LUPUS/Fibromyalgia and more: Support for all
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I can stand the pain,until it hurts....
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- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- other
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- bees
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- yeah
- Would you refer others?
- yeah
- Most Important, how did you hear about this site?
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ANYBODY LIVING IN FLORIDA?? 7 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 13 hours ago.
Lymphoma, or just the lupus??? 23 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.
THE SPOON THEORY 39 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.
Hello Everyone 6 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.
Plaquenil/Memory 3 Replies
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…
Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…
Started by Amy Jill in MEDICATIONS Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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Have a wonderful weekend.
Hope all is well.....I'm trying to catch up!!
~Kimberly (BK)
Sorry this is so late. I normally welcome my members as soon as I can, however, my computer died in mid August, then had to order a new one. The new one didn't come in until the last week in Aug. when I was moving, and the kids were getting ready to get back to school. :)
Welcome, to Butterflies Among Us! I am sure you will find this site very informative. You will also find all the support in the world here! Please feel free to ask any questions. Please visit the FORUM to find some answers to questions already asked, or post your own question or discussion. You are sure to get feedback! Everyone is so friendly around here, and it’s a fun, easy going place to be. To share stories, make life-long friendships, vent, laugh, cry, support, etc. We are all in this together to get AWARENESS OUT THERE to help fight illness(es), to find better treatments, even better cures! Hugs, xoxoxox ~Butterfly Kimberly (BK)
P.S. FYI ~ I AM LETTING ALL NEW MEMBERS KNOW THIS.....IT IS EASIER TO "COMMENT BACK" TO OTHERS, RATHER THAN LEAVING A COMMENT ON YOUR "OWN" PAGE, AS THEY MAY NOT SEE IT WHEN THEY DO RETURN TO YOUR PAGE. AND SOMETIMES IF YOU GET A LOT OF COMMENTS, IT MAY NOT SHOW ON THIS PAGE, AND YOU'LL HAVE A SECOND PAGE OF COMMENTS TOO =)
Also, when choosing what emails you want and don't want to receive from this website, please make sure to have a check in the box to receive any mass distributed emails to the entire network, in case I need to inform everyone of something going on with the site! I'd appreciate it, thanks!
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