LUPUS/Fibromyalgia and more: Support for all
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Butterfly Kimberly
- 38, Female
- Boston
- United States
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- Discussions (284)
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- Photos (85)
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- Videos (5)
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Butterfly Kimberly's Groups
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Women Empowerment
8 members
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Card exchange
30 members
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MEMORY LANE
81 members
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Mountian of Hope
87 members
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New England Fibro and ...
6 members
Butterfly Kimberly's Discussions
Lupus Awareness PSA please watch and put on other sites :)
Started May 18
THEMES FOR YOUR PAGES
Replied Apr 14
WELCOME BUTTERFLIES :)
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- SLE, Fibro, pericarditis, degenerative arthritis (mild), migraines, and every other headache, MVP, anxiety/panic, osteoporosis, and more.....
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- ENTER YOUR BIRTHDAYS, ANNIVERSARIES, ETC. IN THE EVENTS TAB ABOVE!!
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- www.myspace.com/kimberlyn77
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Many many fears with this illness. I am mostly scared for my children. I hate to see them see me when I am having bad flare days. I know it scares my oldest more so than my youngest. My son is 12, and my daughter is 6. He has seen the changes over the years in me. We all need to help each other out emotionally, if not physically, considering this is an internet site....lol. I mostly fear losing my life to this stupid disease at an early age, and that depresses me. I want to see my children grow up, have great jobs and families.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- I LOVE all kinds music! EXTREME is one of my most favorite bands, they are from Boston! Some of you may know of them from the song "More Than Words". They have just announced in December that they have gotten back together!! I am in their "Hole Hearted" video and a pic of me in the video that a friend from China somehow captured is below!
And here's my picture with Nuno, my favorite guitarist. He IS the best guitarist!
Musical movies, musical theater. RENT is my favorite, such special meaning behind it, especially in the movie. It's eaiser to understand. It's all about accepting people for who they are inside, not out! "No Day But Today" ~Jonathan Larson.
Visit Everything is RENT
CONCERTS!!!!
I love to go outside on nice days, when I am able, to watch my kids play, or play with them. Although I am restricted to some extent, I try. And then I end up paying for it, don't we all? I also enjoy going on myspace and making pages for my friends, and also helping to spread the word about our illness. I also love to go out to dinner with friends. I LOVE going to concerts when I can.....
TO MY FELLOW LUPUS/FIBRO+ FRIENDS AND SUPPORTERS THAT I HAVE NEVER MET IN PERSON: JUST WANNA SAY: across the miles you've brought me smiles you've wiped my tears by lending an ear, although my voice you have not heard you've listened carefully to my thoughts my feelings my words. and I want you to know I'm glad we met over the net, 'cause my heart is happy deep down inside and you're a treasure my friend and that's no lie! Thanks for your friendship and Thanks for being YOU!
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- I hope it will be for others!
- Would you refer others?
- Yes, that's why I started it!
- Most Important, how did you hear about this site?
- I found a badge for another network on myspace, and then decided that I should make a LUPUS/FIBROMYALGIA space for us lupies and fibro sufferers, and also anyone with other illness AND all of our supporters! I hope everyone that joins enjoys our "OWN" space! Lupie/Fibro hugs! xo ~BK
PLEASE VISIT THE MAIN PAGE FOR INFORMATION AND BIRTHDAYS!!!
Visit Everything is RENT
Butterfly Kimberly's Blog
Hello from Butterfly Kimberly to ALL!!
Posted on July 27, 2008 at 1:52pm — 1 Comment
To all my members! SORRY!
Posted on July 15, 2008 at 9:53am — 1 Comment
LAST WEEKS BIRTHDAYS AND ANNIVERSARIES
Posted on June 28, 2008 at 11:59am —
TO EVERYONE, I can't respond to each individually unfortunately... :(
Posted on May 26, 2008 at 10:08am — 10 Comments
TO ALL BUTTERFLY MOMS!
Posted on May 9, 2008 at 11:00pm — 12 Comments
Butterfly Kimberly's Photos
Butterfly Kimberly's Videos
About
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Forum
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio 9 hours ago.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio 9 hours ago.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 1 day ago.
Lymphoma, or just the lupus??? 22 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 1 day ago.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley 1 day ago.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley 1 day ago.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley 1 day ago.
ANYBODY LIVING IN FLORIDA?? 4 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio 1 day ago.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
New Here 1 Reply
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
The Cancer Cure Video that circled the globe in 31 minutes
The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
Finding a Cure
Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...
Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.
Quantum Physicist reveals how to master “The Secret”!!download free e-book
http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...
Tagged: http://www.believeandmanife...
Started by Sandy Medine in AWARENESS WORK Oct 19.
New Body Templates Coming Soon!
-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...
Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body
Started by Sandy Medine in MISCELLANEOUS Oct 18.
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Flutterin'-in, 2 Wish U a Beautiful Day, my Dear Sister, Kimberly !! And, 2 say Thank U, 4 All that U do, 4 us, here !!
Many~Gentle~HUGS, & Much LUV, 2 U & Yours, there !!
Jen/G'ma & Hubby
OOOOXXXOOOO
7TRUE.COM
So, when's your next "appearance" on VH1 classic? lol I wish I lived closer, I'd tag along with you gals, I'm sure you have a wonderful time.
Sending healing hugs and wishing you the best, Lupiebin (Sue)
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