LUPUS/Fibromyalgia and more: Support for all

Tina Romine Female United States: Share

Blog Posts (3)
Discussions (9)
Events
Groups (1)
Photos (10)
Photo Albums (1)
Videos

Tina Romine's Apps

Tina Romine's Friends

View All

Tina Romine's Groups

MEMORY LANE

81 members

View All

Tina Romine's Discussions

Hello Everyone

Please don't give up, fight and keep fighting. If you give up Im afraid alot of others will want to also. We all need to stick together here and comfort one another. If you need someone to talk to ...

Replied Nov 24

Lymphoma, or just the lupus???

Catherine, Thank you for replying to this post. I know exactly what you mean about being nervous. I had one on my chest and neck removed, both were negative for lymphoma.... I will say a prayer for...

Tagged: lymphoma, Lupus

Replied Nov 11

Scared about Cytoxan

My doctor had just prescribed a medication simular to that for me and Im like you. Im afraid to take it cause mine causes hair loss and other side effects as well and I haven't taken it yet.

Replied Oct 21

In Severe Pain

I am taking percocet and the pain patch fentenyl(which I heard is dangerous). The pain patch seems to help some tho. I use to be on both of the same meds you are on but they seem to have conflictin...

Replied Oct 13

View All

Tina Romine's Page

Got to take it easy for a while so I can get over my broken foot I didnt even know about till a couple of weeks after the x-ray... Nov 15

Gifts Received (1)

Gold Dipped Rose From Dotti Obert

Latest Activity

Got to take it easy for a while so I can get over my broken foot I didnt even know about till a couple of weeks after the x-ray...

November 15

Tina Romine updated their profile

November 15

Tina Romine added 2 blog posts

November 15

William Davis and Tina Romine are now friends

November 13

Tina Romine and Donna J Farr are now friends

November 11

Tina Romine gave a gift to Dotti Obert

Jack o' Lantern

From the Gift Store

October 26

Tina Romine received a gift from Dotti Obert

Gold Dipped Rose

From the Gift Store

October 26

Tina Romine added 8 photos

4 more…

October 18

Tina Romine added a blog post

GOD-Please take some of this pain from me

October 17

Tina Romine joined Butterfly Kimberly's group

MEMORY LANE

A place to come and remember our friends/family (butterflies) that have passed. This is a memorial Group.....

October 14

Tina Romine and Jayne are now friends

October 14

Tina Romine added a blog post

LUPUS MIXED WITH RSD makes pain twice as bad

October 9

Tina Romine and GoldenLadyNiecy are now friends

September 28

Tina Romine added 2 photos to the album 'Photos of me'

September 25

Tina Romine is now a member of BUTTERFLIES AMONG US

Welcome Them!

September 24

Profile Information

Where did you grow up, and where is your home now?

I grew up in Chandler,Indiana and now reside in Evansville,Indiana for the past 21 years.

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

I have Lupus,RSD, RA...I also have a heart valve that needs to be replaced in the near future. Right now I am very sick with these health issues and I try to keep in good spirits about it but it is hard.. The doctors here don't seem to be helping much and I'm confused on what to do. I have been suffering with RSD for 6 years now and have had Lupus for about 2 years. My body is getting weaker and its hard for me to accomplish things I was use to doing and still want to do, and this leaves me depressed. If there is any hope and cure out there I sure hope someone finds it.

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

bluestriek36/myspace
Angels_holdmeup(twitter)

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

I found this site to be very helpful

Would you refer others?

yes

Most Important, how did you hear about this site?

Through twitter

Tina Romine's Photos

Loading…

Tina Romine's Blog

IT really makes you wonder, doesn't it?

I went to see my foot doctor again on Friday, November 13th. ( just the date alone had me paranoid.lol). I was shown some x-rays of my feet that were taken about a couple of weeks ago. The x-ray showed that I have a broken foot and alot of bone spurs as well. Now I sit with my feet taped for support, waiting till next month when I go back to the doctor to have my feet casted, really not sure why but I will see... I knew my foot was hurting just a little but when you have pain all over more sever… Continue

Posted on November 15, 2009 at 4:45am —

GOD-Please take some of this pain from me

God please take some of this pain from me. My legs are swollen as you can see. My knees won't hardly hold me up anymore. Atleast I have the angels you have sent me to hold me up so I can walk. Lord, as you know I have ulcers popping up everywhere on my feet and legs from that Lupus. I try so very hard God to keep the devil in his place and away from me and my family but sometimes that is hard to do too with all the drama and hurt in this world. Whatever I have or might have done today dear God,… Continue

Posted on October 17, 2009 at 2:08am — 1 Comment

LUPUS MIXED WITH RSD makes pain twice as bad

On Monday morning when I awoke, I couldn't hardly move to get out of bed. The pain from the Lupus and RSD was so bad that I was crying. After a little while I struggled to get out of bed and made it to my computer chair but then as I sat there the pain got really intense and I was screaming and shakeing like I was being electrocuted, my whole body hurt. I am on the pain patch and strong pain pills and this should not be happening to me this bad. This was so bad it was worse then having a baby. I… Continue

Posted on October 9, 2009 at 3:43am — 1 Comment

IT really makes you wonder, doesn't it?

Posted on November 30, 1999 at 12:00pm —

Comment Wall (13 comments)

You need to be a member of BUTTERFLIES AMONG US to add comments!

Join this Ning Network

At 4:00am on November 23, 2009, Donna J Farr said…: Hello, I am so depressed I need to reach out to a friend. The Holidays bum me out I have some family that live in Arizona and none here in Texas. Except my daughter and my jack...... husband.I want to give up and I hope you are not bored or to busy. Don;t mean to dump on you, we all have enough crap to deal with.
I made a note on my page--Thanks for being a friend.Click to Enlarge
>

At 10:39am on October 26, 2009, Dotti Obert gave Tina Romine a gift…: Gold Dipped Rose
Thought I'd send you a rose to let you know I was thinking about you Tina. Hope things are going ok for you. Hugs, ~Dotti~
From the Gift Store

At 12:48pm on October 19, 2009, Dotti Obert said…: Hi Tina,
I just read your post and I'm sorry for not getting back to you sooner. I've been really busy with paperwork for my brother. Sorry about your foot. What did you think of what the Dr. said to you about your pain? I do believe that you can ask God to take away some of your pain and I do believe he listens. He's always with us even if we don't realize it. Well I hope your foot gets better soon. Please feel free to message me whenever you want. I will get back to you. Have a great day and I hope the pain is not so bad for you.

Hugs, ~Dotti~

At 10:13am on October 15, 2009, Dotti Obert said…: Hi Tina,
Thanks for your post. I'm so sorry you got something else now. It doesn't seem fair does it. I ended up crying last night cause I was so tired that all the things that I've had to do with my brother is taking a bit of a toll on me. I always wonder if I can handle something else, and then I see that I'm in the middle of another thing that I'm not too sure I can handle. Tomorrow will be better for both of us. I just wanted to let you know that I was thinking of you. I hope you have a wonderful pain free day for both of us.

Hugs, ~Dotti~

At 4:26pm on October 13, 2009, Dotti Obert said…: Hi Tina,
Thanks for your message, it's good to hear from you. Let me say how sorry I am for your loss. It must have been and still is very hard on you. I can just imagine how the pain has been for you. I know when I went to Florida and came back from Florida the same weekend it was hell on me. I think I'm still paying for the trip to pick my brother up. I sure hope your pain gets a little better. I hope the pain of your loss gets easier. Please feel free to message me whenever you want. I always check my page out. I hope you have a pain free evening. Take care and God Bless.

Hugs, ~Dotti~

At 8:51am on October 13, 2009, Danielle McNeil said…: IM SOOOO SORRY ABOUT YOUR FATHER! I CANT IMAGINE THE PAIN AND STRESS YOU ARE GOING THROUGH! HANG IN THERE.. YOUR IN MY PRAYERS!
DANI

At 12:52pm on October 12, 2009, Dotti Obert said…: Hi Tina,
Well it's another day, and I was thinking of you. How are you feeling today?? My hubby has today off, so we're taking it easy. I just wanted to let you know I was thinking of you. Take care, and I'll talk to you soon. Hope you have a pain free day.

Hugs, ~Dotti~

At 12:58pm on October 11, 2009, Dotti Obert said…: Hi Tina,
Just read your message, and a pain free weekend means I hope you don't have too much pain. We all know here there really isn't a pain free weekend. Still I hope that your pain maybe a little less than what it is. I know mine isn't, so it's not just you. Try to enjoy your weekend. I know the weather is beautiful here in Pa and I hope your weather is nice also. Take care, and I'll talk to you soon.

Hugs, ~Dotti~

At 1:37pm on October 10, 2009, Dotti Obert said…: Hi Tina,
Thanks for putting in the friend's request to me. I accept! I haven't been here in a while, and now I'm back. I hope we'll be talking with each other. I hope you have a pain free weekend.

Hugs, ~Dotti~

At 9:34am on October 10, 2009, Danielle McNeil said…: THANK YOU FOR THE WARM WELCOME! I KNOW HOW YOU FEEL NOT BEING ABLE TO FIND A DR THAT KNOWS WHAT WE ARE GOING THROUGH. MY DR JUST SAID I DONT KNOW WHAT ELSE TO DO WITH YOU.( HE HAS BEEN GREAT FOR THE LAST 7 YEARS) BUT HE IS RUNNING OUT OF IDEAS FOR ME. HE IS SENDING ME TO COLUMBIA IN NYC. THE SOONEST THEY CAN GET ME IN IS THE 27TH OF THIS MONTH. ALL I CAN THINK IS I HAVE TO SUFFER FOR 17 MORE DAYS TO...... MAYBE GET HELP! IM SO SORRY YOU ARE SUFFERING TOO! I HOPE YOU FEEL GOOD TODAY!!! THANKS FOR REACHING OUT TO ME!

No comments yet!

View All Comments

Welcome to
BUTTERFLIES AMONG US

Sign Up
or Sign In

About

Butterfly Kimberly created this Ning Network.

Badge

Loading…

Get Badge

Forum

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 17 hours ago.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley 17 hours ago.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley 17 hours ago.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley 17 hours ago.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley 17 hours ago.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio 18 hours ago.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.