LUPUS/Fibromyalgia and more: Support for all

Featured Groups

For The Love of Fibro

74 members
Mountian of Hope

87 members
Pain Management

90 members
The Butterfly Garden

76 members
PH Chatters

41 members

All Groups (38)

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Lonely Hearts Club

49 members Latest Activity: Nov 24 For those who are alone, feel lonely, have a fear of dying alone, are married and still alone. Have been abandoned by someone. Come and share how you…
Birthday Group

14 members Latest Activity: Nov 17 This Group is for posting your Birthday. Just your Month,Day and you do not have to post the year. ( unless you want too) Then everyone will be able…

Great website for Fibromyalgia~ THANKS ALI!

78 members Latest Activity: Jul 13 Ok, for all my fellow Lupies check out this very informative site. Very user friendly. http://www.fibrohope.org hugs, Ali
Lupus scrapbookers

19 members Latest Activity: May. 8, 2008 For those who enjoy the craft of scrapbooking. We can share layouts and ideas and even put our work on display! This is such a therapeutic hobby. I kn…

mommies with lupus

55 members Latest Activity: Nov 23 A group where moms with lupus can come and talk to other moms about what it's like to take care kids and deal with lupus
Recipe X-Change

46 members Latest Activity: Aug 25 A group for those who love food and love to cook! A great place to exchange recipes or ask questions about cooking techniques and how to's. Yeah!

Finding Healing!!

39 members Latest Activity: Aug 25 A place where we can ask questions, get answers, and share successes and failures with alt. or natural methods of healing that we have tried so that w…
Smokin' Lupies

22 members Latest Activity: Oct 20 A support group for Lupies who are trying to kick the habit of smoking.

Pain Management

89 members Latest Activity: Sep 28 This is a group where you come to complain, look up, and share ideas that help you with pain management, whether they be general pain or specific pain…
Support

38 members Latest Activity: Sep 12 How are you feeling? Are you stressed and depressed? Or are you having a good day and just want to say horray! Let us know, so we can all give you t…

Beading for Lupus-Fibromyalgia

32 members Latest Activity: May 20 I love working with my hands. My current task is making jewerly to raise awareness on Lupus.
Bath & Beauty for Lupies. Taking care of ourselves!

29 members Latest Activity: Nov 15 For those of us who are interested in using the best products for our needs. Whether it be making our own bath and body products. Or stuff available o…

The Butterfly Garden

74 members Latest Activity: Sep 28 Inspirations, Quotes, Stories and Poems to uplift one's self for better healing.....
Buddhism

4 members Latest Activity: Aug 7 Just Buddhism. Open door and open heart. All you may wanted to know about Buddhism

Paying it forward

14 members Latest Activity: Aug 7 When someone and people may help when you need and don't think it is their to help. Like going to the store for you and given you food or money. Act o…
PH Chatters

41 members Latest Activity: Aug 17 A place for PH Chatters to leave comments/questions/greetings for other PH Chatters

Crystal Healing Family

11 members Latest Activity: Jul 13 learning about the uses in crystal and stone healing and methods to increase your energy and energy bodies.(chakras)
A LOVE OF ALL THINGS ANIMAL

43 members Latest Activity: Nov 15 Here is a place to describe your love for animals. Why you love them, how they make you laugh, how they make you feel. Their unconditional love for u…

For The Love of Fibro

71 members Latest Activity: Sep 12 This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all g…
Diabetic FMS and Lupus

22 members Latest Activity: Aug 17 This group is for anyone who has diabetes along with fms or lupus. I hope that we can exchange recipes and give each other tips on how to live with di…

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Forum

THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.