LUPUS/Fibromyalgia and more: Support for all

karen Female Wilkes-Barre United States: Share

Blog Posts (2)
Discussions (41)
Events
Groups (9)
Photos (4)
Photo Albums
Videos

karen's Apps

Karen's Friends

View All

karen's Discussions

Glamour magazine-- September issue
2 Replies

Started this discussion. Last reply by Annabelle Aug. 14, 2008.

Diagnosed with Lupus despite the absence of a positive ANA??

Replied Aug. 1, 2008

Diagnosed with Lupus despite the absence of a positive ANA??

Replied Jul. 29, 2008

View All

karen's Groups

MEMORY LANE

81 members
The Butterfly Garden

76 members

Mountian of Hope

87 members
Bath & Beauty for Lupi...

29 members

Support

38 members

View All

karen's page

Comment Wall (468 comments)

You need to be a member of BUTTERFLIES AMONG US to add comments!

Join this Ning Network

At 10:22am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 11:09am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 9:24pm on March 22, 2009, Kevin Simien said…: MyHotComments

At 11:57am on March 19, 2009, Ionne said…: Hi Karen,
Have been on here posting on "Memory Lane" and just had to stop by to say Hello and Love you to my dear friend.
Love,
Ionne

At 3:03pm on March 18, 2009, DebrAngel said…: I know the St. Patrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 3:09pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 3:07pm on February 4, 2009, DebrAngel said…: Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo

At 2:16pm on January 19, 2009, DebrAngel said…: I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo

At 4:25pm on December 29, 2008, DebrAngel said…: Wishing you all the best for the New Year! Love and thoughts, Debra xoxo

At 7:03pm on December 16, 2008, Bonnie Sanders said…: JUST A WISH FOR A PAIN FREE AND WONDERFUL CHRISTMAS TO YOU AND YOUR FAMILY...
LOVE HUGS AND BLESSINGS BONNIE

Kathys Comments

Kathys Comments

No comments yet!

View All Comments

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

yes among other things

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

sunflower322

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

Not being around to see my sons grow up, graduate, and get married.
losing control
not having people take me seriously
humans dressed in costumes LOL

Visit Jazzy-Jazz.net for more supportive stuff!

Favorite pastimes? (You may want to share in GROUPS!! :)

spending time with my children, doing word searches, reading, listening to music (it relaxes me.)

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

very I know I'm not alone and I have many friends

Would you refer others?

yes

Most Important, how did you hear about this site?

Jayne =)

glitter-graphics.com

Your LUPUS BUTTERFLIES AMONG US Box

Med List:
Prozac 60 mg daily
Plaquenil 200 mg BID
Keppra 250mg daily
Lyrica 225mg TID
Diovan 160 mg daily
Caltrate 600 plus Vitamin D bid
Methotrexate 5mg weekly
Vivaglobin 20 cc's infused weekly
Prednisone alternate 5mg and 2.5mg daily
Omeprazole 20 mg before breakfast
Benedryl 50 mg weekly before infusion
Tylenol 500 mg weekly before infusion
Lidoderm Patches 12 hours on 12 hours off daily
Percocet 5/325mg every 2 every 8 hours PRN
Multi Vitamin
Fosomax 40mg weekly

karen's Photos

Loading…

Karen's Blog

It's been a while......

Hi everyone! It's been a whilesince I've been on this site, so I will update you on my happenings. I was diagnosed with osteoporosis in October, after suffering my 2nd foot fracture. (Apparently I had one before that was healing at the time of the 2ND one.) In November, I had a tibial plataeu fracture, and now, I have a heel fracture. All on my right side. Hmmmmm, is this a coincidence. After fighting with my doctors to give me more pain meds, I am finally able to take 2 percocets every 8 hours.… Continue

Posted on March 11, 2009 at 12:20am — 1 Comment

The Flare that Stole Christmas

So, here we are, on Christmas Eve. My kids are tucked in bed dreaming of Santa and his reindeer. And here I am wishing that I felt better. I don't want the holiday to be "ruined" so I just sit back and pretend everything is OK. In reality, my knees hurt so bad that I can't bend or extend them. They are swollen beyond belief, but my pants cover them so no one can see. I have a fever, but I secretly take Tylenol when no one is looking. My hair is falling out even more from the methotrexate, but I… Continue

Posted on December 24, 2007 at 1:34am —

Welcome to
BUTTERFLIES AMONG US

Sign Up
or Sign In

About

Butterfly Kimberly created this Ning Network.

Badge

Loading…

Get Badge

Forum

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

My Hysterectomy and HRT 1 Reply

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr Nov 22.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Lymphoma, or just the lupus??? 21 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.