LUPUS/Fibromyalgia and more: Support for all

Terri 34, Female santa rosa beach, fl United States: Share

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Sorry I have been MIA for a long but....
13 Replies

Started this discussion. Last reply by Dawn Dec. 26, 2008.

Can someone with Fibromyalgia also have a "mood disorder" like bipolar?

Replied May. 25, 2008

Sunless Tanners

Replied Apr. 18, 2008

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Terri's Groups

A LOVE OF ALL THINGS A...

43 members
The Butterfly Garden

76 members

Bath & Beauty for Lupi...

29 members
Beading for Lupus-Fibr...

32 members

Great website for Fibr...

78 members

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Terri's Page

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Janette joined Terri's group

Recipe X-Change

A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

July 13

Kristin Reece joined Terri's group

Recipe X-Change

A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

June 3

Sunshine joined Terri's group

Recipe X-Change

A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

May 17

Terri is now friends with Heather and heather

April 13

Joyce joined Terri's group

Recipe X-Change

A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

March 24

Cindy Hill joined Terri's group

Recipe X-Change

A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

February 15

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At 4:52pm on June 25, 2009, LUPIEBIN said…: Just stopping by to give a hug, hope you're doing well

At 10:17am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 11:04am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 9:10pm on March 22, 2009, Kevin Simien said…: MyHotComments

At 2:56pm on March 18, 2009, DebrAngel said…: I know the St. Patrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 3:05pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 8:55pm on February 4, 2009, Michelle said…: MySpace Comments

At 3:00pm on February 4, 2009, DebrAngel said…: Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo

At 2:12pm on January 19, 2009, DebrAngel said…: I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo

At 4:21pm on December 29, 2008, DebrAngel said…: Wishing you all the best for the New Year! Love and thoughts, Debra xoxo

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Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Lupus & Fibromyalgia

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!

4/20/75 Birthday
12-04 Anniversary

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

www.myspace.com/alwaysandforevercreations

Favorite pastimes? (You may want to share in GROUPS!! :)

I love to do anything that allows me to be creative. I'm into making jewelry, painting, floral arranging etc... I like to read fictional crime and mystery books whenever I need to clear my head. Love listening to music, but don't like country or rap (at all!). I like to work out- love weight training (hard to do sometimes with the Lupus), like going for walks on the beach by myself.

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

Most Definitely

Would you refer others?

Absolutely!

Most Important, how did you hear about this site?

Myspace Bulletin

Things I Love~

glitter-graphics.com

The Candle

If I could go with you as one thing,
I'd be a candle Lighting the way
So you can handle all of life's struggles
I'd help keep you from stumbling over
Things that are blocking your path to an open door.
Even through strong winds, my light will not falter...:

No matter what, I'm here for you
To cheer you up when you are blue.
Do not stress when times get tough,
If things look down or kind of rough.
Just remember, I'm always here,
In your heart, close and near.
I will help you out in every way,
Happiness and True friendship in your heart and mine will stay.

Don't blow me out, that's one request
But one day you may have to leave me behind
You may no longer need my light to shine.
If that day comes, go on your way
And I know that I will see you again one day.
If one day, I don't appear,
Do not worry, do not fear
I may be gone, but I am always in your heart
The light I gave you did not depart.
It will be there forever and a day
To always bring happiness and light your way.

If your path grows dark just know that I will be there.
I'm really not gone, just not seen,
I would not leave, I'm not that mean.
Only one simple request that I must make
Please, never forget those who lit your way.

So, when you miss me just light a candle and I will be there!

Terri's Photos

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Terri's Blog

The Battle

Today our Yellow Tang died. Just as the the Kline Butterfly did a couple days ago, and the Anthias just over a week ago. I am distraught. A nasty disease called Ich wiped them all out one by one. Yes, they are just fish, but at the same time we were battling our illnesses together. They lost their battle- so where does that leave me? Upset by the loss of my battle companion today, I left the house in tears to go seek solace at the craft store- the one place that can always cheer me up. I get the… Continue

Posted on November 18, 2007 at 5:46pm — 4 Comments

Bummed out!

I thought the worst of the flare was over last week. I started feeling quite a bit better and was even able to get out of the house and get some things done, even got around to finally decorating the house for fall. Went grocery shopping with the hubby on Thursday night and came home feeling like I just got hit by a truck. Started getting sick again with the flare, itchy rash all around my eyes, very tired, extremely bad back pain... I thought I was getting better, but apparently not, so I'm pre… Continue

Posted on November 13, 2007 at 2:02pm — 2 Comments

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Forum

THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.