LUPUS/Fibromyalgia and more: Support for all
Danielle McNeil's Discussions
In Severe Pain
HI DOTTI, I WENT THROUGH THAT A COUPLE OF YEARS AGO! IT IS REALLY TOUGH AND FRUSTRATING TO NOT GET ANY RELIEF AND KNOW YOU HAVE THE REST OF THE DAY AHEAD OF YOU. IT MAKES ME CRY AND WANT TO JUST GET…
Replied Oct 18
Has anybody been diagnosed with lupus with a negative ANA?
HI KIARA, YES I HAVE BEEN DIAGNOSED WITH A NEGATIVE ANA! MINE HAS BEEN POSITIVE AT TIMES AND NEGATIVE AT TIMES. IT IS SO STRANGE! I HAVE BEEN DIAGNOSED SINCE 1998. NOT HAVING MUCH LUCK WITH MY HEALTH…
Replied Oct 14
Butterfly Kimberly Returning Soon
I HOPE THE WARMER WEATHER WILL HELP HER! THIS WEATHER UP NORTH CAN BE BRUTAL ON US LUPIES! I WISH HER LOTS OF LUCK AND HAPPINESS IN HER NEW HOME! HOME IS WHERE YOUR FAMILY IS! PRYERS, DANEILLE
Replied Oct 10
HAS ANY ONE HAD HIGH CALCIUM AND HIGH VITAMIN A LEVELS?
MY LEVELS ARE VERY HIGH AND MY DR'S CANT FIGURE OUT WHERE ITS COMING FROM. ONE DR SAID I WOULD HAVE TO EAT POLAR BEAR LIVER EVERYDAY TO GET A VITAMIN A LEVEL THAT HIGH! HELP!
Started Oct 3
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Profile Information
- Where did you grow up, and where is your home now?
- grew up in Dryden and live in Cortland now
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- Lupus with kidney side effects and bad migraines every single day. BAD INSOMNIA! No medicine seems to help!
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- Scared that my life is going to continue to wither away!
- Favorite pastimes? (You may want to share in GROUPS!! :)
- eating!!! (been on steroids for ten years of course its eating!!!!) : )
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yes its a comfort to know other people actually know what you are going through!
- Would you refer others?
- yes
- Most Important, how did you hear about this site?
- I read 'Julies story" by Julie Miller. I finished the book and went straight to the computer!
Danielle McNeil's Blog
I JUST WANT TO SAY I'M SORRY TO ALL OF YOU, BECAUSE I KNOW WHAT YOUR GOING THROUGH!
Posted on October 3, 2009 at 7:36pm —
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ANYBODY LIVING IN FLORIDA?? 7 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 15 hours ago.
Lymphoma, or just the lupus??? 23 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.
THE SPOON THEORY 39 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.
Hello Everyone 6 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.
Plaquenil/Memory 3 Replies
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…
Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…
Started by Amy Jill in MEDICATIONS Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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Spicecomments.com - Hugs Comments
Have a good day.
Janette
I have fibromyalgia and arthritis and like you I suffer from insomnia. It drives me crazy. I lie there listening to everyone sleeping and just gazing out the window watching the night pass by. It just makes the next day so much harder doesnt it.
I hope you have a good week this week and I'll pray that we may both get a good nights sleep maybe !!
Blessings
Janette
Welcome MySpace Comments
I'm very happy that you joined this wonderful group of people here that support and encourage each other in many different ways with the ultimate goal of finding different ways in healing the body and mind.
While your browsing on this site, be sure to go to your settings and check the box to "Receive Broadcast Messages to this Group" in your email settings.
Again, Welcome and glad you joined us, Dad Butterfly