LUPUS/Fibromyalgia and more: Support for all

Jaisell El Dorado Hills, CA United States: Share

Blog Posts (2)
Discussions (5)
Events
Groups
Photos
Photo Albums
Videos

Jaisell's Apps

Jaisell's Friends

View All

Jaisell's Discussions

My Book about Lupus is Published!!

Replied Jan 19

View All

Jaisell's Page

Latest Activity

Jaisell and Frances are now friends

February 20

Jaisell and Carolyn Standridge are now friends

February 14

Jaisell added a blog post

Thank You

February 4

Jaisell is now friends with SHY, Shoshie and Lissa Ann

February 4

Comment Wall (14 comments)

You need to be a member of BUTTERFLIES AMONG US to add comments!

Join this Ning Network

At 8:28pm on February 22, 2009, MRS.YANKSTER said…

At 3:20pm on February 20, 2009, Lissa Ann said…: Myspace Graphics

At 7:04pm on February 16, 2009, MRS.YANKSTER said…: I LOVE THIS I THINK IT IS FUNNY

LOVE MRS,YANKSTER

At 6:08am on February 5, 2009, Shoshie said…: sorry it is www.thisisms.com

At 6:08am on February 5, 2009, Shoshie said…: Hi Jaisell,

You probably already know of these links but let me give them to you anyway just in case.

www.msworld.org

www.thisisms.org

www.msif.org

www.msfacts.org

Meanwhile the pic on my page is one of me holding my nephew Marcus. I do not have any children.
I love being an Auntie though.
Hugs
Shosh

At 6:34am on February 4, 2009, Shoshie said…: Hi,
My name is Shoshie. I have Multiple Sclerosis. I just wanted to stop by and say hello.
Waving at you from Australia.
Shoshana

At 6:33am on February 4, 2009, Shoshie said…: Free Comments

At 4:22am on February 4, 2009, SHY said…: Keep your Faith,

At 5:20pm on February 3, 2009, Lissa Ann said…: Myspace Graphics

just stopping by to say hi and to see how you are doing

At 10:49pm on January 26, 2009, Kimber said…: Free Comments and Graphics

No comments yet!

View All Comments

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Would you refer others?

yes

Most Important, how did you hear about this site?

random

Jaisell's Blog

I want to say thank you to all of you who have introduced yourselves to me. It is nice to be with people who, although each of our experiences may differ, understand each other. I hope today everyone is feeling their very best. I hope that everyone can find some joy at even the small things that life has to offer. Today, I feel fine. I am going to enjoy my children and laugh evrey time they say something funny!

Posted on February 4, 2009 at 11:56am —

Rituxan Experience

Finally, I am feeling better and more like myself. On Dec. 29th I had my first Rituxan infusion and on Jan. 12th I had my second. I felt awful. I was depressed, fatigued, and achy. I was beginning to doubt the choice that I made. I chose Rituxan because my first choice in MS medication, Copaxone, did not work for me. I was allergic to the medication and I had swelling and bruising all over my body. My alternate options were not great: Tysabri (which has only been FDA approved for 2 years with a… Continue

Posted on January 26, 2009 at 4:00pm —

Welcome to
BUTTERFLIES AMONG US

Sign Up
or Sign In

About

Butterfly Kimberly created this Ning Network.

Badge

Loading…

Get Badge

Forum

Plaquenil/Memory 3 Replies

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine 18 minutes ago.

Hello Everyone 5 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Tina Romine 1 hour ago.

THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene Dec 4.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.