LUPUS/Fibromyalgia and more: Support for all

julie 35, Female Grand Rapids United States: Share

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First television interview: FOX 17 NEWS: LUPUS AWARENESS!!

Replied Jul 13

First television interview: FOX 17 NEWS: LUPUS AWARENESS!!

Replied Jun 28

First television interview: FOX 17 NEWS: LUPUS AWARENESS!!
6 Replies

Started this discussion. Last reply by Melinda Tucker Aug 13.

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The Butterfly Garden

76 members
mommies with lupus

54 members

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Latest Activity

Alex and julie are now friends

August 11

julie updated their profile

July 13

julie added a discussion

First television interview: FOX 17 NEWS: LUPUS AWARENESS!!

June 25

julie added a blog post

First Television Interview- FOX 17 news: LUPUS AWARNESS!!!

June 25

julie added a discussion

Lymphoma, or just the lupus???

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was sent for a CT Scan of the neck, chest, abdomen ...

March 18

julie and Tarsha are now friends

March 12

Comment Wall (260 comments)

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At 4:49pm on June 25, 2009, LUPIEBIN said…: HELLO MS. CELEBRITY!!! lol

Wonderful job on TV! THANK YOU!!

Sending hugs

At 11:14pm on May 21, 2009, Stacey [Pinkdrgfly] said…

At 9:59am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 11:42pm on April 26, 2009, Stacey [Pinkdrgfly] said…

At 6:47am on April 17, 2009, Geoff Thomas said…: Hi Julie & lovely to hear from you!

We've just got to get the timing right with the radio - I'll try and get some dates sorted out over the next week. No doubt, emails will follow!

As always, Geoff...

At 10:43am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 4:07pm on March 29, 2009, Heather said…: Julie, I am so sorry that you are having to go to an Oncologist. I hope they can figure out how to get you better.

At 11:18pm on March 19, 2009, Joey said…: Thanks for the comment. Sorry I haven't been on in here in a while, life has just been really busy. How are you doing?

At 2:38pm on March 18, 2009, DebrAngel said…: I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 8:37pm on February 22, 2009, MRS.YANKSTER said…

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Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?: Lupus, SLE, Raynauds, migraines

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!: birthday is november 30. Diagnosis anniversary is May 21, 1998

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :): www.myspace.com/wwwmyspacecombabysteps
Facebook: Username is Julie.MackMiller

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :): That there will be no cure for lupus. My son or someone in my extended family may suffer from lupus or a related autoimmune disease.

Favorite pastimes? (You may want to share in GROUPS!! :): Summertime at my grandparents cottage. Swimming, riding on the pontoon, not having a care in the world!!!

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?: yes

Would you refer others?: yes

Most Important, how did you hear about this site?: From other myspace friends site.

Get your own myspace graphics or myspace layouts at MyspaceBrand.com

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Julie's Blog

First Television Interview- FOX 17 news: LUPUS AWARNESS!!!

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Posted on June 25, 2009 at 3:07pm —

Depression

Living in Michigan, you can tell the difference in the mood of people at the first sign of spring. The energy alone that the sun brings out in others; kids outdoors; neighbors taking walks, just enjoying themselves. Why can't I feel that same way??? What is wrong with me? Could it be that it was the same time of year that I was so sick I nearly lost my life to Lupus that it brings back all the memories I relive each year? I know the sun is not my friend and unlike others, I enjoy the cloudy days… Continue

Posted on March 14, 2008 at 9:54am — 3 Comments

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SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.

My Hysterectomy and HRT

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS Nov 14.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Lymphoma, or just the lupus??? 21 Replies

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

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Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

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Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

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Quantum Physicist reveals how to master “The Secret”!!download free e-book

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Tagged: http://www.believeandmanife...

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Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.