BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

William Davis
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  • Washington, DC
  • United States
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William Davis and Tina Romine are now friends
yesterday
William Davis added a blog post
The LFA Annual Advocacy Day provides lupus advocates from across the nation the opportunity to participate in meetings with their U.S. Senators and Representatives to educate policy makers on lupus and discuss public policies that affect people wi...
yesterday
William Davis added 2 blog posts
on Wednesday
William Davis added a blog post
The LFA is consulting with the Centers for Disease Control and Prevention (CDC), as well as our National Medical-Scientific Advisory Council, on the possible impact of this virus on people with lupus. The Lupus Foundation of America (LFA) is aware...
on Monday
William Davis added a blog post
Interferons (IFNs) are proteins produced by immune cells when the immune system is activated. They send different instructions to cells depending on the needs of the immune response; this can lead to cells making certain inflammatory proteins. IFN...
November 6
William Davis added a blog post
Reminder -- the Lupus Foundation of America's webchat is next Wednesday afternoon, November 11, at 3 p.m. Eastern Time. The LFA welcomes Ms. Cindy Coney, who will serve as the guest expert for the "Social Wellness, Making Connections and Helping ...
November 4
William Davis added a blog post
BENLYSTA™ Successful in Second Pivotal Clinical Trial Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) today announced positive results from BLISS-76, the second of two large-scale phase III clinical trials of BENLYSTA™ (belimumab) for treat...
November 2
William Davis added a blog post
Mashable, in partnership with MOTOBLUR, is conducting the 3rd Annual Open Web Awards: Social Media Edition. The 2009 Open Web Awards is Mashable’s international online voting competition that covers major innovations in web technology and social m...
October 28
William Davis added a blog post
Although women with lupus used to be advised to avoid getting pregnant, out of fear of complications for the mother, the baby, or both, a better understanding of the complications of lupus and improved management of lupus pregnancies have resulted...
October 26
William Davis added a blog post
The Lupus Foundation of America (LFA) is participating in America’s Giving Challenge ... and we need you and your friends and family to help us win! Winning $50,000 would mean so much to LFA and the people we support. That amount would fund a nat...
October 21
William Davis added a blog post
Between October 19 – November 9, BioVid Corp. -- a market research firm – is conducting a survey. Specifically, they want to survey people living with lupus about their experiences with, and attitudes toward, the management of some health conditio...
October 16
William Davis added a blog post
Hello all once again! Now this week was a pretty exciting week. Several of us from this season got together and watched the show while having some good food and drinks! We had a great evening and I so look forward to doing it again soon!! Ok. Ba...
October 13
William Davis added a blog post
Written in a warm, engaging style, Coping with Lupus is a guide that will help you cope with the challenges of life with lupus. Dr. Robert H. Phillips, a highly experienced psychologist and founder of The Center for Coping in Long Island, NY, wro...
October 9
William Davis added a blog post
Reminder -- the Lupus Foundation of America's Webchat is next Wednesday afternoon, October 14, at 3 p.m. Eastern Time. The LFA welcomes Ms. Sheri Abrams, who will serve as the guest expert for the Work Disability / SSDI / Health Insurance webchat...
October 7
William Davis added a blog post
Today, The Lewin Group, a national health care consulting firm, issued recommendations on ways to overcome the barriers that have obstructed lupus drug development resulting in no new drug approval for this disease in more than 50 years -- since t...
October 5
William Davis added a blog post
Hello. I am glad to be blogging with you once again. What an episode we had last night. Down to the final five! It had the best and worst of what can take place in the culinary world. You can see how each person expresses themselves in their food,...
October 2

Comment Wall (2 comments)

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At 4:09am on May 30, 2009, Sunshine said…
Hi Williams, Welcome to BUTTERFLIES AMONG US. I HOPE THAT YOU FIND THIS SITE A GREAT PLACE TO BE. A PLACE WHERE YOU CAN SHARE WHATEVER YOU LIKE, AND YOU WILL LEARN SOMETHING EVERYDAY. EVERYONE HERE IS VERY FRIENDLY, AND AVAILABLE WHENEVER YOU NEEDS TO TALK. ONCE AGAIN WELCOME, SUNSHINE.
At 9:17pm on May 28, 2009, John A "Dad Butterfly" said…
Hi William,
myspace comments
Welcome MySpace Comments
I'm very happy that you joined this wonderful group of people here that support and encourage each other in many different ways with the ultimate goal of finding different ways in healing the body and mind.

While your browsing on this site, be sure to go to your settings and check the box to "Receive Broadcast Messages to this Group" in your email settings.

Again, Welcome and glad you joined us, Dad Butterfly

Profile Information

Where did you grow up, and where is your home now?
I currently live in the Washington DC area. I have lived all over the U.S.
Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I am here to support everyone who is living with lupus.
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
Facebook
http://apps.facebook.com/causes/1510?m=4a83263b

MySpace
http://www.myspace.com/lupusfoundationofamerica

Twitter
http://twitter.com/LupusOrg

LFA's blog "On the Road to a Cure."
http://lfa-inc.blogspot.com
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
It's too early for me to answer this question. I won't know till I'm in and using the site.
Would you refer others?
It's too early for me to answer this question. I won't know till I'm in and using the site.
Most Important, how did you hear about this site?
A colleague

William Davis's Blog

William Davis

Save the Date: LFA's Lupus Advocacy Day on Capitol Hill to be Held March 15-16, 2010

The LFA Annual Advocacy Day provides lupus advocates from across the nation the opportunity to participate in meetings with their U.S. Senators and Representatives to educate policy makers on lupus and discuss public policies that affect people with lupus.

L’Enfant Plaza Hotel, in downtown Washington DC, will be our headquarters hotel. More details will be coming soon.

Posted on November 13, 2009 at 7:47am —

William Davis

Participate in the BENLYSTA Research Update Call on Monday, November 30, 2009

The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST.

LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions. Questions can be submitted in advance.… Continue

Posted on November 11, 2009 at 7:55am —

William Davis

Participate in the BENLYSTA Research Update Call on Monday, November 30, 2009

The Lupus Foundation of America (LFA) invites those living with lupus and interested in learning more about the results of the BENLYSTA studies to join us for a special Webinar on Monday, November 30, 2009 at 7 p.m. EST.

LFA’s Medical Director, Dr. Joan Merrill, will review the results of the BENLYSTA studies and answer questions. Questions can be submitted in advance.… Continue

Posted on November 11, 2009 at 7:55am —

William Davis

H1N1 (Swine) Flu Advisory for People with Lupus

The LFA is consulting with the Centers for Disease Control and Prevention (CDC), as well as our National Medical-Scientific Advisory Council, on the possible impact of this virus on people with lupus. The Lupus Foundation of America (LFA) is aware of the concern that people with lupus may have about the recent outbreak of the H1N1 (Swine) Flu.

Get the latest update on HContinue

Posted on November 9, 2009 at 8:22am — 1 Comment

William Davis

MicroRNA’s Role in Interferon’s Contribution to Inflammation

Interferons (IFNs) are proteins produced by immune cells when the immune system is activated. They send different instructions to cells depending on the needs of the immune response; this can lead to cells making certain inflammatory proteins. IFNs communicate with the cells by linking up with receptor proteins along the cell surface, the way a key fits into a lock. This action sends a signal into the cell that eventually either turns on or turns off the process we recognize as inflammation.

Th… Continue

Posted on November 6, 2009 at 8:19am —

 
 

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Vee Marie

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle 11 hours ago.

Michelle

My Hysterectomy and HRT

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS 11 hours ago.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle 13 hours ago.

joy

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? 1 day ago.

Roxanne

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

julie

Lymphoma, or just the lupus??? 21 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

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Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

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Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

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Started by Sandy Medine in MISCELLANEOUS Oct 18.

Dotti Obert

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Dotti Obert

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

John A  "Dad Butterfly"

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.

Sandy Medine

Vigorous debate about health insurance reform 1 Reply

Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...

Tagged: insurance, reform, health, about, debate

Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.

 

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