BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

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Linda D. Costa joined Zabac's group
This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.
December 7
Dorothy Moniz joined Zabac's group
This site is an offshoot of the card exchange. I know money is tight and it's a tough economy but I was thinking back to a few years ago when I did a secret santa thing and it was fun. Nothing fancy. We set a price of like $20 or less.
November 21
Dorothy Moniz joined Zabac's group
Happy Holidays everyone!! I am creating this group for the purpose of doing card exchanges. I think it would be great to exchange Christmas/holiday cards. Hope to see ya here!!
November 21
Janet D. Jung joined Zabac's group
This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.
November 17
Amy Jill joined Zabac's group
This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.
November 11
joy joined Zabac's group
This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.
November 9
In bed mad at dr for being unwilling to fix my pain med hoping pain specialist is better.
September 16
Byron joined Zabac's group
This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.
September 12

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I have fibromyalgia along with a host of other things. Fibro,neuropathy,depression,GERD,High blood sugar and cholesterol,osteoarthritis and RLS.
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
Birthday is January 26th. My anniversary is May 17.
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
myspace.com/zabac96
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
abandonment,dying,cancer,never knowing if the pain will stop or get worse
Favorite pastimes? (You may want to share in GROUPS!! :)
Read,play with julius and the kitties. cuddle up with them
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes
Would you refer others?
yes
Most Important, how did you hear about this site?
tamcats

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Zabac's Blog

Zabac

Hi Everyone this is a notice for all my friends

Hi yall. I just wanted to let yall know that i will be gone from Tuesday the 8th to the following Tuesday. I most likely will be back online on saturday. I just want yall to know that i am ok. I'll try to get on when i can. Please pass this onto everyone especially the PHC people. thanks.

Love,

Kelly

Posted on July 7, 2008 at 9:30pm —

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At 11:32pm on September 27, 2009, ,Martha said…
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Hugs Martha
At 6:39am on September 13, 2009, Jenny (G'ma) said…
visit dazzlejunction.com
Inspirational Comments
Myspace Comments - Myspace 2.0 Layouts
Kelly,
It's So Nice 2 hear from U !! Not so nice, 2 hear about All your Extra Burdens !! However, That's what we R All here 4 !! Some-X's, it Helps 2 Know ya have a place 2 come-2, & talk W- those who Really care & Understand, just what U're goin'-Thru !! So, Glad 2 C, U're BACK !!
I'm not on here, as much as I used 2 B, due 2 Workin' & takin' care of my Hubby !! But, I do Keep, All of my Extended Family, Bros. & Sisters, in our Nightly-Prayers !!

Angels Comments

Spicecomments.com - Angels Comments

Sendin' ya, this Angel, 2 Offer Blessings, 4 U & Your Hubby !! May the Issues W- his job, turn-out, 2 Work the Very BEST 4 the 2-of-U !!

Hugs Comments

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Many~Gentle~HUGS~4~U~&~Your ~Hubby !!
Luv, Jen/G'ma & Hubby OOOXXOOO
At 10:36am on July 4, 2009, Dorothy Moniz said…

July 4th Comments

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At 10:55pm on May 21, 2009, Stacey [Pinkdrgfly] said…
hugs Pictures, Images and Photos
At 3:11am on February 13, 2009, ressiej said…
At 12:18am on February 9, 2009, Donna Lynne said…
Hi
I just saw that you added me. How are you? I hope all is well.

Donna
At 1:08pm on January 27, 2009, ressiej said…
At 4:33pm on January 14, 2009, Stacey [Pinkdrgfly] said…
At 5:48pm on January 5, 2009, Stacey [Pinkdrgfly] said…
GREAT WEEK Pictures, Images and Photos
At 10:34pm on December 31, 2008, ressiej said…

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Forum

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 7 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 13 hours ago.

julie

Lymphoma, or just the lupus??? 23 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.

Butterfly Kimberly

THE SPOON THEORY 39 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.

Donna J Farr

Hello Everyone 6 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.

Allison Abrusci

Plaquenil/Memory 3 Replies

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…

Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.

Roxanne

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Niki

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

joy

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

Dotti Obert

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Michelle

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…

Started by Amy Jill in MEDICATIONS Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

 

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