LUPUS/Fibromyalgia and more: Support for all
Music
MANDY's Discussions
MANDY's Page
Gifts Received
MANDY has not received any gifts yet
Profile Information
- Where did you grow up, and where is your home now?
- NY
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- FIBROMYALGIA, CHRONIC FATIGUE, DEPRESSION , UNCONTROLLABLE MUSCLE SPASMS
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- PLZ ADD MYSPACE PAGE. I JUST MADE IT AND ITS FOR ANYONE WITH FIBROMYALGIA
http://www.myspace.com/fibrosupport
SINCE I JUST MADE IT , IT MIGHT NOT COME UP WHEN U SEARCH BUT U CAN DEF FIND IT BY MY ID# 481411193
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- I THINK IT COULD BE HELPFUL
- Would you refer others?
- DEFINITELY
- Most Important, how did you hear about this site?
- JUST BROWSING FOR FIBRO SUPPORT GROUPS
About
Badge
Forum
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
My Hysterectomy and HRT 1 Reply
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr Nov 22.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Fibromyalgia & Disability Benefits? 8 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
anyone with fibro living inyorkshire England
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME? Nov 13.
New Here 1 Reply
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.
Lymphoma, or just the lupus??? 21 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.
ANYBODY LIVING IN FLORIDA?? 3 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
The Cancer Cure Video that circled the globe in 31 minutes
The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
Scared about Cytoxan 2 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.
Finding a Cure
Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...
Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.
Quantum Physicist reveals how to master “The Secret”!!download free e-book
http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...
Tagged: http://www.believeandmanife...
Started by Sandy Medine in AWARENESS WORK Oct 19.
New Body Templates Coming Soon!
-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...
Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body
Started by Sandy Medine in MISCELLANEOUS Oct 18.
In Severe Pain 4 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.
Has anybody been diagnosed with lupus with a negative ANA? 32 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.
© 2009 Created by Butterfly Kimberly on Ning. Create a Ning Network!
Comment Wall (3 comments)
You need to be a member of BUTTERFLIES AMONG US to add comments!
Join this Ning Network
MAKE YOURSELF COMFORTABLE AROUND HERE. I AM STILL YOU WILL BE ABLE TO FIND SOME GOOD INFORMATION HERE AND MEET ALOT OF INTERESTING PEOPLE HERE. YOU ARE WELCOME TO VISIT ME AS OFTEN AS YOU LIKE. I AM HERE FOR YOU WHEN YOU NEED SOMEONE TO TAKE WITH.
Welcome MySpace Comments
I'm very happy that you joined this wonderful group of people here that support and encourage each other in many different ways with the ultimate goal of finding different ways in healing the body and mind.
While your browsing on this site, be sure to go to your settings and check the box to "Receive Broadcast Messages to this Group" in your email settings.
Again, Welcome and glad you joined us, Dad Butterfly