LUPUS/Fibromyalgia and more: Support for all
Renae's Discussions
Discovery Health show on Fibro
Replied Jun. 1, 2008
Renae's Groups
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Finding Healing!!
39 members
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Great website for Fibrom…
78 members
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mommies with lupus
55 members
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Bath & Beauty for Lupies…
29 members
Renae's Page
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- Lupus, Fibro, APS, MS, IBS, Degenative Disc Disease, High blood pressure, am currently being tested for diabetes.
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- Birthday is Aug 30 1968
kevin & I Anniversary is June 17th
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- www.welcometofibromyalgiaonline.com
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Something happeneing to me, before my kids are adults.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- Computer, spending time with my kids. I have a web site with tons of info about fibro www.welcometofibromyalgiaonline.com
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Wonderful site, very friendly People
- Would you refer others?
- I already have, I posted the link on my Fibromyalgia Web site, www.welcometofibromyalgiaonline.com
- Most Important, how did you hear about this site?
- A link was posted on the AOL lupus board
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ANYBODY LIVING IN FLORIDA?? 7 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 15 hours ago.
Lymphoma, or just the lupus??? 23 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies Dec 17.
THE SPOON THEORY 39 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.
Hello Everyone 6 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.
Plaquenil/Memory 3 Replies
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…
Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…
Started by Amy Jill in MEDICATIONS Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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glitter-graphics.com Renae, Good Afternoon !! Dropping-by 2 say, I hope U ENJOY your Weekend & Holiday, on Mon. !! I, would really like 2 talk w/ U, about our Degeneration !! I, 2 was a Nurse, & was injured @ my job. It's just been "down-hill" ever since !! But, Hey...this is supposed 2 B RELAXING, 4 U 2 ENJOY !! TC, hope 2 talk w/ U,SOON !! Luv,Jenny (gramma) XOXOXO
There is lots of info there and a chatroom. Hope you will check
it out and join and Welcome to Butterflies
http://www.fibrotalk.com/
Sharon
SUPERFLYCHICKEN.COM
MyHotComments Mary, Hope U have a GREAT - PEACEFULL, Mommys' DAY !! Blessings 4 U & your Family !! Luv, Jenny (gramma) XOXOXO
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HUGS~Butterfly Kimberly (BK)
Free Comments & Graphics
Welcome, to Butterflies Among Us! I am sure you will find this site very informative. You will also find all the support in the world here! Please feel free to ask any questions. Please visit the FORUM to find some answers to questions already asked, or post your own question or discussion. You are sure to get feedback! Everyone is so friendly around here, and it’s a fun, easy going place to be. To share stories, make life-long friendships, vent, laugh, cry, support, etc. We are all in this together to get AWARENESS OUT THERE to help fight illness(es), to find better treatments, even better cures! Hugs, xoxoxox ~Butterfly Kimberly (BK)
P.S. I saw that you commented back to another member here on your page. Some people may not know that this was done. It is usually better to use "comment back" and that way they will get the comment on their own home page. :) Just wanted to give you a heads up!
Blessings,
Renae
SUPERFLYCHICKEN.COM Renae, I'm SO Glad U joined !! U, will find alot of REALLY Nice & Caring ppl. here, & alot of GREAT info., 2 !! I'm a Med./Ret. Nurse, also !! Struck, w/ this Disease + other conditions !! It's SO NICE, 2 know WE R NOT ALONE !! Hope U have a BEAUTIFUL DAY!! Gods Blessings, Luv, Jenny (gramma) XOXOXO
http://www.myspace.com/ihavelupusandfibro
http://www.myspace.com/angelsareabreatheaway
HOPE YOU HAVE A GREAT BLESSED WEEK..HUGS AND SMILES TO YOU, LUVS CHRISTIE