LUPUS/Fibromyalgia and more: Support for all

Gentle Rains 52, Female Bluffton, SC United States: Share

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Gentle Rains's Discussions

Fibromyalgia & Disability Benefits?

Replied Jul 3

Gentle Rains's Groups

Pain Management

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Crossstitch Luppies

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Smokin' Lupies

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Lonely Hearts Club

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Great website for Fibr...

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Gentle Rains

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At 11:05am on July 31, 2009, Lora said…: Thanks for sending your rain...we got maybe an inch!! Praise God!! Yeah visiting can take a toll on us!! Interesting song u have on here....That is one of the kind of music me and hubby listen to ! Have Sandcastles in the Sky?....I love that song! Soft hugs, Lora

At 11:53am on July 25, 2009, Lora said…: Thank u for your friendship! I love the name Gentle Rains! We sure could use some rain here in Texas! How r things with u my friend? Thank u also for the pic comment..lol...I stared at it along time praying that ...that it would rain here! I pray u r having good weather there! Well drop me a line or two my new friend!!! Blessings, Lora

At 8:56pm on July 1, 2009, ,Martha said…: Tucmuc

At 12:36am on June 27, 2009, Shirldean Wood said…

At 9:56am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 10:41am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 11:38pm on April 7, 2009, ,Martha said…: Easter Comments
Myspace Comments - Upload Photos
Hugs and love
Martha

At 11:42pm on March 30, 2009, ,Martha said…: Visit HillBilly Comments Hugs Martha

At 2:37pm on March 18, 2009, DebrAngel said…: I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 2:51pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

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Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

Fibromyalgia - diagnosed 1999

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!

Yes - it's there already

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

www.myspace.com/gentle_rains

Favorite pastimes? (You may want to share in GROUPS!! :)

Collecting and working/healing with crystals, walking the beach, reading

Working on my site.... Gentle Rains

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

Yes

Would you refer others?

Yes

Most Important, how did you hear about this site?

Invite

Welcome to My Page....

Burning for my mom who passed on August 29, 2001

Gentle Rains's Blog

Thought for the Day:

"Nothing is so strong as gentleness. "

-Ralph W. Sockman

Posted on April 19, 2008 at 3:57pm —

People Who Don't Get It - Compassion for All

Daily OM: You may be someone who understands the true nature of reality, perceiving deeply that we all emanate from the same source, that we are all essentially one, and that we are here on Earth to love one another. To understand this is to be awakened to the true nature of the self, and this understanding is a blessing. Nevertheless, people who just do not get it are seemingly everywhere and, often, occupy positions of power. It can be frustrating and painful to watch them behave unconsciously… Continue

Posted on April 7, 2008 at 9:04am — 1 Comment

Thought for the Week:

"To wear your heart on your sleeve isn't a very good plan. You should wear it inside, where it functions best."

- Margaret Thatcher

Posted on March 31, 2008 at 6:15am —

Halite

Clear

Pink

… Continue

Posted on March 30, 2008 at 1:04pm —

Harmonizing with the Universe - The Benefits of Singing

Daily OM: Singing is an act of vibration. It takes music from the realm of the unformed-- whether that is in your mind or from that magical space of inspiration--and moves it from within to without. From the first breath singing moves the energy in a circular way inside your body. As the breath fills your lungs, it brushes against the second and third chakras—the centers of creation and honoring self and others. Instead of merely exhaling, pushing the air past the fourth and fifth chakras where… Continue

Posted on March 28, 2008 at 11:23am — 1 Comment

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THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.

Update Dec. 1, 2009 by Sheldan Nidle

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Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

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Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

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