LUPUS/Fibromyalgia and more: Support for all

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MEMORY LANE

81 members
For The Love of Fibro

74 members

Holiday CRAFT EXCHANGE

7 members
Diabetic FMS and Lupus

22 members

the pagan group

6 members

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brokendamselfly's Discussions

Anyone with fibromyalgia and rheumatoid arthritis?

Replied Dec. 5, 2008

Anyone with fibromyalgia and rheumatoid arthritis?

Replied Nov. 30, 2008

Ellen From Georgia

Replied Sep. 8, 2008

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Sunshine joined brokendamselfly's group

Holiday CRAFT EXCHANGE

We have some pretty crafty people here and we all know money is xtremely tight for everyone. My idea is if you would like a bracelet that I make, or a pack of handmade cards from Sara, exchange for whatever you create.

May 17

brokendamselfly joined Butterfly Kimberly's group

MEMORY LANE

A place to come and remember our friends/family (butterflies) that have passed. This is a memorial Group.....

March 19

brokendamselfly joined Zabac's group

For The Love of Fibro

This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.

March 19

Sydonnie joined brokendamselfly's group

Soul Patrol

March 7

HeartTugs joined brokendamselfly's group

Soul Patrol

February 23

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Fibromyalia, Diabetic Peripheral Neuropathy, Degenerative Disc Disease, Dercum's disease, MPS, diabetes II, sleep apnea, depression, irritable bowel, chronic allergies, on and on and on

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!

October 10, 1968.....big 40 this year...ugh!!

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

www.myspace.com/chelenstephen

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

snakes ew
and it I am afraid of what this will feel like when I am 80 if my body feels like it is 80 now

Favorite pastimes? (You may want to share in GROUPS!! :)

Soul's Fibro site chat, watching tv, playing solitaire on my phone, shopping, movies

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

yes

Would you refer others?

yes

Most Important, how did you hear about this site?

prohealth chat room

Create Fake Magazine Covers with your own picture at MagMyPic.com
glitter-graphics.com
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More Comments and Myspace Layouts at pYzam.com

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Brokendamselfly's Blog

Blew up the computer

Hello all!!!

I miss you tremendously!!! I received my dream of a 19" monitor for Christmas from my mother in law, so freaking amazing, I LOVE IT!!! And then........... I used one of those things that changes a 2 plug outlet to a 6 plug outlet (without a surge protector) and blew the fuse on the power cord for my laptop!!!! Of course you can't simply put a new fuse in, you cant open the dumb thing, you have to buy a whole new power cord. OYYYYYYY. So my new monitor sits there beautiful but with… Continue

Posted on December 30, 2008 at 7:32pm — 2 Comments

Degenerative Disk

I have to say our Jodie (aka Darkandstormy) was right about my back. I talked to the Dr today about my spinal xray from last week and he confirmed degenerative disk in my lower spine that is causing the excrutiating pain in my lower back and hips. He also said there is nothing they can do just manage it with pain meds. Hello, I am already on pain meds for fibro and neuropathy. And these damn Doctors won't prescribe anything but tramadol or darvocet which just aren't strong enough for the three o… Continue

Posted on December 11, 2008 at 3:11pm — 2 Comments

Getting things taken care of

I never ever make New Years Resolutions. Ever. But, I am trying to turn over a new leaf and take better care of myself. I finally called the endocrinologist last week to get my blood drawn and they called me today to start the synthroid. Today after dealing wth my lower back and eventually hips without saying a word to any one of my Drs over the last few years I finally called my PCP to make an appt for tomorrow. Older and wiser, right? I think I'd like to think I learned something from causing… Continue

Posted on December 2, 2008 at 1:22am —

Thanksgiving with family and friends

Hello all! I hope you had as good of a Thanksgiving as I did. It was so good, it lasted 4 days!!!! Thanksgiving I have been Aunt n Uncle's this year. At Thanksgiving I found out my cousin's were having a party on Saturday. Apparently they have this every year. They call it Thankmas. They decided there needed to be a holiday between Thanksgiving and Christmas so there are decorations for both, food of course, and even Santa makes a visit. Now my Aunt has 7 kids so there are lots of people there w… Continue

Posted on November 30, 2008 at 10:06pm — 1 Comment

Neuropathy update

I joined a group here for people with Diabetes type II and Fibro and I've promised to keep updates here in my blog on the treatments etc I have been receiving for the neuropathy. I am still on the 1800 mg of gabapentin for the neuropathy. But now I take a 6mg capsule of the zanaflex at night instead of the 4mg tablets twice a day. The dr's office has been giving me samples as the 6mg capsule has no generic and is supposed to be rather expensive, but apparently it works differently than the 4mg t… Continue

Posted on November 22, 2008 at 10:25pm —

Comment Wall (165 comments)

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At 11:01pm on May 21, 2009, Stacey [Pinkdrgfly] said…

At 11:17pm on April 26, 2009, Stacey [Pinkdrgfly] said…

At 2:13pm on April 14, 2009, Stacey [Pinkdrgfly] said…: love ya... miss ya girl

At 11:31pm on March 24, 2009, Debbie said…: if you want to exchange a bracelet for a pair of socks I would be more than happy to do that here is my e mail addy dbbta6@aol.com please leave me a note and what color that you would like I like shades of purple.

At 4:47pm on February 25, 2009, Soulten said…: http://soulsfibrosupport.ning.com/

thats website

At 1:37am on January 31, 2009, Kimber said…: Free Comments and Graphics

At 12:40am on January 26, 2009, Kimber said…: Free Comments and Graphics

At 5:27pm on January 14, 2009, Stacey [Pinkdrgfly] said…: What!!!! NO way..ughhhhhhh..how fustrating!

At 4:38pm on January 14, 2009, Stacey [Pinkdrgfly] said…: Hey sister!!! Did you get the cord yet??
x0x0x
Stacey

At 4:18pm on January 14, 2009, lolder (Linda) said…: Myspace Comments Hi broken.......it's been a while. Hope things are going ok with you. Hope the effects of neuropathy and degenerative disk and all the rest are giving you a break now and then.
How is Jodie? I miss her too. Are you all chatting anywhere? Do you still go to Soul's. No one seems to be around when I stop in, so I haven't been in much lately.
Say hi to Jodie if you talk to her. I left her a few messages a while back, but I think she was having computer problems.
I think about you all a lot, but haven't been very good at communicating. Depression has gotten a good tight hold on me so I'm kinda keeping to myself.
Know that I am wishing you the best for 2009 and always!
Hugs
Linda

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New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 21 minutes ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 hour ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio 1 day ago.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio 1 day ago.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.