BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Shelia
  • 49, Female
  • Cincinnati
  • United States
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Re-training for a job

Replied Aug. 25, 2008

Please watch this video if you take Rituxan/ Very dangerous drug

Replied Aug. 25, 2008

Please watch this video if you take Rituxan/ Very dangerous drug
2 Replies

Started this discussion. Last reply by Shelia Aug. 25, 2008.

 

Shelia's Page

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Jodi L. Dodd joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
November 24
joy joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
November 13
Darla Easley joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
August 16
Janette joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
July 13
Sunshine joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
May 17
Mary joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
May 16
Angela D Ramsey joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
April 16
Christina Knighton joined Shelia's group
Lonely Hearts Club
For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you feel, your fears, vent, give advice on how you cope.
April 7

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
Yes - I have two forms of lupus. SLE and Lupus Panniculitis
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
10/09/1960
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
www.myspace.com/nahanie
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
Dying alone....basically being alone until I die. I never had this fear before all of this happened to me, but it hit me like a ton of bricks when I was going through all of this alone. I have no family here, and really have no friends to speak of, I am basically a loner.
I had always hoped I would find someone special to be in my life, but that hasn't happened, I was so up set that I had no one to help me, to support me to just be there. I have never felt so alone in my life as I did then and do now. I fear I will end up being the old lady with all the cats in the windows that kids make fun of when walking home from school, all though I don't have any now but have been seriously thinking about getting one for companionship.
Favorite pastimes? (You may want to share in GROUPS!! :)
Listening to Jazz, Reading, Going to parks and taking a picnic lunch, going to bookstores to get hot chocolate and cheesecake and check out all the new books, going to art gallery's, museums, arts festivals, jazz and blues festivals, out door concerts.
Horse back riding when I can find a place to ride.
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
Yes
Would you refer others?
Yes
Most Important, how did you hear about this site?
I did a search for Lupus Comments and it came up under that.

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At 10:11am on May 8, 2009, DebrAngel said…
Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

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Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'
At 10:58am on April 16, 2009, DebrAngel said…
Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

Color changing Rose Blue Rose
At 2:51pm on March 18, 2009, DebrAngel said…
I know the St. Patrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

St. Patrick's Day Myspace Comments
St. Patrick's Day Myspace Comments
At 3:01pm on February 14, 2009, DebrAngel said…
Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 2:55pm on February 4, 2009, DebrAngel said…
Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo
Lifes' journey
At 2:08pm on January 19, 2009, DebrAngel said…
I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo
Serenity
At 4:17pm on December 29, 2008, DebrAngel said…
Wishing you all the best for the New Year! Love and thoughts, Debra xoxo
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Hugs
At 1:35pm on December 13, 2008, DebrAngel said…


Wishing you Love and Peace this Holiday Season!Love, DebrAngel xoxo
At 1:37pm on December 11, 2008, DebrAngel said…
Hi, wishing you all the best for you and your loved ones this Holiday Season! Take care and God bless! Love, DebrAngel xoxo

Wizemen xmas card






At 3:05pm on December 6, 2008, DebrAngel said…
Hi, Just a note to wish you a weekend filled with Love and Happiness! Take care and God Bless you and yours, Love and Hugs, DebrAngel xoxo

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