LUPUS/Fibromyalgia and more: Support for all

Raquel Givens-Jones Female Grand Prairie, TX United States: Share

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February 23

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February 23

Raquel Givens-Jones is now friends with Butterfly Kimberly and Lissa Ann

February 8

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At 10:30pm on May 9, 2009, Sharon (Texashen) said…: Dogs MySpace Comments Just a hello from Brenham, Texas!!!

At 3:58pm on February 28, 2009, Raquel Givens-Jones said…: Hey this is Raq! I hope you're feeling well. I bet the weather in Florida will be much better for you except for the time of the year when it rains. But at least you dont have to be cold. I have Raynard's too and it is so irritating. I also had an iron infusion this week and could not stop throwing up and coming from the other end. It totally caught me by surprise and off guard. I havent had solid food since Tuesday and have no desire to eat any thing. You dont look your age and you are beautiful. I'm not doing that anymore. I dont care how much iron I am lacking. I threw all up anyway.

At 8:01am on February 28, 2009, Jennifer Osborne said…: Hey Raquel.....yah I have good days and bad days. Back on the dreaded Prednisone again....but what can you do? I hope you are doing well too. Love your pics....so cute. I haven't been back to Dallas in about 4 years now....custody battle with ex. I like to visit but wouldn't want to live there again. It has just gotten so big. And that 5 decker highway ....oh no...i was scared to death of that thing. My mom lives in Little Elm outside of Dallas and my brothers live there but it is so busy. I like living out in the country here ...slow paced. But we are moving to Florida asap. The cold weather here is a killer on me. My Raynauds is awful. I just take it one day at a time. That is all you can do....really. I hope you have a great pain free weekend. ttyl.

At 2:12am on February 24, 2009, Raquel Givens-Jones said…: Well Tarsha after reading what u sent me. Yes we have a lot in common. I'm not single and it's still hard for me. My husband and I have to stay with my mother. I perfer her to stay with me during hospital visits or just being there to take care of me. It is just as much stress on them as me trying to take care of me and my kids. I have a good family support system too. A village is really raising my children. My sister and her fiance helps out too. I can't work so my husband has to work that much harder. I appreciate the small things after this experience. My kids dont know that we dont live like normal people. When I had my second son he spent 6 weeks in the hospital because I had him at 31 weeks. When he got out I got food poison eating at Olive Garden. I couldnt shake it and by the time I went to the emergency room I was in a full flare, kidneys failing and the whole 9. I spent 2 months in the hospital but God spared my life. Between my mother and husband they were raising my new born. I couldnt take care of him for the first year of his life. He was born on March 1st and I was in the hospital on his first birthday. He will be 2 on Sunday and he already knows who Chucky Cheese is so thats where we will be. Please dont take this as complaining but I always feel like my kids are being cheated. I dont know what I would do without my mom,

Holla Bac, Raq

At 8:59pm on February 23, 2009, Tarsha said…: I look forward to getting to know you much better also. It is difficult being a single mother with lupus. My son has suffered because I have this disease. It has taken away some of his innocence and freedom because he has the burden of worrying about his sick mother. I am often in the hospital and he is left in the care of my mother. And if you know anything about grandmothers you can guess that he gets his way alot with her. But, I could not do this without my mother's help.

At 1:08pm on February 23, 2009, Lora said…: I am so sorry to hear that u been in a constant flare..I noticed u put some pics on here..is that your son? He is adorable!! How many children do u have? I pray u get to feeling better with non stopping pain free days and nights. Soft hugs, Lora

At 8:58pm on February 21, 2009, Raquel Givens-Jones said…: Hi Lissa Ann I will keep you in my prayers. I have been fighting flares for since the New year. I see I am not alone and we share a lot in common just from reading your page.

At 3:21pm on February 20, 2009, Lissa Ann said…: Myspace Graphics

At 7:06pm on February 16, 2009, MRS.YANKSTER said…: I LOVE THIS I THINK IT IS FUNNY

LOVE MRS,YANKSTER

At 8:29pm on January 20, 2009, Butterfly Kimberly said…: Hello Raquel, we are very happy to have you here with us!

Welcome, to Butterflies Among Us! I am sure you will find this site very informative. You will also find all the support in the world here! Please feel free to ask any questions. Please visit the FORUM to find some answers to questions already asked, or post your own question or discussion. You are sure to get feedback! Everyone is so friendly around here, and it’s a fun, easy going place to be. To share stories, make life-long friendships, vent, laugh, cry, support, etc. We are all in this together to get AWARENESS OUT THERE to help fight illness(es), to find better treatments, even better cures! Hugs, xoxoxox ~Butterfly Kimberly (BK)

P.S. FYI ~ I AM LETTING ALL NEW MEMBERS KNOW THIS.....IT IS EASIER TO "COMMENT BACK" TO OTHERS, RATHER THAN LEAVING A COMMENT ON YOUR "OWN" PAGE, AS THEY MAY NOT SEE IT WHEN THEY DO RETURN TO YOUR PAGE. AND SOMETIMES IF YOU GET A LOT OF COMMENTS, IT MAY NOT SHOW ON THIS PAGE, AND YOU'LL HAVE A SECOND PAGE OF COMMENTS TOO =)

Also, when choosing what emails you want and don't want to receive from this website, please make sure to have a check in the box to receive any mass distributed emails to the entire network, in case I need to inform everyone of something going on with the site! I'd appreciate it, thanks!

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Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

I was diagnosed with Lupus Nephritis in July 2005. I have had kidney failure three times. I suffer with severe anemia, problems with my white blood count, and Osteoporosis in my hips and back.

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!

My birthday is 7-31-75. I am all Leo! My wedding anniversary 5-22-04. I picked that day to get married because it is the day before my grandmother's birthday. My grandmother passed away in 1997.

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

I am truly fearless because I have faced death so many times. What people fear the most is bound to take over or happen. The Lord is our light and our salvation. Of whom shall we fear. The Lord is the stength of our salvation of whom shall we be afraid of? Psalms 27

Favorite pastimes? (You may want to share in GROUPS!! :)

I loved the times when either my husband or my friends and I travelled. I miss my social life the most.

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

Yes it is the best Lupus site to belong to.

Would you refer others?

Yes

Most Important, how did you hear about this site?

I heard about this site through Kimberly from Daily Strength website.

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