BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

Hey all,
I think I may have experienced my first butterfly rash, but I was curious to hear what everyone else experiences when they get it. I had a recent flare that I'm just getting over, and one day my face on my cheeks and across my nose became warm and blushed. I have had lupus for over 4 years and never had this rash (though I've had other rashes). It lastest less than a day, and I also had a low-grade fever (that lastest about 2 weeks). Does this sound like the infamous "butterfly rash" or no? Thanks!
Kate

Share

Reply to This

Replies to This Discussion

I'm not an expert be any means I have only been dx'd since November but I think that is it! I have that on almost a daily basis. Some days worse then others. I'm interested in hearing if that is what everyone else thins too!! Hope your feeling better soon!!!

Reply to This

this is def it, thats one of the main things that set the docs on to diagnosing me, its not to bad it flares up then goes away, i get discoid lesions on my face which has left deep hair follical scarring over my nose and on my left cheek as long as this doesnt happen you will be ok, xxx

Reply to This

What does a discoid lesion look like? I have a question? I have the rash on my face that is on the cheeks and nose. It's always there and I also have the rash on my neck. Now when I was in the sun, under my lip it cause this round spot and it was red and I think it was the size of a dime or something like that. Then it kind of dried up and had skin that flaked off like a sunburn. But it stayed for awhile. Is that a discoid lesion?

Reply to This

Mine never goes all the way away but sometimes it does fade...for years I aonly had the rash on my arms and some round discoid lesions along my hairline.. now I have the butterfly,arms ,abd and anywhere else the sun peeks in on and sometiems it doesnt ahve to be the sun.. husg Mel

Reply to This

I started testing positive for Lupus just over 12 years ago and I can't remember a time since then that I haven't had that butterfly rash. Almost every picture I've ever been in I had it and it makes me look like I just ran in or something equally as embarrasing....

Just yesterday there was a huge pressure system going over and this was the first time that I had this kind of intense localized situation like you talk about. I've told the doctors about these things but this was the first time I sat there thinking OMGoodness - I just butterflied. I was really out of it all day, I could barely stay conscious. Thats what happens on flare days or at flare altitudes - for me between 2.5 and 10k feet.

For me it was a really intense heat that centered in my cheeks and nose area accompanied by an equally intense feeling of numbness that went from my eyes down into my lip area and from cheek to cheek.

Please avoid the sun!! IT causes flares and exacerbates skin symptoms! My dr actually ribbed me the other day for not using a hat or umbrella because my skin symptoms are ramping up with the small blood dots that grow into raised areas and are sooo painful. It happened in an area I keep covered too... and I stay in doors out of the light most of the time. =/

Take care ya'lls.
D4J

Reply to This

I have a rash on my face,on my check,to me its redespecially at night well
anyways,i don't need to wear blush,i'mgoing to the dr on14th this month.does any one have any thing like it
Hugs,Bernadette

Reply to This

RSS

About

Butterfly Kimberly Butterfly Kimberly created this social network on Ning.

Create your own social network!

Badge

Loading…

Forum

Vee Marie

Fibromyalgia & Disability Benefits? 8 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Mary Castle 14 hours ago.

Michelle

My Hysterectomy and HRT

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything...

Started by Michelle in MEDICAL QUESTIONS 15 hours ago.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle 16 hours ago.

joy

anyone with fibro living inyorkshire England

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have...

Started by joy in DO YOU LIVE NEAR ME? 1 day ago.

Roxanne

New Here 1 Reply

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Stacey Mommy to many Nov 12.

julie

Lymphoma, or just the lupus??? 21 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I w...

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Stacey Mommy to many Nov 12.

colsbutterflies

ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" Nov 9.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Niki

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

Amy Domestico

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Sandy Medine

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

Sandy Medine

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

Dotti Obert

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Dotti Obert

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

John A  "Dad Butterfly"

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.

Sandy Medine

Vigorous debate about health insurance reform 1 Reply

Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...

Tagged: insurance, reform, health, about, debate

Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.

© 2009   Created by Butterfly Kimberly on Ning.   Create Your Own Social Network

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!