BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try and move. I know there's going to be pain, and I don't want to move. I just want to cry. My Dr. said that the pain med's I'm on now are what I'm supposed to take. Is there anyone that has anything better than Hydrocodone, and Percocect? I'd appreciate any help anyone could give me. Thanks ahead in advance.

Share

Reply to This

Replies to This Discussion

I am taking percocet and the pain patch fentenyl(which I heard is dangerous). The pain patch seems to help some tho. I use to be on both of the same meds you are on but they seem to have conflicting issues and after a while started hurting my kidneys and liver so I can't take them together anymore. Sorry you are in alot of pain and I hope you can find some comfort soon. Tina

Reply to This

I understand i feel the same today. I try not taking vicodine but today i had to. Do u have a facebook account

Reply to This

Hi,

Thanks for asking to be my friend! I also have chronic pain. I have RA and Lupus both. I was dx with Ra at 27 and SLE at 37. I am a disabled nurse. I had to stop working 5 yrs ago.

I have been on several pain meds over the past 5 yrs. I started with Vicodin and went to Oxycontin, then the Dduragesic patch with Percocett as my breakthrough med. When that stopped working after two years, I went on Kadian. I have not even had a dose change in over two years. It holds my pain for a good 9 hrs and then I have Vicodin for breakthrough. Kadian is a long acting Morphine but it doesn't make me goofy. In fact with my pain under control, I can think more clearly and actually get things done! I am on 200 mg twice a day which is a high dose, but that's what I needed going from the highest dose of Duragesic (100 mcg).

I have a very good doctor who believes that pain should be controlled , even if it means Morphine. I am so grateful for that. There are still days(and nights) when the pain is bad. The weather in the Northeast is brutal for these kinds of pain conditions! Once the temps level out I will be better. At night I have to sleep sitting up because my hips hurt. Sometimes, even with powerful pain meds, the pain wins. But overall, I wouldn't be able to do what I do without it!!

I hope you feel better. I can definitely say I know what you're feeling! You are not alone! :) Cheryl

Reply to This

HI DOTTI,
I WENT THROUGH THAT A COUPLE OF YEARS AGO! IT IS REALLY TOUGH AND FRUSTRATING TO NOT GET ANY RELIEF AND KNOW YOU HAVE THE REST OF THE DAY AHEAD OF YOU. IT MAKES ME CRY AND WANT TO JUST GET BACK IN BED. I HAVE TROUBLE METABOLIZING MEDS TO FAST. MY DR SENT ME TO A PAIN SPECIALIST, HE HAS HELPED ME ALOT OVER THE LAST COUPLE OF YEARS. THERE ARE DIFF PAIN MEDS THAT GO INTO YOUR SYSTEM DIFFERENT. SOME USE YOUR LIVER AND SOME DONT. HOPE IM MAKING SOME SENSE HERE. MY DR PUT ME ON THE FENTANYL POPS OR PATCHES. THE POPS ARE USED FOR CANCER PATIENTS USUALLY, BUT THEY GO IN THE CHEEK OF YOUR MOUTH AND THEY DISSOLVE AND GO STRAIGHT TO YOUR BLOOD STREAM. NOW IM NOT SAYING THAT IS WHAT YOU SHOULD GET, BUT THAT PARTICULAR ONE HAS HELPED ME. MAYBE YOU SHOULD SEEEK OUT A PAIN SPECIALIST. THEY AT LEAST UNDERSTAND THE PAIN, AND SEE OTHERS IN THE SAME BOAT. I HOPE THIS HELPS YOU SOME. FEEL BETTER, AND HOPE YOUR DAY IS A GOOD ONE TODAY!

PRAYERS,
DANIELLE

Reply to This

First of all I want to say I hope you are feeling better, but I know how that goes we all have good and bad days and good and bad pain moments. I want to say your dog is beautiful. My hybrid Wolf-Husky passed away last year and the hole in my heart missing him. He was wonderful and was better then any doctor for bedside manner :) ha . Bianca my little Pom is my pain medicine and she has been put through the tests. LOL Best wishes!

Reply to This

RSS

About

Badge

Loading…

Forum

Allison Abrusci

Plaquenil/Memory

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks n...

Started by Allison Abrusci in MEDICAL QUESTIONS 14 minutes ago.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -----------------------------...

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC 15 hours ago.

Niki

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio 1 day ago.

joy

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio 1 day ago.

Dotti Obert

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

julie

Lymphoma, or just the lupus??? 22 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Michelle

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 4 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Carla Giacoio Nov 30.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter...

Started by Amy Jill in MEDICATIONS Nov 24.

Donna J Farr

Hello Everyone 4 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mo...

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it poss...

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Roxanne

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

© 2009   Created by Butterfly Kimberly on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!