BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

julie
  • 35, Female
  • Grand Rapids
  • United States
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Alex and julie are now friends
August 11
julie updated their profile
July 13
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June 25
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June 25
julie added a discussion
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was sent for a CT Scan of the neck, chest, abdomen ...
March 18
julie and Tarsha are now friends
March 12

Comment Wall (260 comments)

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At 4:49pm on June 25, 2009, LUPIEBIN said…
HELLO MS. CELEBRITY!!! lol

Wonderful job on TV! THANK YOU!!

Sending hugs
At 11:14pm on May 21, 2009, Stacey [Pinkdrgfly] said…
hugs Pictures, Images and Photos
At 9:59am on May 8, 2009, DebrAngel said…
Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Photobucket
Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'
At 11:42pm on April 26, 2009, Stacey [Pinkdrgfly] said…
Gentle Hugs Pictures, Images and Photos
At 6:47am on April 17, 2009, Geoff Thomas said…
Hi Julie & lovely to hear from you!

We've just got to get the timing right with the radio - I'll try and get some dates sorted out over the next week. No doubt, emails will follow!

As always, Geoff...
At 10:43am on April 16, 2009, DebrAngel said…
Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

Color changing Rose Blue Rose
At 4:07pm on March 29, 2009, Heather said…
Julie, I am so sorry that you are having to go to an Oncologist. I hope they can figure out how to get you better.
At 11:18pm on March 19, 2009, Joey said…

Thanks for the comment. Sorry I haven't been on in here in a while, life has just been really busy. How are you doing?
At 2:38pm on March 18, 2009, DebrAngel said…
I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

St. Patrick's Day Myspace Comments
St. Patrick's Day Myspace Comments
At 8:37pm on February 22, 2009, MRS.YANKSTER said…

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
Lupus, SLE, Raynauds, migraines
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
birthday is november 30. Diagnosis anniversary is May 21, 1998
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
www.myspace.com/wwwmyspacecombabysteps
Facebook: Username is Julie.MackMiller
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
That there will be no cure for lupus. My son or someone in my extended family may suffer from lupus or a related autoimmune disease.
Favorite pastimes? (You may want to share in GROUPS!! :)
Summertime at my grandparents cottage. Swimming, riding on the pontoon, not having a care in the world!!!
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes
Would you refer others?
yes
Most Important, how did you hear about this site?
From other myspace friends site.

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Julie's Blog

julie

Depression

Living in Michigan, you can tell the difference in the mood of people at the first sign of spring. The energy alone that the sun brings out in others; kids outdoors; neighbors taking walks, just enjoying themselves. Why can't I feel that same way??? What is wrong with me? Could it be that it was the same time of year that I was so sick I nearly lost my life to Lupus that it brings back all the memories I relive each year? I know the sun is not my friend and unlike others, I enjoy the cloudy days… Continue

Posted on March 14, 2008 at 9:54am — 3 Comments

 
 

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colsbutterflies

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 1 day ago.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr 1 day ago.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

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Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

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Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Roxanne

New Here

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES Oct 20.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

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Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

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Started by Sandy Medine in MISCELLANEOUS Oct 18.

Dotti Obert

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

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Dotti Obert

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

John A  "Dad Butterfly"

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.

Sandy Medine

Vigorous debate about health insurance reform 1 Reply

Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...

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Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.

Chelae

I need some advice. 2 Replies

I am new to this site and this is my first time posting. My name is Chelae and I was diagnosed with SLE and Lupus Nephritis in October 2008. I spent 9 weeks in the hospital with complications from ...

Started by Chelae in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Jayne Oct 4.

Danielle McNeil

HAS ANY ONE HAD HIGH CALCIUM AND HIGH VITAMIN A LEVELS?

MY LEVELS ARE VERY HIGH AND MY DR'S CANT FIGURE OUT WHERE ITS COMING FROM. ONE DR SAID I WOULD HAVE TO EAT POLAR BEAR LIVER EVERYDAY TO GET A VITAMIN A LEVEL THAT HIGH! HELP!

Started by Danielle McNeil in I'M IN NEED OF SUPPORT PLEASE!! Oct 3.

Sandy Medine

A Triple Threat: Lupus, Heart Disease, and Osteoporosis 1 Reply

A Triple Threat: Lupus, Heart Disease, and Osteoporosis Reviewed by QualityHealth's Medical Advisory Board There's ample evidence showing that lupus increases a woman's risk of heart disease by fiv...

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MRS.YANKSTER

Jesus the Great Fixer...

Its seem thier is so much bad news with all my dear friend latley I just want everyone to know Iam thinking of you all and you are all in my Prayers Many blessings You may be knocked down with you...

Started by MRS.YANKSTER in I'M IN NEED OF SUPPORT PLEASE!! Sep 30.

feeling2008

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Started by feeling2008 in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Jenny (G'ma) Sep 28.

 

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