LUPUS/Fibromyalgia and more: Support for all
Donna's Discussions
New Medicince!!
2 Replies
Started this discussion. Last reply by Jenny (G'ma) Apr. 10, 2008.
I got good news today,,I have osteoporosis in the spine!!!
1 Reply
Started this discussion. Last reply by Walkingpath Apr. 3, 2008.
Unexplained fevers?
Replied Mar. 29, 2008
Donna's Page
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- I have Fibromyalgia
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- ://www.myspace.com/Brighteyes1963
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- One day never being able to leave my home or having friends again.That I am so Medicince senstive that one day a pill might just do me in or that the pain will make me do something dumb and end my own life
- Favorite pastimes? (You may want to share in GROUPS!! :)
- It use to be horse back riding,dirtbiking,boating,snowbroading and fishing.I still do some,but I will pay a very high price for it..But now that its winter I play on my laptop and read
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yea
- Would you refer others?
- Yes
- Most Important, how did you hear about this site?
- On myspace Bulletin
Donna's Photos
Donna's Blog
Tired compared to Fibro Fatigue!!!!
Tired is......
I'm tired, I can't wait to get into a warm bath and relax.
Fibro Fatigued is.....
I know I should take a bath but I don't have enough energy to walk to the bathroom, turn on the faucet, take my clothes off..... oh, man, I can't even think about it. I'll just sit here achey and sweaty and feel guilty for not being able to take a bath.
Tired is.....
I really want to go to this party, but I'm so tired. Well maybe I'll go
Posted on January 29, 2008 at 1:26am —
Fibromyalgia and Me by Melanie Woodruff
Fibromyalgia and Me by Melanie Woodruff FIBROMYALGIA AND ME |
Posted on January 1, 2008 at 6:27pm —
~~The Pain Of It All~~
~~The Pain Of It All~~
Current mood: 
depressed
Category: Life
~ The Pain Of It All ~
By Rose Marie Streeter
I wish that I could live again
enjoy
… ContinuePosted on December 31, 2007 at 11:43pm — 1 Comment
Until You Walk In My Shoes
For anyone who suffers with Fibromyalgia this is for YOU OR for anyone who has a family member, loved one, friend or knows anyone living with Fibromyalgia this is also for YOU ... perhaps it puts into a perspective what someone who has this goes though!!! Remember, never JUDGE a person UNLESS you walk in their shoes!!!!! YOU THINK YOU KNOW, BUT YOU HAVE NOO IDEA!!!
1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arth
Posted on December 31, 2007 at 11:40pm — 2 Comments
Symptoms of Fibro
More Symptoms of Fibro
Current mood: 
cantankerous
Category: Life
Symptoms of Fibro
GENERAL
____ Fatigu
Posted on December 31, 2007 at 11:38pm —
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THE SPOON THEORY 38 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.
Plaquenil/Memory
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...
Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
Lymphoma, or just the lupus??? 22 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYBODY LIVING IN FLORIDA?? 4 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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Donna, Hope U ENJOY 2-Day, Sending Gentle HUGS your WAY !! Luv,jenny (gramma) XOXOXO
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