LUPUS/Fibromyalgia and more: Support for all
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Tina Romine
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Tina Romine's Discussions
Plaquenil/Memory
prednisone causes me to break out to but for the most part it helps . I just got off 80mg a day after a week of it. The plaquinil does help with the skin problems also . Sorry to hear about the heart…
Replied Dec 8
Plaquenil/Memory
Hi, Im on plaquinil and it works for me. The only thing it might cause is problems with eyesight which anyone taking this drug needs to be checked by a eye specialists every 6 months . You might want…
Replied Dec 8
Hello Everyone
You are welcome, and thank you for being you. sorry it has taken me a while to get back to you. I have had another flare up, it was horrible but Im surviving it. Yeah, not only did my family email me…
Replied Dec 8
Hello Everyone
Please don't give up, fight and keep fighting. If you give up Im afraid alot of others will want to also. We all need to stick together here and comfort one another. If you need someone to talk to th…
Replied Nov 24
Tina Romine's Page
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Profile Information
- Where did you grow up, and where is your home now?
- I grew up in Chandler,Indiana and now reside in Evansville,Indiana for the past 21 years.
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- I have Lupus,RSD, RA...I also have a heart valve that needs to be replaced in the near future. Right now I am very sick with these health issues and I try to keep in good spirits about it but it is hard.. The doctors here don't seem to be helping much and I'm confused on what to do. I have been suffering with RSD for 6 years now and have had Lupus for about 2 years. My body is getting weaker and its hard for me to accomplish things I was use to doing and still want to do, and this leaves me depressed. If there is any hope and cure out there I sure hope someone finds it.
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- bluestriek36/myspace
Angels_holdmeup(twitter)
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- I found this site to be very helpful
- Would you refer others?
- yes
- Most Important, how did you hear about this site?
- Through twitter
Tina Romine's Photos
Tina Romine's Blog
IT really makes you wonder, doesn't it?
Posted on November 15, 2009 at 4:45am —
GOD-Please take some of this pain from me
Posted on October 17, 2009 at 2:08am — 1 Comment
LUPUS MIXED WITH RSD makes pain twice as bad
Posted on October 9, 2009 at 3:43am — 1 Comment
IT really makes you wonder, doesn't it?
Posted on November 30, 1999 at 12:00pm —
About
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ANYBODY LIVING IN FLORIDA?? 7 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 13 hours ago.
Lymphoma, or just the lupus??? 23 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.
THE SPOON THEORY 39 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.
Hello Everyone 6 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.
Plaquenil/Memory 3 Replies
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…
Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…
Started by Amy Jill in MEDICATIONS Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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I just read your post and I'm sorry for not getting back to you sooner. I've been really busy with paperwork for my brother. Sorry about your foot. What did you think of what the Dr. said to you about your pain? I do believe that you can ask God to take away some of your pain and I do believe he listens. He's always with us even if we don't realize it. Well I hope your foot gets better soon. Please feel free to message me whenever you want. I will get back to you. Have a great day and I hope the pain is not so bad for you.
Hugs, ~Dotti~
Thanks for your post. I'm so sorry you got something else now. It doesn't seem fair does it. I ended up crying last night cause I was so tired that all the things that I've had to do with my brother is taking a bit of a toll on me. I always wonder if I can handle something else, and then I see that I'm in the middle of another thing that I'm not too sure I can handle. Tomorrow will be better for both of us. I just wanted to let you know that I was thinking of you. I hope you have a wonderful pain free day for both of us.
Hugs, ~Dotti~
Thanks for your message, it's good to hear from you. Let me say how sorry I am for your loss. It must have been and still is very hard on you. I can just imagine how the pain has been for you. I know when I went to Florida and came back from Florida the same weekend it was hell on me. I think I'm still paying for the trip to pick my brother up. I sure hope your pain gets a little better. I hope the pain of your loss gets easier. Please feel free to message me whenever you want. I always check my page out. I hope you have a pain free evening. Take care and God Bless.
Hugs, ~Dotti~
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