LUPUS/Fibromyalgia and more: Support for all

MEMORY LANE

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A place to come and remember our friends/family (butterflies) that have passed. This is a memorial Group.....

Members: 81
Latest Activity: Nov 21

WELCOME TO MEMORY LANE

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A place to remember......... 3 Replies

Started by Butterfly Kimberly. Last reply by Kim Apr 27.

Pictures: Feel free to post any pictures 2 Replies

Started by Butterfly Kimberly. Last reply by Lori Apr 26.

Tara 6 Replies

Started by Butterfly Kimberly. Last reply by Amy Jill Mar 21.

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Comment by Michelle on November 14, 2009 at 1:54pm: Very thoughtful group.... so sorry I haven't been around, had a horrible summer, surgeries, flares..... enuff of that. I would love to keep my mom in prayer who passed away in Feb. 2004. Lord, I miss her so much. I wish I knew as much then as I do now, maybe things could have been different, like the new Lupus drug coming on the market, hopefully early 2010. My hearts go out to all who have lost loved ones........ Michelle

Comment by Kim on March 24, 2009 at 9:13pm: What was the video about? By the time I had a chance to watch it it had been removed because of a copyright claim.

Comment by sara on March 24, 2009 at 3:08pm: oh sorry kim just read my answer lol yes a discussion wud be fine sorry bad flare today .fed up wiv it all gawd love sara

Comment by Butterfly Kimberly on March 23, 2009 at 11:48pm: I meant that's what this GROUP is ....haha I gotta sleep...

Comment by Butterfly Kimberly on March 23, 2009 at 11:48pm: Sara, I'm confused....that's what this room is :) For all, not just lupus or fibro related. That's why I was wondering if there should be a "Discussion" added so names are easily read, eady to find. Do you understand what I mean?? LOL..I'm having bad brain fog...lol....I left a comment below about it :)
HUGS

Comment by sara on March 23, 2009 at 3:28pm: thats lovely mrs yankster so with how we all feel

Comment by MRS.YANKSTER on March 22, 2009 at 11:09pm

Comment by cnttakenomore on March 22, 2009 at 1:14pm: this is a beautiful thing to do

Comment by sara on March 19, 2009 at 8:01pm: kimberly maybe we shud start a new group not just for people who have died of lupus or fibro realted illness but for all the illnesses that are out there giving names of the loved ones to like a memory room or something what do others think

Comment by Dotti Obert on March 19, 2009 at 10:59am: I'm so sorry to hear about Laura and Michelle's husband. My thoughts and prayers are with them and the families. It's just hard to know what to say at a time like this except I'm so sorry.

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ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

My Hysterectomy and HRT 1 Reply

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr Nov 22.

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Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Lymphoma, or just the lupus??? 21 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

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Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

New Body Templates Coming Soon!

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Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.