LUPUS/Fibromyalgia and more: Support for all

John A "Dad Butterfly" Male Largo, Fl United States: Share

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MEMORY LANE

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Mountian of Hope

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John A "Dad Butterfly"'s Discussions

ANYBODY LIVING IN FLORIDA??

Replied Nov 9

Butterfly Kimberly Returning Soon
2 Replies

Started this discussion. Last reply by Dotti Obert Oct 10.

Butterfly Kimberly taking Methotrexate
8 Replies

Started this discussion. Last reply by Kiara Apr 30.

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John A "Dad Butterfly" updated their profile

23 hours ago

John A "Dad Butterfly" and Shelly Binkley are now friends

on Wednesday

John A "Dad Butterfly" and joy are now friends

November 18

John A "Dad Butterfly" and Catherine Witmer are now friends

November 11

John A "Dad Butterfly" and Donna J Farr are now friends

October 29

John A "Dad Butterfly" and Roxanne are now friends

October 20

John A "Dad Butterfly" added a discussion

Butterfly Kimberly Returning Soon

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is trying to settle in. She should be back here very soo...

October 8

John A "Dad Butterfly" and GoldenLadyNiecy are now friends

September 28

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

myspace.com/janadeau
facebook.com/john.a.nadeau
twitter.com/janadeau

Favorite pastimes? (You may want to share in GROUPS!! :)

Music

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

Yes

Would you refer others?

Definitely

Most Important, how did you hear about this site?

From my daughter (Butterfly Kimberly) who created this site. She was so excited on doing this venture with the hopes of helping others with this terrible disease through prayer, support and encouragement.

A place where others can come together, AS A FAMILY, and share their experiences with the hopes of finding some possible solutions.

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Comment Wall (265 comments)

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At 2:42pm on December 3, 2009, David McDaniel said…: Thank youfor the welcome.
Dave

At 3:29am on December 2, 2009, Shelly Binkley said…: Thank you so much for welcoming me here. It's great to come together like this, I personally have learned more about what I am dealing with through others with the same illnesses/diseases then I have through doctors I have seen through the years.

At 6:35pm on November 18, 2009, joy said…: Hi
Thankyou so much for the welcome, Im looking forward to meeting so many different people on here. thanks again.

At 4:37pm on October 29, 2009, Donna J Farr said…: Hello and Thank You for the welcome. It is nice to have friends:)

At 9:50pm on October 20, 2009, Roxanne said…: Thank you, that's very sweet of you!

At 7:57pm on October 3, 2009, Danielle McNeil said…: THANK YOU VERY MUCH! I FELT SO ALONE THIS MORNING!!

At 10:29am on September 15, 2009, Sara Stevens said…: Thank you for the warm welcome ;-)

At 10:25am on September 11, 2009, Brittney Burke said…: Thank you for the notice! I will for sure do this! can't wait to meet others dealing with Lupus. :)

At 11:33am on September 3, 2009, blueeyedgrl73 (Leslie) said…: thanks for the welcome! :) I missed this site....i had too many other sites going but i wanted to come back here....its a great place :)

At 12:37pm on August 11, 2009, Rudy said…: hello just wanted to say hi and wish you a wonderful week :-) sincerely Rudy Sims

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THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.