BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

heather
  • 44, Female
  • Lakewood,Ohio
  • United States
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Depressed today

Replied Nov. 13, 2008

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Replied Oct. 20, 2008

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Terri and heather are now friends
April 13

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At 12:09pm on February 18, 2009, colsbutterflies said…

MySpace Graphics & MySpace Layouts
At 4:47pm on December 31, 2008, Joey said…

New Year
MySpace Graphics & Free Myspace Layouts


At 2:43pm on December 30, 2008, Ginner said…
MyHotComments.com
MyHotComments
At 5:20pm on December 22, 2008, Ginner said…

At 2:04pm on December 22, 2008, SLM said…

At 6:32pm on December 19, 2008, Joey said…

glitter-graphics.com
At 5:48am on December 15, 2008, Ginner said…
Simple Additions Coffee & More Cups Pictures, Images and Photos
At 9:20am on December 11, 2008, Carol said…
FRIENDS
At 11:55am on November 26, 2008, Ginner said…
thanksgiving Pictures, Images and Photos
At 2:40pm on November 14, 2008, Ginner said…

Thinking of you...thank you for the nice note. and pic, it means so much to em...
Hang in there. I am here for you. It will be okay.
huggss
ginner
At 12:16pm on November 14, 2008, Carol said…
HEY HEATHER, I HOPE YOU HAVE A WONDERFUL AND PAIN FREE DAY. KISSES AND GENTLE HUGS,
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At 4:46pm on November 13, 2008, Ginner said…
Hello Heather.
Please click and open Dr Pellergrinos info.
They have several clinics in Ohio.. numbers are included.

http://www.ohiorehabcenter.com/pellegrino.php

Please call them and make an appt. I am worried about you.
hugs
ginner..
At 1:57pm on November 10, 2008, Carol said…
HELLO HEARTHER, MY FRIEND. I HOPE YOU HAVE A BEAUTIFUL DAY.
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At 12:06pm on November 10, 2008, Ginner said…

At 3:54am on November 3, 2008, Kimber said…

MySpace Graphics
At 3:33pm on October 31, 2008, Dotti Obert said…

Girly Comments & Graphics


Hi Heather, just wanted to say hi, and to see how you are doing? Hope all is well with you. I hope you had a good day, and I hope you have a pain free {ha ha} evening. Hope you also have a good weekend. Take care, and I'll talk to you soon.

Hugs,love, ~Dotti~ xxxxxx
At 9:24pm on October 27, 2008, Joey said…
Hey. Thanks for the add!
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At 12:30pm on October 24, 2008, Ginner said…

hi heather..
how are you doing ?
I am thinking of you
hugs
gin
At 5:07pm on October 22, 2008, Dotti Obert said…

MySpace Graphics
At 2:35pm on October 22, 2008, SLM said…

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
fibromyalgia,migranes,ibs,acid reflux,depression
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
FEB 18TH BIRTHDAY
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
myspace/heather196589
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
I fear being alone . roller coasters,heights,and not finding help with my fibro.
Favorite pastimes? (You may want to share in GROUPS!! :)
READING
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes
Would you refer others?
yes
Most Important, how did you hear about this site?
kimberly

Heather's Blog

heather

deniend ssi for a second time

I JUST GOT DENIEND FOR THE SECOND TIME FOR SSI.. PRETTY UPSET THINGS JUST CAN'T BE EASY CAN THEY.. I WAS WONDERING IF ANYONE KNEW WHAT HAPPENS NEXT AND THERE EXPERIENCE WITH THIS. SHOULD I GIVE UP OR KEEP FIGHTING ANY INPUT WOULD BE APPRECIATED....

Posted on November 17, 2008 at 4:08pm — 5 Comments

heather

I AM IN NEED OF FREINDS AND SUPPORT RIGHT NOW...

I AM SO MAD AND REALLY UPSET, I WENT INTO THE HOSPITAL MONDAY FOR VOMITING FOR 7 DAYS STRIAGHT I MEAN I COULDN'T KEEP ANY THING DOWN NO EVEN MY MEDS. THEY ADDMIITED ME RAN THERE TEST BLOOD WORK ULTRA SOUND,X-RAYS I WAS IN SO MUCH PAIN BECAUSE FIBRO KICKED IN. THEY SAID I HAVE PSYCHOGENIC VOMITING, IS THIS IN OTHER WAY OF SAING IT IS IN YOUR HEAD. HOW CAN VOMINTING BE IN YOU HEAD.... I AM SO READY TO JUST DIE AM I CRAZY OR WHAT MY HEAD IS SPINING AND I AM SOO F FRUSTRATED PLS I NEED SUPPORT I AM… Continue

Posted on November 13, 2008 at 12:30pm — 4 Comments

heather

THE SPOON THEROY... I FOUND THIS ON MY SPACE. NOT ONLY FOR PEOPLE WITH LUPUS BUT PEOPLE WITH FIBRO ALSO

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.

As I went to take some of my medicine with a snack as I usually did, she watched me with an awkw… Continue

Posted on October 11, 2008 at 10:13am —

heather

NO HEALTH INSURANCE NO MEDS

I AM WRITING THIS BECAUSE I DON'T KNOW WHAT CAME OVER THIS WORLD..... WHERE SOME DOCTORS DON'T EVEN PAY TO MUCH ATTENTION TO YOU IF YOU DON'T HAVE HEALTH INSURANCE OR YOU HAVE GOVERMENT HEALTH INSURANCE,LIKE MYSELF I HAVE GOVERMENT HEALTH INSURANCE.. I HAVE A DOCTOR WHO JUST DIMISSES MY CONDITION AND DOES NOTHING BUT WRITE A SCRIP FOR MEDS THAT I HAVE TOLD HIM THAT THEY DON'T HELP ME. I THINK HE THINKS I AM CRAZY OR I AM DRUG SEEKING I DON'T KNOW I JUST FEEL I AM TREATED THAT THIS BEACAUSE THEY… Continue

Posted on October 11, 2008 at 10:05am — 1 Comment

 
 

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Allison Abrusci

Plaquenil/Memory 2 Replies

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Eileen 10 minutes ago.

Donna J Farr

Hello Everyone 5 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Tina Romine 35 minutes ago.

Butterfly Kimberly

THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene Dec 4.

Roxanne

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Niki

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

joy

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

Dotti Obert

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

julie

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Michelle

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

 

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