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LUPUS/Fibromyalgia and more: Support for all

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Psoriasis, Lupus, Rheumatoid Arthritis Share One Gene Rheumatoid Arthritis Slideshow Medical Author: Frederick Hecht, M.D. Medical Editor: Barbara Hecht, Ph.D. Nov. 11, 2000 -- Changes in one gene have been discovered that are shared by three common…
August 16
A place to come and remember our friends/family (butterflies) that have passed. This is a memorial Group.....
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A place to share your devotion for Christ ! Prayers and Prayer request.
February 18
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February 18

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JUST A WISH FOR A PAIN FREE AND WONDERFUL CHRISTMAS TO YOU AND YOUR FAMILY...
LOVE HUGS AND BLESSINGS BONNIE


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Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
Yes.
**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
I am very glad to be alive! I will celebrate with all of you and that is almost more than I can imagine in my life!!
Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
myspace.com/mrslauries or you can look at my blog: www.mrslaurie.blogspot.com
QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
pain





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quilting, hovering on the computer, I love youtube, FORA.tv, hulu.com --two great online movie and tv sites
Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
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Would you refer others?
I have many times
Most Important, how did you hear about this site?
From my friend Kimberly

Just Stuff. . . .

I am just beginning to see the end of this flare. It has worn me out!

I had an incredible reaction to milk. My skin looked like it was sunburned (pain, swelling, external local fevers).

They are continuing to do tests.

I will let you all know when I find something out!

Please know that all of your comments and encouragement have meant the world to me!

Laurie

Sorry for not being on here much the last month. I am having the worst flare of my life!
I currently am having some strange stomach issue. The pain is so severe that it wakes me from my sleep.

In the last couple of weeks the doctor placed me on prednisone 40 mg and started cutting it when I started having a flare within a flare (never had that happen before) They put the prednisone from 20 mg back to 40 mg twice a day.

It took forever to get in to the dermatologist (I still don't understand how he is going to help the stomach pain I am having) And neither the internal medicine or the derm doc want me to see the rhumetolgist (whom I think can help me most)
I am frustrated and tired because I am not sleeping much
And disappointed that I am feeling like this again
..Update..

No ulcers...but there are sores in my stomach.
No more prednisone (for the moment)
I have been throwing up buckets of fluid that they think is coming from my lungs
I have been sleeping upright for 2.5 months
I am tired
I still have the pain in my side.

Any of you have any feedback for me on this...any experience?


Laurie


Believe it or not---I am still wrestling with this! Two docotors are now arguing whether I have Lupus at all. I swear I have never been so sick!

Two weeks ago they cut a pretty good sized hole in to my arm for a biopsy... am still wating for the results.

Pray for me
Laurie

Laurie's Blog

Laurie

http://www.medicinenet.com/script/main/art.asp?articlekey=25217

Psoriasis, Lupus, Rheumatoid Arthritis Share One Gene
Rheumatoid Arthritis Slideshow Medical Author: Frederick Hecht, M.D.
Medical Editor: Barbara Hecht, Ph.D.
Nov. 11, 2000 -- Changes in one gene have been discovered that are shared by three common autoimmune diseases -- the skin condition psoriasis as well as systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA). The genetic changes involve a gene called Runx-1.

What is Runx-1?

Runx-1 is a protein that acts as a transcription fact… Continue

Posted on August 16, 2009 at 2:03am —

 
 

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colsbutterflies

ANYBODY LIVING IN FLORIDA?? 7 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 12 hours ago.

julie

Lymphoma, or just the lupus??? 23 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.

Butterfly Kimberly

THE SPOON THEORY 39 Replies

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Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.

Donna J Farr

Hello Everyone 6 Replies

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Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.

Allison Abrusci

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Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.

Roxanne

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Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Niki

Scared about Cytoxan 3 Replies

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joy

anyone with fibro living inyorkshire England 1 Reply

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Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

Dotti Obert

In Severe Pain 5 Replies

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Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Michelle

My Hysterectomy and HRT 2 Replies

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Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

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Started by Amy Jill in MEDICATIONS Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

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Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

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Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

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Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

 

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