LUPUS/Fibromyalgia and more: Support for all
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Harley
- 33, Female
- Richmond
- United States
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- Discussions (24)
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Harley's Discussions
DISCOURAGED
Replied Dec. 28, 2008
DISCOURAGED
Replied Dec. 28, 2008
(UPDATE) Finally told my kids...
Replied Mar. 26, 2008
Harley's Groups
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The Butterfly Garden
76 members
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Bath & Beauty for Lupi...
29 members
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Beading for Lupus-Fibr...
32 members
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Pain Management
90 members
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Support
38 members
Harley's Page
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- Lupus/Fibromyalgia/Reynauds/
Arthritis/Sjrogens
..Seems as tho as the days/weeks go on Im adding things..
I already knew about the reynauds and sjogrens but my rheumy
added the fibromyalgia. *sigh* Well, just more of me to love I guess.
Gotta stay positive or I'd have a nervous breakdown. *smile*
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- www.myspace.com/harleyzuniverse
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Being crippled before im 40. Not being around to see my grandchildren and maybe my great grandchildren.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- Spending quality time with my children, Any and everything having to do with Fashion and music (Dressing/clothing design/Marketing/Branding), Flirting (I'm a vicious flirt), writing poetry/short stories, Laying in bed doing absolutely positively NOTHING..it's a wonderful feeling, Sleeping, Scented Candles, candle holders, Shopping, singing, dancing and spending as much time as I can with my beloved friends.
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yes
- Would you refer others?
- Yes
- Most Important, how did you hear about this site?
- From one of the members of a group I belong to on myspace.
WELCOME
Harley's Photos
Harley's Blog
Working full time w/this disease..
Posted on January 17, 2008 at 3:23am — 1 Comment
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THE SPOON THEORY 38 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.
Plaquenil/Memory
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...
Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
Lymphoma, or just the lupus??? 22 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYBODY LIVING IN FLORIDA?? 4 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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LOVE MRS,YANKSTER
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hugs,
Ali
Girly Comments & Graphics
glitter-graphics.com
Hey, I hope you'll put a vote in for Tom and Annie! I don't know if you saw the FORUM topic on them, but Annie has lupus, and they made it to the next round on the NBC show "Race to the Altar"! Your only allowed to vote ONCE a week. They've also joined our site!
HUGS~Kimberly
glitter-graphics.com Harley, This I send 2 U, w/ the ut-most Sincerity !! I, 2 SO Understand, about all of our meds. & them just NOT working, any longer !! I, have been in a "FLARE", going on about 1 & 1/2 mo. now !! Almost @ my "whits-end", 2 !! Just reach-out 2 your FRIENDS & your GOD, 4 guidence !! That's "truley" all we have left !! I'll KEEP U, in my PRAYERS, Harley !! Blessings 4 U, & have the BEST Weekend, possible !! W/Luv, Jenny (gramma) XOXOXO
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