BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Hey all,
I think I may have experienced my first butterfly rash, but I was curious to hear what everyone else experiences when they get it. I had a recent flare that I'm just getting over, and one day my face on my cheeks and across my nose became warm and blushed. I have had lupus for over 4 years and never had this rash (though I've had other rashes). It lastest less than a day, and I also had a low-grade fever (that lastest about 2 weeks). Does this sound like the infamous "butterfly rash" or no? Thanks!
Kate

Share

Reply to This

Replies to This Discussion

I'm not an expert be any means I have only been dx'd since November but I think that is it! I have that on almost a daily basis. Some days worse then others. I'm interested in hearing if that is what everyone else thins too!! Hope your feeling better soon!!!

Reply to This

this is def it, thats one of the main things that set the docs on to diagnosing me, its not to bad it flares up then goes away, i get discoid lesions on my face which has left deep hair follical scarring over my nose and on my left cheek as long as this doesnt happen you will be ok, xxx

Reply to This

What does a discoid lesion look like? I have a question? I have the rash on my face that is on the cheeks and nose. It's always there and I also have the rash on my neck. Now when I was in the sun, under my lip it cause this round spot and it was red and I think it was the size of a dime or something like that. Then it kind of dried up and had skin that flaked off like a sunburn. But it stayed for awhile. Is that a discoid lesion?

Reply to This

Mine never goes all the way away but sometimes it does fade...for years I aonly had the rash on my arms and some round discoid lesions along my hairline.. now I have the butterfly,arms ,abd and anywhere else the sun peeks in on and sometiems it doesnt ahve to be the sun.. husg Mel

Reply to This

I started testing positive for Lupus just over 12 years ago and I can't remember a time since then that I haven't had that butterfly rash. Almost every picture I've ever been in I had it and it makes me look like I just ran in or something equally as embarrasing....

Just yesterday there was a huge pressure system going over and this was the first time that I had this kind of intense localized situation like you talk about. I've told the doctors about these things but this was the first time I sat there thinking OMGoodness - I just butterflied. I was really out of it all day, I could barely stay conscious. Thats what happens on flare days or at flare altitudes - for me between 2.5 and 10k feet.

For me it was a really intense heat that centered in my cheeks and nose area accompanied by an equally intense feeling of numbness that went from my eyes down into my lip area and from cheek to cheek.

Please avoid the sun!! IT causes flares and exacerbates skin symptoms! My dr actually ribbed me the other day for not using a hat or umbrella because my skin symptoms are ramping up with the small blood dots that grow into raised areas and are sooo painful. It happened in an area I keep covered too... and I stay in doors out of the light most of the time. =/

Take care ya'lls.
D4J

Reply to This

I have a rash on my face,on my check,to me its redespecially at night well
anyways,i don't need to wear blush,i'mgoing to the dr on14th this month.does any one have any thing like it
Hugs,Bernadette

Reply to This

RSS

Badge

Loading…

Discussion Forum

Kimber

wonderful chilli chees dip-very simple

1 large velvetta cheese stick 1 can rotel 1 can chilli Add all together in microwave bowl. Put in microwave and melt.

Started by Kimber Dec. 2, 2008.

Kimber

Potato Candy-Wonderful Christmas Candy

1 small potato 1 box white confectioners' sugar peanut butter Boil potato, mash while hot. Add sugar, roll out and spread peanut butter over all. Roll over to make a log. Cut in thin slices. You can…

Started by Kimber Dec. 2, 2008.

LORI

Cap'n Crunch Shake... ( Lowfat Ladies)

HG's Cravin' Cap'n Crunch Shake PER SERVING (entire shake): 182 calories, 3g fat, 245mg sodium, 35g carbs, 4g fiber, 18g sugars, 4g protein -- POINTS® value 3* Ingredients: 5 oz. Unsweetened Vanill…

Started by LORI Jun. 1, 2008.

ellen

Taco Casserole that is Yummy!

TACO CASSEROLE Crust: 8 oz of dry corn bread stuffing mix from a box 1 14 oz. can of creamed corn 1/2 Cup of water Mix together,,,place in bottom of a 9x13 pan sprayed with non-stick spray. BAKE at…

Started by ellen May. 19, 2008.

ellen

Bacon-Stuffed Mushrooms

Bacon-Stuffed Mushrooms Yield: approximately 4 dozen Preparation: 25 minutes Cook: 7 minutes Chill: 30 minutes Bake: 25 minutes 3 (8-ounce) packages fresh button mushrooms 1/4 cup unsalted butter 2…

Started by ellen May. 19, 2008.

ellen

Key Lime Pie , Easy

KEY LIME PIE • 3 egg yolks (whites not required) • 8 ounces of softened cream cheese • 4-5 ounces Key Lime Juice (more for tangier pie) If you don't have key lime juice, lime juice is A.O.K. :) • 14…

Started by ellen May. 19, 2008.

ellen

Lemon Meringue Pie

Lemon Meringue Pie (from my mom's Farm Journal's 1959 recipe book) She used often 1-1/4 cups sugar 3 tablespoons flour 3 tablespoons cornstarch 1/8 teaspoon salt 2 cups boiling water 3 egg yolks 2 ta…

Started by ellen May. 19, 2008.

Terri

Milky Way Cake

CAKE: 8 - 1 3/4 oz Milky Ways 3 sticks butter 2 cups sugar 4 eggs, well beaten 2 1/2 cups flour 1/4 tsp baking soda 1 1/4 cups buttermilk 1 tsp. vanilla 1 cup pecans, chopped Powdered sugar ICING: 2…

Started by Terri Mar. 28, 2008.

Terri

Italian Sausage Soup

This is THE BEST soup I have ever made and I make alot of different soups. Its really easy and the recipe doesn't need any adjusting! I left the spinach out, cause ewwww. I got it from allrecipes.com…

Started by Terri Jan. 27, 2008.

Bethangelbug

Another Superbowl recipe

Chili Dip: 8 oz cream cheese spread on bottom of 8x8 baking dish 1 can no beans hormel chili (any brand will do) spread over cream cheese 8 oz shredded cheddar cheese sprinkled on top put in 350 de…

Started by Bethangelbug Jan. 22, 2008.

Terri

Baked Pork Chops

Got this recipe from allrecipes.com. I made it last night and is was so good. My only adjustment was on the cooking time- pork chops do not need to cook for 1 1/2 hours. INGREDIENTS 6 pork chops 1 t…

Started by Terri Jan. 9, 2008.

Terri

Monster Cookies (Paula Dean) 2 Replies

3 eggs 1 1/4 cups packed light brown sugar 1 cup granulated sugar 1/2 teaspoon salt 1/2 teaspoon vanilla extract 1 (12-ounc) jar creamy peanut butter 1 stick butter, softened 1/2 cup multi-colored ch…

Started by Terri. Last reply by Harley Jan. 8, 2008.

Harley

Pumpkin Gooey Butter Cakes (Paula Deen)

Guys I tried this recipe for the first time in november and OMG!! They are the greatest thing I EVER put in my mouth!! I've tried the reg gooey butter cake recipe and also the toffee one, well I make…

Started by Harley Jan. 8, 2008.

Tricia Parciak

Pumpkin Granola Bars Recipe- from Fibro and Fatigue Today 1 Reply

Pumpkin Granola Bars Recipe Here is a recipe we found that is both good and good for you! These tasty granola bars do not have any sugar in them and are a nutritious desert for the holidays. Ingredi…

Started by Tricia Parciak. Last reply by Terri Dec. 18, 2007.

Discolisious

Kickin' Chocolate Chip cookies 1 Reply

INGREDIENTS 2 cups margarine (I use Earth Balance - one tub), softened and half melted 2 cups white sugar 2 cups packed brown sugar 2 teaspoons vanilla extract 1 teaspoon salt 2 teaspoons baking powd…

Tagged: amazing, chocolate, cookie, chip, vegan

Started by Discolisious. Last reply by Discolisious Dec. 17, 2007.

HEATHER

Homemade Carmels 1 Reply

I have looked for a recipe for homemade carmels and I can't find one. I searched all my cookbooks and looked for one online but am having a hard time finding one. My cousin can't find my aunts either…

Started by HEATHER. Last reply by Terri Dec. 15, 2007.

HEATHER

Favorite Christmas Cookie 2 Replies

I have 3 favorite Christmas cookies Carmel Cups, Gingersnaps, and Russian Teaballs. The first is Carmel Cups 3 1/2 cups flour 3 sticks oleo/butter 8 oz cream cheese 14 oz carmels 1/2 cup evaporated…

Started by HEATHER. Last reply by HEATHER Dec. 14, 2007.

Butterfly Kimberly

WOW 1 Reply

I DON'T KNOW HOW TO COOK VERY WELL, SO I HOPE I CAN GET SOME "EASY" IDEAS!!! THIS IS GREAT! I'M PLEASED TO SEE GROUPS STARTING UP! I CAN'T BELIEVE THE AMOUNT OF FORUM TOPICS, IT'S SOOO HARD TO KEEP U…

Tagged: lupus, sle, cooking, fibromyalgia, recipes

Started by Butterfly Kimberly. Last reply by Tricia Parciak Dec. 7, 2007.

Terri

Is there anything you're dying to have the recipe for?

If so, post a note here and I'm sure you will get some good responses!

Started by Terri Nov. 21, 2007.

Tricia Parciak

LEMON DELIGHT 1 Reply

13X9 Pan Bottom Layer 1&1/2 C. flour 1&1/2 sticks oleo 1 C. chopped nuts Mix all together (like pie crust) Press into pan. Bake at 370 deg. for 15/20 min. 2nd Layer 1&1/2 C. Cool Whip 1&…

Started by Tricia Parciak. Last reply by Terri Nov. 18, 2007.

© 2009   Created by Butterfly Kimberly on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!