LUPUS/Fibromyalgia and more: Support for all
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Cheryl
- Female
- Gerry, NY
- United States
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- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- I have Lupus and Rheumatoid Arthritis
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- 8/22/65
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- I sometimes fear getting worse than I am now. I have kidney nephritis and I worry that one day they will stop working all together.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- I love fishing, reading, making friends online
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- I am new, I hope so though! Having support with these illnesses is critical!
- Would you refer others?
- I love you meet new people and form lasting friendships
- Most Important, how did you hear about this site?
- A friend at DailyStrength.org
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ANYBODY LIVING IN FLORIDA?? 7 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 15 hours ago.
Lymphoma, or just the lupus??? 23 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.
THE SPOON THEORY 39 Replies
ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…
Tagged: lupus, theory, don't, sick, spoons
Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.
Hello Everyone 6 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.
Plaquenil/Memory 3 Replies
I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…
Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.
New Here 2 Replies
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Update Dec. 1, 2009 by Sheldan Nidle
-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…
Tagged: Sheldan, Nidle, by, 2009, Dec.
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.
Scared about Cytoxan 3 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…
Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.
anyone with fibro living inyorkshire England 1 Reply
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…
Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.
In Severe Pain 5 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.
My Hysterectomy and HRT 2 Replies
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…
Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.
Has anybody been diagnosed with lupus with a negative ANA? 34 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.
Fibromyalgia & Disability Benefits? 10 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.
ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…
Started by Amy Jill in MEDICATIONS Nov 24.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
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You sure do have a lot on your plate. I'm sorry for all the pain you're in. I've had fibro for over 30 years. It took them 15 to diagnose me. I always had an elevated sed rate. My other Rheumie in NY said he couldn't understand why it was high. He did a test for Rheumatoid, but always came back negative. I moved to Pa with my husband 3 years ago, and my new Rheumie did a bunch of tests on me, and I was complaining about all the tests to my husband, but the last test did definitely have Ra. As she looked at the pictures she saw erosion, and I said it must be 17 years worth cause that was how long I was with him. It's funny, before I get a flare up with the Ra, I get fever like symptons. I don't know if thats true or not. I also was diagnosed with osteo too. I hope you have a nice day and that you're as pain free as possible. Also have a good weekend. They're predicting 4 days of rain, and we're on day 2, and it's also damp and cold. Take care and I hope we can be friends also. Talk to you soon.
Hugs, ~Dotti~
Thank you for accepting my friend request. You can never have too many friends right?? Do you have Fribromyalgia? I have that plus I have Rheumatoid and Osteo Arthritis. I guess I was lucky to get the whole gang of illness'....lol..... I have to joke about it or I'll cry. Just wanted to say hi and welcome, and I'm looking forward to getting to know you. Take care, and I hope that you have a wonderful, pain free day.
Hugs, ~Dotti~
Showing real love to my friend Cheryl.
Have a wonderful weekend.
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