LUPUS/Fibromyalgia and more: Support for all

Joey Female Berea, Ohio United States: Share

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Is there a "Lupus Test"
1 Reply

Started this discussion. Last reply by ,Martha Mar 6.

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Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?: Yes, Lupus SLE

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :): losing my family, continually getting worse, passing these diseases on to my girls, and more....

Favorite pastimes? (You may want to share in GROUPS!! :): Reading, sewing, scrap booking, homeschooling my kids, playing with my dog. :)

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?: Yes it is

Would you refer others?: yeah

Most Important, how did you hear about this site?: Jayne on myspace

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Joey's Blog

I haven't been on this site in a while and I haven't blogged in a while either. Sorry guys.

My health update is that whatever it is I have(lupus or RA) is most likely in remission right now. I have noticed some better days and less pain- so that's good. I still struggle with fatigue but that could be because my liver situation is getting worse. I have to go back in to see my Liver Doc and hopefully he won't tell me that I need steroids! I also have an appoint in May with Neuro Doc to discuss th… Continue

Posted on March 19, 2009 at 11:30pm —

NEW SONG!!

Hey I added a new song to my profile that I think is perfect for us Lupies!!

Posted on October 26, 2008 at 12:03am — 1 Comment

Liver Biopsy! :(

I am having my liver biopsied on Wednesday. The Doc is concerned that I have Autoimmune Hepatitis. I hear these biopsies are pretty painful, so keep me in your prayers as I am NOT a fan of more pain!

Thanks.

Posted on January 27, 2008 at 9:44pm — 4 Comments

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At 11:43pm on April 26, 2009, Stacey [Pinkdrgfly] said…

At 11:18pm on April 2, 2009, julie said…: Hi Joey, don't worry about it, I'm not on here as much as i'd like either. I'm hangin' in there. How are you? Hope you are doing well and staying healthy!!! Have a nice weekend!! Julie

At 5:49pm on March 12, 2009, julie said…: Hoping you are doing well!!

MySpace Graphics & MySpace Layouts

At 8:23pm on February 22, 2009, MRS.YANKSTER said…

At 8:47am on February 22, 2009, Kiara said…: hey!!! Hope to get to know you better too!! Yes, I'm still in the hospital; can't wait to get out!
xoxoxoxox, Kia

At 8:29pm on February 21, 2009, Kiara said…: Hi!! I was reading your profile, BTW, I loved it!! uper pretty, and I noticed that you were dx wth autoinmune hep. When you were dx, did you have a positive anti smooth muscle antidodies or ASMA??? I had mine pos and drs are like lost wth all my list of dx!!!maybe you will ease my worries! ty!
hugs,
KIA

At 10:23pm on February 15, 2009, colsbutterflies said…: Hi Joey!! You are truely sweet!! How are you doing?? R u feeling ok? I actually just go out of the hospital. Spent 5 days in there. What I had thought was bronchitis turned out to be a bad case of Pneumonia, and I also came in the hospital, with a staff infection in my blood. I am susposed to start Rituxun infusions, and have good and bad result of this drug! Have you had any experience with any of this yourself?? My biggest problem is am allergic to steriods, so my doc just cant get me in to remission. I badly brused my cartiage & ribs from all the coughig from the Pneumonia, so I am just in yet more pain!!

Thanks-you for the valentines wishes and I hope you had a nice valentines too. Huggs!! Cols

(ALITTLE FUUN/SLIGHTLY DIRTLY HUMOR WE CAN ALL USE, BUT YOU ARE A TRUE FRIEND!! THANK_YOU!!! HUGGS!!)

At 9:34pm on January 23, 2009, Ginner said…: Hi Joey....
Stopping by to say I am thinking of you.
Hugs
gin

At 6:31pm on January 16, 2009, colsbutterflies said…

At 4:56pm on January 14, 2009, Stacey [Pinkdrgfly] said…

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Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

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