LUPUS/Fibromyalgia and more: Support for all

PH Chatters

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A place for PH Chatters to leave comments/questions/greetings for other PH Chatters

Members: 41
Latest Activity: Aug 17

WELCOME PH CHATTERS!

Thought this would be a great place to leave messages/comments/questions for fellow PH Chatters when you can't find them online.

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Discussion Forum

Newly diagnosed with FMS 1 Reply

Hello all, I was recently diagnosed with FMS. I've had all kinds of tests done and finally came upon a doctor that knew what I had the minute I started describing my symptoms. I'm a Correctional ...

Started by Angela D Ramsey. Last reply by Katnet1 (Kat) May 9.

What is the deal??? 9 Replies

Ok-someone please tell me what in the world is going on with PH!!!! I've been told that we are no longer allowed to mention this site in chat there! I'm to the point where I don't know what people ...

Started by Gena. Last reply by hismouse Sep. 11, 2008.

Fibro/CFS Gathering 14 Replies

I was given the idea to have a picnic/festival so that we can all meet and continue to be there for each other. This gathering is purely optional but a lot of the PH Chatters have been wanting to d...

Tagged: gathering, chat, picnic, room

Started by feeling2008. Last reply by jimmytee Aug. 16, 2008.

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Comment by cnttakenomore on December 3, 2008 at 8:09pm: Hi everyone been awhile just wanted to send prayers and hugs love Cnttakenomore

Comment by Sharon (Texashen) on November 26, 2008 at 3:44pm: Have a Happy Thanksgiving!!!! Thank you for your wonderful chats, caring shoulders and for being there !! Have a blessed day!

Comment by jimmytee on November 15, 2008 at 1:04pm: hello my friends.just wanted to say hi and hope you all are having a good weekend.tell everybody in ph that jimmytee says hi.

Comment by sara on November 11, 2008 at 3:47pm: to smily and leesel iv had a word with jorgie in ph and they have probs there sponsor in china is taking there time in fixing it ,so until ph is fixed u will have to talk on the chat here from sara butterfly

Comment by leesel on November 11, 2008 at 12:15pm: @ smiley08, Me also. What's up? I know there is never anyone in hardly but on the off chance I would like to see. I have been having a hard time getting in there and having discussion with anyone. I go the depression room, or chit chat. And I miss it (also ) :^(

Comment by Smiley08 on November 10, 2008 at 2:38am: i cant sign into ph :( i couldnt yesterday either. it keeps saying unknown error :(

Comment by Dotti Obert on October 30, 2008 at 11:25am: Hi, just wanted to say hi, and I hope everybody will have a pain free {ha ha} day.

Happy Halloween

Hugs, ~Dotti~

Comment by mich111 on September 30, 2008 at 4:27pm: Hi everyone
Hope you are all doing well..Miss you all
ly mich

Comment by cnttakenomore on September 28, 2008 at 2:37pm: ty ginner but information is wrong the twins r a boy and girl age 2 now they were 5 mos old when i got them and the brother is 4 the rest is correct though sweeite ty for that i just want ppl to know trueth so theres no mix up your a doll hugs CNT and family

Comment by Ginner on September 27, 2008 at 4:54pm: Hello all..
Cnt and her family need as many prayers as we can muster.
They have raised twin girls since birth age and they are now 5 yrs old. A relative has gotten custody of them, a long story I am quite sure, and Cnt is fighting to win back custody along with another 3 yr old sibling.
I felt compelled to help and felt you may too.
Cnt has another post here regarding what is happening.
Hugs and love
Blessings for Cnt and the kids
ginner

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Forum

THE SPOON THEORY 38 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LU...

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Alexis Rene 22 hours ago.

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr 1 day ago.

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 1 day ago.

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Update Dec. 1, 2009 by Sheldan Nidle

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.