LUPUS/Fibromyalgia and more: Support for all
Bronwyn's Page
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- Lupus
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- 4 February 1974
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yes
- Would you refer others?
- Yes
- Most Important, how did you hear about this site?
- A friend of mine has Fibromyalgia and I have a "skin" lupus that is easily controlled by Malaria Tablets. I'm basically allergic to the sun and have a hard time dealing with living in one of South Africa's most beautiful coastal towns and having to try stay out of the sun
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Fibromyalgia & Disability Benefits? 7 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Vee Marie 4 hours ago.
Need help with Neurontin 7 Replies
I was wondering if anyone is on Neurontin? Since I am in a bad flare again and my back has opened back up yet again, this time on it's own, he has prescribed Neurontin for the pain that is now goin...
Started by Shelia in MEDICATIONS. Last reply by MANDY 20 hours ago.
No more pain meds with tylenol????? 9 Replies
The news all over this morning was about how the FDA doesnt want vicodin or percocet or Nyquil or other OTC drugs~~~~NONE~~to be sold any more if up to them. My Mom called and woke me to turn on TV...
Started by Lisa in GAMES, CONTESTS. Last reply by Lisa Jul 8.
Hi guys! I'm back!
Hi guys! I know I've been gone for a bit! ok, actually a long time! but I'm back! I hadn't been feeling ok! been in and out of drs office wth flares and stuff! I've missed you all! So please put me...
Started by Kiara in I'M IN NEED OF SUPPORT PLEASE!! Jul 7.
We are a group of pretty fine people..... 4 Replies
I was wondering if anyone in here has become real "friends" outside of in here? Has there been any marriages? Man and woman finding love? Ever have a reunion picnic of sorts? Pick a place and leave...
Started by Lisa in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Lisa Jul 6.
DOES ANYONE LIVE IN INDIANA
DOES ANYONE LIVE IN INDIANA
Started by MRS.YANKSTER in MISCELLANEOUS Jul 2.
First television interview: FOX 17 NEWS: LUPUS AWARENESS!! 4 Replies
Tagged: awarness, book, Walk, Lupus
Started by julie in AWARENESS WORK. Last reply by Melinda Tucker Jun 30.
Pain in my upper back, shoulders, and neck 6 Replies
Can someone please help me I am getting horrible pain in my upper back, shoulders, and neck. I have tried rubs, ice, and sleep. When I sleep especially on my side it gets worse and my arms go numb....
Started by Pamela Rose Starr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by ReneM Jun 28.
YOU ARE A LIVING VORTEX* * By Gillian MacBeth-Louthan*
YOU ARE A LIVING VORTEX* * By Gillian MacBeth-Louthan* You hold within you all possibility, but you see it not. Create as the Gods you are. Use your words, your thoughts, your intentions to bring t...
Tagged: By, Gillian, MacBeth-Louthan*, *, VORTEX*
Started by Sandy Medine in AWARENESS WORK Jun 27.
Rhumatiod Arthritis 4 Replies
I have had fybromyalgia since I was 11 so thats about 7 yrs. But last yr I had a lump on my right elbow found out it was a rhuematiod nodgle .Which that could mean lupus,rhuematiod arthris or many ...
Started by Darlene in DOCTORS: questions, experiences, do you know this doctor? Should I get a 2nd opinion??. Last reply by ReneM Jun 27.
![Stacey [Pinkdrgfly]](http://api.ning.com/files/nNlVF55NSv0l9zqYm9XlW7I5*xXpaBU2H1caVsZ88NWtvmjpeBd-9bYdlGctAzVUk*yrlnb22379apHSRkVLxwor6uA*opc8/me.jpg?width=32&height=32&crop=1%3A1){kind=small}
Discoid Lupus Erythematosus 17 Replies
Has anyone with Discoid Lupus Erythematosus had a biopsy done of your head sores. A friend of mine told me to have the sores on my head biopsied. I've had these sores for years and they flare when ...
Started by Stacey [Pinkdrgfly] in SKIN ~ RASHES, DISCOID LUPUS, ETC. Last reply by clarice young Jun 27.
Have to find a New Rhumatologist :( 3 Replies
Does anyone live in mid michiagn and have a GOOD rhumotologist to recomed??? I just found out mine is moving out of the state in september.
Started by Jenn in DOCTORS: questions, experiences, do you know this doctor? Should I get a 2nd opinion??. Last reply by MRS.YANKSTER Jun 24.
About Fibromyalgia
About Fibromyalgia Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rathe...
Tagged: Fibromyalgia, About
Started by Sandy Medine in AWARENESS WORK Jun 22.
Emergancy Trauma 4 Replies
I had a Rheumy appt on Friday...so I thought...my body said differant apparently. All was fine and had been not too bad lately, too. I was sitting in the exam room chatting with mom while I waited ...
Started by Dawn in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Dawn Jun 19.
The Sun 9 Replies
Ok so this is my first offical summer being diagnoised with Lupus so I need some advice on what I need to do in the sun. I don't go back to the rhumy till june 18th and I already have a camping tri...
Started by Jenn in MEDICAL QUESTIONS. Last reply by Jenn Jun 19.
Aloe 3 Replies
A natural medicine for cancer, cholesterol, diabetes, inflammation, IBS, and other health conditions In fact, my yard is an aloe farm, and each day before I {Mike Adams} make my superfood breakfast...
Started by ReneM in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC. Last reply by Sandy Medine Jun 16.
First Butterfly Rash? 3 Replies
Hey all, I think I may have experienced my first butterfly rash, but I was curious to hear what everyone else experiences when they get it. I had a recent flare that I'm just getting over, and one ...
Started by Kate in MEDICAL QUESTIONS. Last reply by Melinda Tucker Jun 16.
What in the world is PH chatters? 5 Replies
I have pulmonary hypertension and wonder if this is a group for that...it is a very serious illness that ends one way........Will someone pls let me know if this is others like me so it this area i...
Started by Lisa in MISCELLANEOUS. Last reply by mich111 Jun 16.
skin problems,discoid lupus
Hey all,yes i have had problems with this discoid lupus on my feet,had problems,a while with it ,long before i was told i had lupus,i thought at the time it was due to being on my feet all the time...
Tagged: feet, problems, lupus, discoid, rashes
Started by Dorothy Moniz in SKIN ~ RASHES, DISCOID LUPUS, ETC Jun 16.
I hope to let you know whats up! 2 Replies
I just left the dentist and due to Sjogrens I need thousands of dollars worth of dental care! YUK! Mom and Dad put braces on my teeth and mom really believes in Dental care and is quite heartbroken...
Started by Lisa in INTRODUCTIONS/PERSONAL STORIES. Last reply by Melinda Tucker Jun 15.
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Welcome, to Butterflies Among Us! I am sure you will find this site very informative. You will also find all the support in the world here! Please feel free to ask any questions. Please visit the FORUM to find some answers to questions already asked, or post your own question or discussion. You are sure to get feedback! Everyone is so friendly around here, and it’s a fun, easy going place to be. To share stories, make life-long friendships, vent, laugh, cry, support, etc. We are all in this together to get AWARENESS OUT THERE to help fight illness(es), to find better treatments, even better cures! Hugs, xoxoxox ~Butterfly Kimberly (BK)
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I'm very happy that you joined this wonderful group of people here that support and encourage each other in many different ways with the ultimate goal of finding different ways in healing the body and mind.
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Again, Welcome and glad you joined us, Dad Butterfly
Hi Bronwyn,
welcome here !
Lostdog