LUPUS/Fibromyalgia and more: Support for all

Danielle 40, Female Pawleys Island United States: Share

Blog Posts (3)
Discussions (17)
Events
Groups (3)
Photos
Photo Albums
Videos

Danielle's Apps

Danielle's Friends

View All

Music

Loading…

Danielle's Groups

PH Chatters

41 members
Great website for Fibrom…

78 members

For The Love of Fibro

75 members

View All

Danielle's Page

Comment Wall (99 comments)

You need to be a member of BUTTERFLIES AMONG US to add comments!

Join this Ning Network

At 9:42am on May 8, 2009, DebrAngel said…: Hi, Sorry for not leaving comments, but I have been around! The EEG came back ok for the temperal lobe, which is where the trouble was before so they have cut back on the new tablet, which is for the Fibro, but can cause seizures. So while my body ajusts to this, I am in more pain again and cant concentrate for very long! So if you want to IM me, check the one at the bottom and see if I am there. Most days I am in the garden or playing with pets. It takes my mind off the pain for a while. I love you all and really appreciate the comments that have been left on my page! You guys are great!!! So even though my comments aren't like they use to be, you are still in my thoughts and prayers and know that I am still around! Take care and God bless! Love, thoughts and Hugs, DebrAngel xoxo

Four things you can't recover:

The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.

If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

At 10:26am on April 16, 2009, DebrAngel said…: Just stopping by to let you know how much your friendship means to me! We may not talk alot but I see your picture and I know you are there if I need you! The end of this month I go to the neourologist in London and find out if it is the seizures back or just drugs competing against each other! So Please keep me in your prayers as I do for you!Take care and God bless my Friend! Love and Hugs, DebrAngel xoxo

At 2:19pm on March 18, 2009, DebrAngel said…: I know the St. Pactrick is a day late but yesterday was consumed with thoughts of my dad who died before getting to see Ireland and see where his ancestors came from! I am hoping that I will make the trip for him one day! But he now has a birds eye veiw of the places he only dreampt of! I pray you are all doing well! I have been having giddy spells and have had another EEG to see if the brain seizures are back and may have to reajust my medication! I go back to the nerologist next month and get the results! My Love and thoughts and prayers are with all of you! Take care and God bless! Love, DebrAngel xoxo

At 7:09pm on February 16, 2009, ,Martha said…: BabiTag Comments - Sassy Trendy Sexy

Wishing youy a very good eveningHugs and much loveMartha

At 2:49pm on February 15, 2009, ,Martha said…: Just stoping by to wish you a nice day
Hugs and much love
Martha

At 2:42pm on February 14, 2009, DebrAngel said…: Hi My Friend, Just stoping by to see how you are and let you know what has been going on with me. I have had to go back to London for an EEG, as the Neuologist thinks the brain seizures have come back! An effect of a new medication that I have to have so if they are back we will have to adjust the seizure meds. Here we go around in circles again! You take care and I wish you a Valentines Day filled with Love and Happiness! Love and many Thoughts, DebrAngel xoxo

At 8:49pm on February 11, 2009, ,Martha said…: PROFILELUST.COM Please don't pull all your hair out, lol That was a cute comment. I know you told me but remeember I am 70 how many dogs do you have
Love, hugs,and Blessings
Martha

At 5:03pm on February 10, 2009, ,Martha said…: Hug Day by tucmuc.org Hugs Martha

At 2:30pm on February 4, 2009, DebrAngel said…: Hello Friend! Just stopping by to leave some love and let you know that I am still around! We have had snow here in Southern England, which is pretty, but bad for our illness'! I have had broncitus and my nerologist thinks that my brain seizers are back! What one medicine helps it affects the other meds! So here we go again with more tests! Other than that I am fine! LOL. I love the way the lady in this comment puts things, she has what Lupus and Fibro and related illness do to our bodies down to a T! Take care and God bless you and know that you are in my thoughts and prayers! Love and Gentle Hugs, DebrAngel xoxo

At 1:47pm on January 19, 2009, DebrAngel said…: I hope this finds you doing well and keeping away from all the colds, flu, broncitus and other illness of the year so far! You are always in my thoughts and prayers. Take care and God bless! Love and thoughts, DebrAngel xoxo

No comments yet!

View All Comments

Profile Information

Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?

fibromyalgia and osteoarthritis
I have asthma, Tmj syndrome, Hypothyroidism,

SUPERFLYCHICKEN.COM

**EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!

My birthday is September 17, 1969 I will be 39 years old. Creeping up on 40's backdoor!!

Free Comments & Graphics

src="http://i244.photobucket.com/albums/gg38/huntoo/tinylogo.jpg"/>

SUPERFLYCHICKEN.COM

SUPERFLYCHICKEN.COM

My anniversary is November 21, 1998 and this will be my 10th

Girly Comments & Graphics

Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)

myspace.com/feelingfoggy

QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)

not being able to keep up with the things i need to in life. I was always such a busy person. An over achiever. Now I find some days that i can only accomplish brushing my hair. and that IS the accomplishment. I miss the me i was before this disease. I was an avid hiker. I could hike 10 miles and not break too much a sweat. i was 125 pounds of muscle. Now I weigh 160+ and I don't hike anymore. So yeah, just being able to keep up with things in life.

Fairy Glitter

Favorite pastimes? (You may want to share in GROUPS!! :)

I love to read and spend time with my family
I love to bargain shop
I love to cook when i can
I love animals, all kinds
I hate bugs, all kinds LOL

Fairy collector

Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?

yes

Would you refer others?

yes

Most Important, how did you hear about this site?

my friends from prohealth

SUPERFLYCHICKEN.COM

BUTTERFLIES AMONG US!!!!!!!!!!!!

Danielle's Blog

Irritated with Fibromyalgia!

How often do you feel foggy??? Do you think it is something in our heads or is it lack of sleep?? I don't know but boy I tell you, I get the fibro fog so bad sometimes, I can't think past my own name sometimes. Do you get irritated when you are in a store or restaurante?? what I mean is for example, I was standing in the condiments Aisle and was choosing honey mustard. Do you know how many different kinds of honey mustards there are??!! I could not make up my mind, I was getting so mad, I walked… Continue

Posted on June 9, 2008 at 4:00pm — 3 Comments

Living with Fibromyalgia

How has fibromyalgia changed you as a person?? Has it made you a better person? Has it taken away things but given things in return? How do you feel about this disease? Why do you think we were struck with it? Is it because we were overachievers? were sick? were stressed? in an accident? what is your opinion of fibromyalgia?? how do you think we have gotten it? is is neurological? psychological? muscle/joint related?? Give me your opinions and your knowledge you have learned on the subject fi… Continue

Posted on June 6, 2008 at 11:54am — 1 Comment

Daily living with fibromyalgia

there are those of us who have some really funny things that have happened to us since we have had fibromyalgia. One of those things with me was going to the ATM machine in NC. I stuck in my card, pushed all the right buttons, recieved my money and drove off, what i didn't realize was that i left my card and balance slip sticking out of the ATM machine. I turned around went back and thank goodness there they were!!! sticking out of the ATM machine!!!!!! You talk about laughing at yourself!! what… Continue

Posted on June 3, 2008 at 12:01pm — 2 Comments

Welcome to
BUTTERFLIES AMONG US

Sign Up
or Sign In

About

Butterfly Kimberly created this Ning Network.

Create a Ning Network! »

Badge

Loading…

Get Badge

Forum

ANYBODY LIVING IN FLORIDA?? 7 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 12 hours ago.

Lymphoma, or just the lupus??? 23 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.

THE SPOON THEORY 39 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.

Hello Everyone 6 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.

Plaquenil/Memory 3 Replies

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…

Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…

Started by Amy Jill in MEDICATIONS Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.