LUPUS/Fibromyalgia and more: Support for all
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Ali
- 38, Female
- Ft. Worth
- United States
- Share
- Blog Posts (4)
- Discussions (62)
- Events
- Groups (13)
- Photos (55)
- Photo Albums
- Videos (9)
Ali's Discussions
also need prayers for my dad
Replied Dec. 30, 2008
Ali's Groups
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all topics-good, bad a...
30 members
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The Butterfly Garden
76 members
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Crystal Healing Family
11 members
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Soul Patrol
20 members
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For The Love of Fibro
74 members
Ali's Videos
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Tony Bennett/ Terry Fator duet
Added by Ali
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Terry Fator
Added by Ali
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this guy can sing!!
Added by Ali
Wants to help find a cure for this nasty disease called LUPUS!
Profile Information
- Do YOU have.... LUPUS ~ Fibromyalgia ~ CFS (Chronic Fatigue Syndrome) ~ Migraines ~other? OR are you here supporting someone?
- Yes, SLE Lupus, Fibromyalgia & restless leg. I do have some CNS along with stage 2 kidney involvement
- **EVENTS** (b-days, etc.) tab is at the top of the pages. When you are done registering you can put your info in at any time. You can enter Birthdays (Family member b-days too), Anniversaries, Fundraisers, Walks, etc.!! Enter your info there if you'd like to share!
- April 30th
- Myspace, Facebook, Twitter or other? If you want to share, please POST YOUR (url/usernames and WHAT social site you belong to) for others to find you and vice versa :)
- myspace.com/crazyredhead_Ali
- QUESTIONS & FEARS??(Although some read other member pages, questions are best to be entered and type in the FORUM :)
- my disease causing me not to work and support my family.
I also fear that Lupus could be passed on to my girls.
- Favorite pastimes? (You may want to share in GROUPS!! :)
- researching Lupus, meeting friends on myspace, making jewerly
Spending time with my friends and family
- Do you find this site helpful from what you have seen on the main page and anywhere else you may have looked at? Any suggestions or ideas?
- Yes, yes and double yes!!
- Would you refer others?
- Yes, I love this site!
- Most Important, how did you hear about this site?
- Word of Mouth- all my lupie friends
Your LUPUS BUTTERFLIES AMONG US Box
Ali's Photos
Ali's Blog
walk for a Cure fundraiser~I sell bracelets & 100% of proceeds will be donated to the LFA
https://www. kintera. org/faf/donorReg/donorPledge. asp?ievent=290292&supId=201369147
Here is my slide show if you are interested in buying jew… Continue
Posted on March 3, 2009 at 7:30pm —
I now can do Medical ID bracelets of almost any kind
Check out my jewerly slide show. I also do medical anklets:)
… Continue
Posted on July 24, 2008 at 10:00pm —
Ok, here is a big question for all people with Lupus!!!!
Why do all the new Wal-Marts have no concideration for people w/ Lupus?
Ok, let me start from the beginning. Tonight I went into a brand new Wal-Mart trying to walk off a big Mexican dinner that was wonderful but I ate way to much.....with my size that is not hard to do. Anyway, when we first walked in part of the store the lights were limited in one section.....it was great and at this point and time I was
… ContinuePosted on July 15, 2008 at 9:46pm — 13 Comments
A letter to people who are not sick.
Having LUPUS means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about LUPUS and its effects, and of those that think they know, many are actually misinformed. In the spirit of informing those who wish to understand...... These are the things that I would like you to understand about me before you judge me....
- Please u… Continue
Posted on November 30, 2007 at 8:52pm — 5 Comments
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ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE
Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...
Started by Amy Jill in MEDICATIONS Nov 24.
Hello Everyone 4 Replies
My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...
Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.
My Hysterectomy and HRT 1 Reply
I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...
Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr Nov 22.
SOMETHING WONDERFUL IS ABOUT TO HAPPEN
August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...
Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL
Started by Sandy Medine in MISCELLANEOUS Nov 17.
Fibromyalgia & Disability Benefits? 8 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.
Need Buddies in OHIO 1 Reply
I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey
Tagged: ohio
Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.
anyone with fibro living inyorkshire England
Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...
Started by joy in DO YOU LIVE NEAR ME? Nov 13.
New Here 1 Reply
Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...
Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.
Lymphoma, or just the lupus??? 21 Replies
Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...
Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.
ANYBODY LIVING IN FLORIDA?? 3 Replies
I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...
Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.
Surgery/Nov 10th 2 Replies
I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...
Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles
The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...
Tagged: on, based, Jampolsky, A, Course
Started by Sandy Medine in MISCELLANEOUS Oct 31.
The Cancer Cure Video that circled the globe in 31 minutes
Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
The Cancer Cure Video that circled the globe in 31 minutes
The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...
Tagged: globe, in, 31, minutes, the
Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.
Scared about Cytoxan 2 Replies
I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...
Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.
Finding a Cure
Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...
Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.
Quantum Physicist reveals how to master “The Secret”!!download free e-book
http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...
Tagged: http://www.believeandmanife...
Started by Sandy Medine in AWARENESS WORK Oct 19.
New Body Templates Coming Soon!
-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...
Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body
Started by Sandy Medine in MISCELLANEOUS Oct 18.
In Severe Pain 4 Replies
I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...
Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.
Has anybody been diagnosed with lupus with a negative ANA? 32 Replies
I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!
Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.
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Spicecomments.com - July 4th Comments
..Hi,sorry it's been so long,it's just that there has been so much going on in my life here the last little while.But one things for sure you've been on my mind and i havn't forgotten you.I want you to have a Happy and Safe,pain free weekend,filled with lots of bleesing's from above...Have a great day..Texaspigtails
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Four things you can't recover:
The stone........after the throw.
The word........after it's said.
The occasion........after it's missed.
The time.........after it's gone.
Knock, Knock… I knocked at heaven's door this morning.
God asked me...'My child, what can I do for you?'
And I said, 'Father, please protect and bless the person reading this message.'
God smiled and answered...'Request granted'.
If you believe, send this to seven people and the one who sent it to you. By doing this, you have succeeded in praying for eight people today. 'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'
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............I enjoyed meeting you,sorry it was so short..........Texaspigtails
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