: 7 minutes Chill: 30 minutes Bake: 25 minutes 3 (8-ounce) packages fresh button mushrooms 1/4 cup unsalted butter 2…

Started by ellen May. 19, 2008.

ellen

Key Lime Pie , Easy

KEY LIME PIE • 3 egg yolks (whites not required) • 8 ounces of softened cream cheese • 4-5 ounces Key Lime Juice (more for tangier pie) If you don't have key lime juice, lime juice is A.O.K. :) • 14…

Started by ellen May. 19, 2008.

ellen

Lemon Meringue Pie

Lemon Meringue Pie (from my mom's Farm Journal's 1959 recipe book) She used often 1-1/4 cups sugar 3 tablespoons flour 3 tablespoons cornstarch 1/8 teaspoon salt 2 cups boiling water 3 egg yolks 2 ta…

Started by ellen May. 19, 2008.

Terri

Milky Way Cake

CAKE: 8 - 1 3/4 oz Milky Ways 3 sticks butter 2 cups sugar 4 eggs, well beaten 2 1/2 cups flour 1/4 tsp baking soda 1 1/4 cups buttermilk 1 tsp. vanilla 1 cup pecans, chopped Powdered sugar ICING: 2…

Started by Terri Mar. 28, 2008.

Terri

Italian Sausage Soup

This is THE BEST soup I have ever made and I make alot of different soups. Its really easy and the recipe doesn't need any adjusting! I left the spinach out, cause ewwww. I got it from allrecipes.com…

Started by Terri Jan. 27, 2008.

Bethangelbug

Another Superbowl recipe

Chili Dip: 8 oz cream cheese spread on bottom of 8x8 baking dish 1 can no beans hormel chili (any brand will do) spread over cream cheese 8 oz shredded cheddar cheese sprinkled on top put in 350 de…

Started by Bethangelbug Jan. 22, 2008.

Terri

Baked Pork Chops

Got this recipe from allrecipes.com. I made it last night and is was so good. My only adjustment was on the cooking time- pork chops do not need to cook for 1 1/2 hours. INGREDIENTS 6 pork chops 1 t…

Started by Terri Jan. 9, 2008.

Terri

Monster Cookies (Paula Dean) 2 Replies

3 eggs 1 1/4 cups packed light brown sugar 1 cup granulated sugar 1/2 teaspoon salt 1/2 teaspoon vanilla extract 1 (12-ounc) jar creamy peanut butter 1 stick butter, softened 1/2 cup multi-colored ch…

Started by Terri. Last reply by Harley Jan. 8, 2008.

Harley

Pumpkin Gooey Butter Cakes (Paula Deen)

Guys I tried this recipe for the first time in november and OMG!! They are the greatest thing I EVER put in my mouth!! I've tried the reg gooey butter cake recipe and also the toffee one, well I make…

Started by Harley Jan. 8, 2008.

Tricia Parciak

Pumpkin Granola Bars Recipe- from Fibro and Fatigue Today 1 Reply

Pumpkin Granola Bars Recipe Here is a recipe we found that is both good and good for you! These tasty granola bars do not have any sugar in them and are a nutritious desert for the holidays. Ingredi…

Started by Tricia Parciak. Last reply by Terri Dec. 18, 2007.

Discolisious

Kickin' Chocolate Chip cookies 1 Reply

INGREDIENTS 2 cups margarine (I use Earth Balance - one tub), softened and half melted 2 cups white sugar 2 cups packed brown sugar 2 teaspoons vanilla extract 1 teaspoon salt 2 teaspoons baking powd…

Tagged: amazing, chocolate, cookie, chip, vegan

Started by Discolisious. Last reply by Discolisious Dec. 17, 2007.

HEATHER

Homemade Carmels 1 Reply

I have looked for a recipe for homemade carmels and I can't find one. I searched all my cookbooks and looked for one online but am having a hard time finding one. My cousin can't find my aunts either…

Started by HEATHER. Last reply by Terri Dec. 15, 2007.

HEATHER

Favorite Christmas Cookie 2 Replies

I have 3 favorite Christmas cookies Carmel Cups, Gingersnaps, and Russian Teaballs. The first is Carmel Cups 3 1/2 cups flour 3 sticks oleo/butter 8 oz cream cheese 14 oz carmels 1/2 cup evaporated…

Started by HEATHER. Last reply by HEATHER Dec. 14, 2007.

Butterfly Kimberly

WOW 1 Reply

I DON'T KNOW HOW TO COOK VERY WELL, SO I HOPE I CAN GET SOME "EASY" IDEAS!!! THIS IS GREAT! I'M PLEASED TO SEE GROUPS STARTING UP! I CAN'T BELIEVE THE AMOUNT OF FORUM TOPICS, IT'S SOOO HARD TO KEEP U…

Tagged: lupus, sle, cooking, fibromyalgia, recipes

Started by Butterfly Kimberly. Last reply by Tricia Parciak Dec. 7, 2007.

Terri

Is there anything you're dying to have the recipe for?

If so, post a note here and I'm sure you will get some good responses!

Started by Terri Nov. 21, 2007.

Tricia Parciak

LEMON DELIGHT 1 Reply

13X9 Pan Bottom Layer 1&1/2 C. flour 1&1/2 sticks oleo 1 C. chopped nuts Mix all together (like pie crust) Press into pan. Bake at 370 deg. for 15/20 min. 2nd Layer 1&1/2 C. Cool Whip 1&…

Started by Tricia Parciak. Last reply by Terri Nov. 18, 2007.

 

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