BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Lissa Ann
  • 29, Female
  • Seaside, CA
  • United States
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feeling blue......

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A place to share your devotion for Christ ! Prayers and Prayer request.
November 23
Teresa and Lissa Ann are now friends
June 15
Lissa Ann added a blog post
well lets see a lot has happened since the last time i ive blogged ive been back and forth to stanford a bunch of times for tests and med changes and finally one of my last visits was with a neurologist he told me he was 99% sure my lupus has deci...
June 2
Lissa Ann and ginny are now friends
March 30
Lissa Ann added a blog post
so its been awhile since my last blog.... alot has happened where to start....well i have a seen several docs pretty much every specialist in town......so now i have had 4 MRIs and just recently had a brain scan so now Im glowing...... they have f...
March 25
lostdog is attending Lissa Ann's event
lissa ann at monterey california
March 26, 2009 from 1am to 11pm
my 29th birthday
March 23
Lissa Ann updated their profile
January 29
Lissa Ann added a blog post
I want to thank everyone for there support and kind words it helps me alot and I hope you all know I am here for you also...... this past week I've been trying my hardest to stay positive and to take the help that I need... my mom has joined this ...
January 28
Lissa Ann and compassion_luv are now friends
January 28

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
I have S.L.E, Transverse Myelitis and Fibromyalgia, anxiety and panic disorder, and P.T.S.D
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
march 26 1980 is my Birthday
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www.myspace.com/magicshears
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
too many at this point to list.......


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Favorite pastimes? (You may want to share in GROUPS!! :)
I really don't have many I like to crochet when my hands aren't killing me. I am a cosmetologist when I'm well I love doing hair its my passion but it's hard to do hair when you can't stand so I am bummed......
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes
Would you refer others?
yes
Most Important, how did you hear about this site?
googled it

Lissa Ann's Blog

Lissa Ann

cheese and rice.....

well lets see a lot has happened since the last time i ive blogged ive been back and forth to stanford a bunch of times for tests and med changes and finally one of my last visits was with a neurologist he told me he was 99% sure my lupus has decided to attack my nervous system..... i am also showing signs of Parkinson's and multiple sclerosis not to mention my good old friend transverse myelitis the lesion in my brain is 5mm as of now i have tremors and i cant concentrate or remember things to… Continue

Posted on June 2, 2009 at 6:50pm —

Lissa Ann

holy poo

so its been awhile since my last blog.... alot has happened where to start....well i have a seen several docs pretty much every specialist in town......so now i have had 4 MRIs and just recently had a brain scan so now Im glowing...... they have found a lesion in my brain stem so now i have to wait to go to stanford for more tests and hopefully an answer on how to get rid of it... i now have transverse myelitis again last time it had me wheelchair bound for 2 years.......this round seems more se… Continue

Posted on March 25, 2009 at 1:06am —

Lissa Ann

update 2

so i have seen my new neurologist he seems to be really good so far..... i lot of blood work i think im all tapped out..... i have started physical therapy it hurts like you know what ....... i have an MRI coming up ..... has any one have problems with there liver? cause i seem to be having that problem i have more tests for that one....... I hope everyone is doing ok and all of you are always on my mind and in my prayers....... i ll blog again soon.....

Posted on February 18, 2009 at 10:36pm —

Lissa Ann

update

so on the the 7th I went to my appointment with one of my docs she filled out my forms for my permeant handicap placard and she ordered all my blood work and she gave me a referral to a rheumatologist and a referral to a pain management clinic ....on the 9th i went and had my blood work done and today they called me and told me i needed to come in as soon as possible for my results i asked them was there something wrong with my labs and they said i needed to come in and see the doc and she would… Continue

Posted on February 11, 2009 at 9:20pm —

Lissa Ann

frustrated....part 2

so I woke up this morning and my pain level of pain is over a 10 .....I had a scheduled appointment with my shrink at 1:45 I called him and asked if i can change my appointment till next tuesday because i could barley move ...he gave me the third degree....... he made me feel alot worse.....You know it would be nice if drs in general would just stop and listen and think before they speak...I explained to my shrink I have an appointment with a doctor for my lupus and i needed to see her for pain… Continue

Posted on February 3, 2009 at 4:05pm — 1 Comment

Comment Wall (46 comments)

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At 11:08pm on June 5, 2009, ,Martha said…
Yuwie/MySpace Graphics
Yuwie&MySpace Comments at welovecomments.com
At 4:01am on May 26, 2009, Sunshine said…
Hi Lissa, I will love for you to meet me here, its a great place to be to have fun. there is lots of love, joy, and a new beginning. Just click on the friends on the badge and it will take you there to meet me and other happy friends waiting for you. I see you when you get there.

Visit JOY IN YOUR LIFE
At 6:39pm on April 9, 2009, Jennifer Osborne said…
just wanted to say hi. i haven't been on in a while. feeling like crap ALL the time. just one thing after another it seems. i like to crochet too when my hands allow me too which i hate because i have been doing it for the last 33 years. i learned from a friend of my mom's when i was 9. i just learned how to knit at christmas from a friend of mine. always wanted to be able to do both but my hands just let me do it as much as i would like. i am flaring too ....i can't get past it. my family is trying to understand but i am newly diagnosed ...just a few months ago...tho' i have been sick for years! i hope you are doing good and pain free right now! i would love to hear from you. take care!
At 9:11pm on April 1, 2009, krista said…


Myspace Graphics- At Myspacejunks.com

At 1:22am on March 25, 2009, krista said…


Myspace Graphics- At Myspacejunks.com

At 9:02pm on March 19, 2009, krista said…


Myspace Graphics- At Myspacejunks.com

At 12:30am on March 19, 2009, niki said…

Thinking Of You Comments

Spicecomments.com - Thinking Of You Comments

At 4:49pm on March 18, 2009, Cristina_V said…

glitter-graphics.com
At 11:02am on March 7, 2009, Kimber said…
birthday Pictures, Images and Photos
At 11:03am on March 1, 2009, Kimber said…
Have a Great Week Pictures, Images and Photos
 
 

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