LUPUS/Fibromyalgia and more: Support for all

Glenda Female Ravenna,Ohio United States: Share

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Back problems again ! HELLLLLLLLLLLLP
5 Replies

Started this discussion. Last reply by Barbara Miller Oct. 10, 2008.

Myspace Causes - Join this cause

Started Jun. 13, 2008

How do I join a group lol I cant figure it out
1 Reply

Started this discussion. Last reply by Gentle Rains Jun. 1, 2008.

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Glenda's Groups

Beading for Lupus-Fibr...

32 members
Support

38 members

Pain Management

90 members
Great website for Fibr...

78 members

Recipe X-Change

46 members

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Tattooed*Mommy

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Josh and Glenda are now friends

April 9

Comment Wall (256 comments)

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At 10:32am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 11:20am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 3:13pm on March 18, 2009, DebrAngel said…: I know the St. Patrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 3:15pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 3:15pm on February 4, 2009, DebrAngel said…: Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo

At 2:23pm on January 19, 2009, DebrAngel said…: I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo

At 4:31pm on December 29, 2008, DebrAngel said…: Wishing you all the best for the New Year! Love and thoughts, Debra xoxo

At 6:54pm on December 19, 2008, Joey said…: glitter-graphics.com

At 7:13pm on December 16, 2008, Bonnie Sanders said…: JUST A WISH FOR A PAIN FREE AND WONDERFUL CHRISTMAS TO YOU AND YOUR FAMILY...
LOVE HUGS AND BLESSINGS BONNIE

Kathys Comments

Kathys Comments

At 1:46pm on December 13, 2008, DebrAngel said…: Wishing you Love and Peace this Holiday Season!Love, DebrAngel xoxo

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Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Yes

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

www.myspace.com/tynhollysmom

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

Well just something bad may happen ...

Favorite pastimes? (You may want to share in GROUPS!! :)

I like to listen to music... I like scapbooking.. I also like to do digital scrapbooking and crafts when I have the time... Im also getting into becomming an AVON Rep.. so I cant wait to get started on that...

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

Sure

Would you refer others?

Yes

Visit Jazzy-Jazz.net for more supportive stuff!

Glenda's Photos

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Glenda's Blog

Add me to your MYSPACE Friends list

Hello.. I just wanted to let anyone know that has a myspace account .. feel free to add me as a friend... I would love to get to know more about everyone .. and have friends with Lupus or fibro..as well.. I love getting comments on my myspace.. they always cheer me up.. and it is a lot easier for me to get on my myspace page.. for some reason.. it takes NING forever to load..anyways.. feel free to add me

… Continue

Posted on December 19, 2007 at 9:18pm — 3 Comments

I decided to do it.. I'm going to be an AVON Rep..

I decided to do it.. I'm going to be an AVON Rep..
Due to being sick and everything all the time ...and not being able to do what I use to do for my job... I had to start a new job about 2 mons ago.. with about 20 less hours per week... and now I am making about $600.00 less per month... meaning we are way behind on bills... and such... Im scared of loosing the house or having ulities shut off .. so I decided im going to give this AVON selling a try.. to pick up a little extra $$
I am al… Continue

Posted on October 19, 2007 at 10:56pm —

50 Symptoms of Fibromyalgia

50 Symptoms of Fibromyalgia
Not everyone gets all 50 Of the Symptoms

1. pain
2. fatigue
3. sleep disorder
4. morning stiffness
5. cognitive or memory impairment
6. irritable bowel
7. chronic headaches
8. TMJ syndrome
9. numbness and tingling sensation
10. muscle twitching
11. skin sensitivities
12. dry eyes and mouth
13. dizziness
14. allergic symptoms
15. mitral valve prolapse
16. heel

… Continue

Posted on October 19, 2007 at 11:18am — 1 Comment

Lupus Statistics

Lupus Statistics
*
Prevalence
o 1.5 million Americans suffer from Lupus that is 1 out of every 185 Americans.
o Lupus is more prevalent than multiple sclerosis, cerebral palsy, muscular dystrophy, AIDS, cystic fibrosis, and sickle cell anemia COMBINED.
o More than 16,000 Americans develop Lupus each year.
o 90% of those with lupus are women.
o Lupus affects African Americans three times more commonly than Caucasians. Asians, Hispanics, and Nativ

… Continue

Posted on October 19, 2007 at 11:17am —

So... What The Hell's Wrong With Me .....

Well where do I start... ...In August I went to the ER because I hurt my back... I was released with just being told that I had some slipped disc and that it seemed like that we're pushing on my spinal cord... oh great...well I had to follow up in 2 days with a Dr.. I didnt even have one ..cuz we didnt have insurance for over a year...but luckly 2 days before I hurt my back Adam's insurance kicked in... Well I was off work for about 3 weeks maybe...when I was to return.. I was released only t

… Continue

Posted on October 19, 2007 at 11:16am — 1 Comment

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Forum

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 20 minutes ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio 1 day ago.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio 1 day ago.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.