LUPUS/Fibromyalgia and more: Support for all
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- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- SLE/ Lupus Nephritis
Diagnosed in 2000 shortly after birth of third child.
Almost every joint in my body became inflammed within hours of delivery.
Just started cyclophosomide and high dose prednisone for Lupus Nephritis last month......2009 is going to be a tough year!
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- Birthday June 20
Anniversary August 1
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Not being around for my kids, seeing them grow up... or being a burden to them or my husband.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- I love to scrapbook, sew, crochet, bake & garden. Most of my time is spent watching my kids play sports.
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Absolutlely!
- Would you refer others?
- yes
- Most Important, how did you hear about this site?
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Fibromyalgia & Disability Benefits? 8 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle 14 hours ago.
My Hysterectomy and HRT
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS 15 hours ago.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle 16 hours ago.
anyone with fibro living inyorkshire England
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME? 1 day ago.
New Here 1 Reply
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.
Lymphoma, or just the lupus??? 21 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.
ANYBODY LIVING IN FLORIDA?? 3 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
The Cancer Cure Video that circled the globe in 31 minutes
The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
Scared about Cytoxan 2 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.
Finding a Cure
Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...
Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.
Quantum Physicist reveals how to master “The Secret”!!download free e-book
http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...
Tagged: http://www.believeandmanife...
Started by Sandy Medine in AWARENESS WORK Oct 19.
New Body Templates Coming Soon!
-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...
Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body
Started by Sandy Medine in MISCELLANEOUS Oct 18.
In Severe Pain 4 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.
Has anybody been diagnosed with lupus with a negative ANA? 32 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.
Lots of Pain
On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.
Butterfly Kimberly Returning Soon 2 Replies
Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...
Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.
Vigorous debate about health insurance reform 1 Reply
Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...
Tagged: insurance, reform, health, about, debate
Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.
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Hugs,
Kimber
Hope you are have a wonderful day!
Hugs, Therese
Hi Josee, Hi I just wanted to say welcome. You'll find a lot of nice people here, and plus you'll find that the people that are here are willing to answer your questions. I hope you have a nice day and that you'll find it pain free. Talk to you soon. Take care.
Hugs, ~Dotti~
Welcome, to Butterflies Among Us! I am sure you will find this site very informative. You will also find all the support in the world here! Please feel free to ask any questions. Please visit the FORUM to find some answers to questions already asked, or post your own question or discussion. You are sure to get feedback! Everyone is so friendly around here, and it’s a fun, easy going place to be. To share stories, make life-long friendships, vent, laugh, cry, support, etc. We are all in this together to get AWARENESS OUT THERE to help fight illness(es), to find better treatments, even better cures! Hugs, xoxoxox ~Butterfly Kimberly (BK)
P.S. FYI ~ I AM LETTING ALL NEW MEMBERS KNOW THIS.....IT IS EASIER TO "COMMENT BACK" TO OTHERS, RATHER THAN LEAVING A COMMENT ON YOUR "OWN" PAGE, AS THEY MAY NOT SEE IT WHEN THEY DO RETURN TO YOUR PAGE. AND SOMETIMES IF YOU GET A LOT OF COMMENTS, IT MAY NOT SHOW ON THIS PAGE, AND YOU'LL HAVE A SECOND PAGE OF COMMENTS TOO =)
Also, when choosing what emails you want and don't want to receive from this website, please make sure to have a check in the box to receive any mass distributed emails to the entire network, in case I need to inform everyone of something going on with the site! I'd appreciate it, thanks!
Hi Josee,
welcome here !
Lostdog
Welcome MySpace Comments
I'm very happy that you joined this wonderful group of people here that support and encourage each other in many different ways with the ultimate goal of finding different ways in healing the body and mind.
While your browsing on this site, be sure to go to your settings and check the box to "Receive Broadcast Messages to this Group" in your email settings.
Again, Welcome and glad you joined us, Dad Butterfly