BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Lisa Copen
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At 1:00am on November 11, 2008, Becky said…
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At 10:47pm on July 28, 2008, Becky said…
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At 11:06am on July 21, 2008, Becky said…
Hi Lisa:
I hope you have been doing good!
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Take Care! Hugs! Becky
At 10:32pm on June 29, 2008, ellen said…

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At 1:11am on June 28, 2008, ellen said…

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At 8:05pm on June 23, 2008, ellen said…

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Hope your week goes well, and happiness seeks you out!
Your friend,
Ellen
At 2:25am on June 20, 2008, ellen said…

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May you have a glorious, blessed day!
xoxo,
Ellen
At 6:13am on June 15, 2008, ellen said…

At 10:45am on June 14, 2008, Becky said…
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At 1:21pm on May 31, 2008, Becky said…
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MyHotComments I hope you are having a nice pain-free weekend! Take Care! Becky

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
Rheumatoid arthritis, fibromyalgia, have had lupus reaction (face doubled in size, lupus rash) wiht Enbrel (RA med that can induce lupus), but tests came back negative.
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
www.restministries.org
Favorite pastimes? (You may want to share in GROUPS!! :)
chronic illness ministry is my passion! writing, speaking, etc.
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
yes!
Would you refer others?
yes!
Most Important, how did you hear about this site?
wanting to connect with others, especially moms with illness

Lisa Copen's Blog

Lisa Copen

12 Ways Nurses Make a Difference for Chronically Ill Patients

This article can be reprinted without asking specific permission. Just reprint "as is" and leave the resource box at the bottom. I'd love to know if you used it on your blog or newsletter. Please contact me. Thanks, Lisa

12 Ways Nurses Make a Difference for Chronically Ill Patients
by Lisa Copen

The medical world could not function without nurses. It's no secret to any of us who has had a doctor's appointmen… Continue

Posted on September 8, 2009 at 10:30am —

Lisa Copen

Managing Your Chronic Illness By Having the Imagination of a Child

This article can be reprinted without asking specific permission. Just reprint "as is" and leave the resource box at the bottom. I'd love to know if you used it on your blog or newsletter. Please contact me. Thanks, Lisa


Managing Your Chronic Illness By Having the Imagination of a Child

by Lisa Copen

Have you ever wanted to pretend that you were living a different life than you are? If so, I recommend that… Continue

Posted on September 5, 2009 at 6:07pm —

Lisa Copen

Seeking Submissions this Week for Medical Blog Carnival on Invisible Illness

We are honored to be hosting Grand Round 8/18/09, the largest medical blog carnival online.

I am looking for any blog topics related to living with an invisible illness, treating invisible illnesses, having a family member with one, caregiving, etc. Posts can be casual from a patient perspective, or mo… Continue

Posted on August 12, 2009 at 2:30pm —

Lisa Copen

A BBQ Party: How to Clean, Plan and Still Have Fun

Strawberry Ice Cream with Strawberries
Continue

Posted on July 18, 2009 at 9:30am —

Lisa Copen

5 Avantages of Having a Hidden Disability That We Forget About

So often we only see the drawbacks to living with a chronic illness that is not visible. But as my own illness, rheumatoid arthritis, progresses, I can see the benefits of being able to hide your illness or choose to reveal it based on the circumstances or your own desires.

I rarely see the changes in my own body, such as my hands or feet deformities, unless I see a reflection in the mirror, for example when I am trying to clothes in a dressing room at a store. I've heard children ask their mom… Continue

Posted on July 17, 2009 at 11:36pm —

 
 

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Discussion Forum

Butterfly Kimberly

13 DAYS TODAY! 3 Replies

WHEN I WENT IN FOR THE SURGERY, I DECIDED THAT SHOULD BE THE TIME TO TRY TO QUIT SINCE I WOULDN'T BE ABLE TO GO AND SMOKE ANYWHERE FOR A FEW DAYS. SO, TODAY IS DAY 13! AND I'M DYING!!!!! HAHA...ACTUA…

Started by Butterfly Kimberly. Last reply by Carla Mar. 1, 2008.

Carla

Well, this isnt work

Every day I get up with the intention of not smoking. And it seems like everyday some new crisis pops up and the first thing I want is a cigarette, so now I'm smoking more than ever! One of my many d…

Started by Carla Jan. 26, 2008.

Carla

Well, here I am... 2 Replies

I'll cop to it. I have COPD/asthma and I smoke. Yes, the word dumbass comes right into your head doesn't it? LOL I've smoked since I was 11 or 12. I've tried to quit many times. Have done patches bef…

Started by Carla. Last reply by Shelia Jan. 16, 2008.

DebrAngel

Stopping?

Hi all, I have stopped smoking so many times I should be a pro! It is not the quiting, it is staying that way! I guess when the time comes, it will happen, until then, I will just keep praying for al…

Started by DebrAngel Jan. 14, 2008.

HEATHER

it's hard to do. 3 Replies

I was reading that some of you want to stop smoking. So do I. I started smoking at 12. I am now 35. I need to stop smoking. I am afraid that I will gain more weight, but am convinced if/when I quit,…

Started by HEATHER. Last reply by Kim Dec. 26, 2007.

HEATHER

Chantix

I found this on http://purplemedicalblog.blogspot.com/2007/11/warn FDA ISSUES COMMUNICATION ALERT ABOUT CHANTIX: STOP SMOKING MEDICINE POSSIBLE ERRATIC BEHAVIOR -------------------------------------…

Started by HEATHER Dec. 14, 2007.

HEATHER

another web site 2 Replies

http://www.americanheart.org/presenter.jhtml?ident has a link to how to stop smoking and keep weight gain down. For anyone intrested.

Started by HEATHER. Last reply by HEATHER Dec. 14, 2007.

 

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