BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Melinda Tucker
  • Female
  • Madison,Alabama
  • United States
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ROLL TIDE ROLL!!!!!!!!!!!!!!!!!!!

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checking in my the site and everyone :)
September 22
Melinda Tucker updated their profile
June 30
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June 30
Melinda Tucker added 8 photos
June 30
Melinda Tucker added a discussion
Well had my lad test done and my thyroid was extremely low.. esp my t3 free..anyone else have problems with this with Lupus or sjogrens?I know the synthroid they put me on has given me alot of energy and made me feel alot better..even in the lupus...
April 18
Melinda Tucker added a discussion
I live in North Alabama ..anyone live near me or know of support groups near me :) Hugs Mel
April 5
But I LOOK Good! and Melinda Tucker are now friends
March 23
A place to come and remember our friends/family (butterflies) that have passed. This is a memorial Group.....
March 20

Comment Wall (142 comments)

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At 10:06am on May 8, 2009, DebrAngel said…
Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

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Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'
At 10:52am on April 16, 2009, DebrAngel said…
Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

Color changing Rose Blue Rose
At 2:45pm on March 18, 2009, DebrAngel said…
I know the St. Patrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

St. Patrick's Day Myspace Comments
St. Patrick's Day Myspace Comments
At 2:58pm on February 14, 2009, DebrAngel said…
Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 2:47pm on February 4, 2009, DebrAngel said…
Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo
Lifes' journey
At 2:03pm on January 19, 2009, DebrAngel said…
I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo
Serenity
At 4:14pm on December 29, 2008, DebrAngel said…
Wishing you all the best for the New Year! Love and thoughts, Debra xoxo
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Hugs
At 2:32pm on December 29, 2008, Myra said…
Melinda-
Do you get cold? Try to get some heated Chem pads that pitchers use to warm up their hands in cold weather. You can put them in your socks ,too. Do you jhave a dog or cat? I have Sophie. I adopted her from the pound..
At 9:22am on December 22, 2008, Myra said…
Melinda- My rheumy has no personality,either. However- he is SMART. You're rheumy is probably wanting to make the proper diagnosis so he can best decide exactly what and how much you need. Look me up sometime- Good Luck- Myra
At 7:13pm on December 15, 2008, Ginner said…

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I have SLE,Fibromyalgia,CREST,and now Im getting checked for polymyositis..I have several other autoimmune disorders as well..I take b12 shots every other week for pernicous anemia..(inherited).I am currently still working but I dont know how much longer I can continue..I have a new Dr. to see next month at UAB ..I hope it goes well and he can help me :)
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
My birthday is after Christmas,,,Ill be glad to have another one.. i have quit adding the years and just started celebrating being alive:)..My anniversary is in June ..Ill be married to my hubby for 11 years this June..and we have been together for 12 years,,He is a special man..
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
mellyindixie/myspace.com
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
thatmy children will suffer with this disease.. fears that I wont be able work anymore( more like reality now)..Im afraid of going blind,being disabled more than I am already..fear of not being able to help my family like I should
Favorite pastimes? (You may want to share in GROUPS!! :)
Spending time with my family...shopping with my girls....playing with my dogs.. spending time with my husband..traveling
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
Yes very much so
Would you refer others?
of course
Most Important, how did you hear about this site?
On a group on MySpace

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Melinda Tucker's Blog

Melinda Tucker

VEINS

Okay.. who has trouble with IVs when they are in the hospital..My veins used to be excellent andeasy to get.. but everyone they did the other day would blow as soon as the medicine started going in.. i have 7 blue marks on my arms.The next time im gonna have a PICC line.. what do you all think? And who has trouble with intestinal blockages and is it normal with Lupus and Sjogrens...SADNESS... driving me crazy...hugs bye

Posted on March 15, 2009 at 3:47pm —

Melinda Tucker

today at the new rhuemi

Well the new Rhuemi ..told me to go on disability today.. He said all of my pain is related to Fibromyalgia..not Lupus and there is nothing i can take that will make it better.. that i needed to get off my feet and rest..he said that If I didnt do that I would only get worse...I was disapointed that he didnt give me any preventative meds.. he said my Lupus was in control and I didnt need to go on any other meds.. :/... I dont think i got a very good one at Bhm.. I think my Old Rhuemi in Hunstvil… Continue

Posted on February 23, 2009 at 8:47pm — 1 Comment

Melinda Tucker

Hey Everybody..just a note to tell you the new things I have found out...

number one is that I have Sjogrens syndrome..Lovely little thing..keeps my eyes dryyyyyy and my mouth dry and makes my salivary glands swelll which inturn makes my ears hurt...ANd..now my lungs are getting bad.. hard to breathe short of breath.. but im still working.. AND I have achilles tendonitis.(in both heels).which scares me cause I think one day it may break while I am driving...AND my bones in my feet are starting to deform..and my hands have been worse.. I have gotten my steroids AGAIN..… Continue

Posted on February 15, 2009 at 6:00pm — 5 Comments

Melinda Tucker

Flare on my Birthday..

Well it wouldve been nice not to be sick on my bday..but to no avail here i am hurting with pluerisy...My right side hurts continuously.. right under my arm and above my liver.. anyone here ever have that?.. But the good lord has given me another day ..and my kidneys are good.. so I am blessed :) ..I am staying home from work today and taking it easy..Fred is taking us out tonight for my bday...a great present would be not to have to work anymore but thats not gonna happen for a while ...I love… Continue

Posted on December 29, 2008 at 10:33am —

Melinda Tucker

A new Flare

Well..Im either in new Flare or the last one didnt go away just got worse.. ugggg.. i have sores all in my mouth( I feel like I have drank liquid fire).. I have sweats my head and neck are killing me and i have noenergy at all.. I did go shopping with Rhianna tonight and her friend Kaitlyn..I had to finish my Christmas list.. sad cause i didnt :(..anyways Im sleeping in tomorrow>>>then Im making brunswick stew and wrapping presents..I think Ill make a pound cake if im up to it..I have b… Continue

Posted on December 20, 2008 at 12:53am —

 
 

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