BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Discussion Forum (17)

Featured Discussions
Butterfly Kimberly

THE SPOON THEORY

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OT...

Started by Butterfly Kimberly in MISCELLANEOUSLatest Reply

julie

My Book about Lupus is Published!!

Hi friends! For those of you who aren't yet aware, I had been working on my personal story about My Life With Lupus. I decided to turn it...

Started by julie in WRITING A BOOK? ALREADY WROTE ONE? POEMS TO BE PUBLISHED OR ARE ALREADY?Latest Reply

Categories Discussions Latest Activity

Butterfly Kimberly's ANNOUNCEMENTS

Check back here frequently for announcements from Butterfly Kimberly and the other moderators. (Sara, Kimber, Rentheadperson, & John A. "Dad Butterfly")

18 Oct 10
Reply by Dotti Obert

I'M IN NEED OF SUPPORT PLEASE!!

Post here if you are down, need an ear, want to vent, etc......related to anything....

107 Nov 12
Reply by Stacey Mommy to many

INTRODUCTIONS/PERSONAL STORIES

Post your introductions, stories, and personal updates here.

35 Nov 12
Reply by Stacey Mommy to many

DOCTORS: questions, experiences, do you know this doctor? Should I get a 2nd opinion??

Post anything related to a Doctor experience, questioning your doctor?, Do you know or have you heard of this Doctor in my area.........

15 Aug 23
Reply by Debra Highberger

MEDICAL QUESTIONS

Post your discussions related to anything medical (there will be other categories added as I go through all the Topics)

340 1 day ago
Reply by Donna J Farr

BLOOD WORK

Post your discussions related to Blood work, questions, results, what means what, etc........

8 Oct 14
Reply by Danielle McNeil

MEDICATIONS

Post here the medications you take daily. New medicine you may be trying, or just started, etc......

23 Oct 21
Reply by Niki

NATURAL REMEDIES, HOLISTIC, HERBAL, ETC

Post here about your trials (Or thinking of trying) with Natural Remedies, Holistic treatment, Herbal Remedies, etc......

19 Oct 22
The Cancer Cure Video that circled the globe in 31 minutes
by Sandy Medine

SKIN ~ RASHES, DISCOID LUPUS, ETC

Discussions about certain rashes, or Drug Induced Lupus and more.....

7 Aug 23
Reply by Debra Highberger

MEDICAL INSURANCE

Medicare A, B & D, and all other insurance discussions/questions

2 Oct 10
Reply by ReneM

AWARENESS WORK

Post all discussions about awareness efforts here. Events, walks, fundraising, etc...

41 Oct 19
Quantum Physicist reveals how to master “The Secret”!!download free e-book
by Sandy Medine

WRITING A BOOK? ALREADY WROTE ONE? POEMS TO BE PUBLISHED OR ARE ALREADY?

Post discussions here on your work, related to writing a book, books published that you wrote, poems, etc.

9 Sep 12
Another Book About Lupus Will Be Released in May
by Marilyn Celeste Morris

OTHER QUESTIONS

Have questions about something to do with your illness that you'd like answered? Post your questions here for other members to help you with!

18 Nov 14
Reply by Mary Castle

DO YOU LIVE NEAR ME?

Post here if you are looking for members that may live in your area!

12 Nov 14
Reply by Michelle

MISCELLANEOUS

All other discussions NOT related to illness(es) here.

48 1 day ago
Reply by Donna J Farr

GAMES, CONTESTS

Want to play? Post it here!!

2 Aug 29
30 Things About My Illness - Meme - Plus Prizes!
by Lisa Copen

LFA (Lupus Foundation of America) NOTICES/NEWSLETTERS

Periodical updated links from the LFA that will be added by John A. "Dad Butterfly" for anyone that's interested in new or updated information.

2 Apr 2
From the ALR Myspace bulletin: Making progress towards a cure for LUPUS
by Butterfly Kimberly

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Forum

Donna J Farr

Hello Everyone 2 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr 1 day ago.

Michelle

My Hysterectomy and HRT 1 Reply

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Donna J Farr 1 day ago.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Vee Marie

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle Nov 14.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

joy

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? Nov 13.

Roxanne

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

julie

Lymphoma, or just the lupus??? 21 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

Dotti Obert

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Dotti Obert

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

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