Discoid Lupus Erythematosus

[Stacey [Pinkdrgfly]]

Has anyone with Discoid Lupus Erythematosus had a biopsy done of your head sores. A friend of mine told me to have the sores on my head biopsied. I've had these sores for years and they flare when feel really weak and sick. Dermatologist years ago never knew what they were. I think they told me it was psoriasis. I need to have mine biopsied but I don't know what doctor does it.

x0x0x
Stacey

[Kim Thrower]

I think you should have a Dermatologist biopsy them for DLE, they just scrape a little of it off the sores on your head and then look under a microscope. I was told after my 13 tubes of bloodwork, to get a skin biopsy of my face from my Dermatologist. If you mention to them that your Rheumie sent you for a DLE biopsy, they SHOULD know what you're talking about, if not, get the heck out of there and get a Dermie that will listen! That is my opinion though. I have a friend (Barb S.) on here that has that and the spots remain, they heal and then they itch her head and it's a vicious cycle that she goes through and she lost her hair permanently in those spots! I get these little red bumps all over my head, neck, chest, face and body. And they really pop out after a shower! I hope you find out soon what they are. Please take care and sending healing hugs, and friendship, Kim ~

[Bernadette Littlefield]

i have head sores i think mine come on around when i was my hair,i also have a rash on my cheek bones
and forhead,dr going to send me to a dermitogist

[Barb S.]

Hello Stacey and all,

I am new to this site and came accross this post right away. I must tell all of you that have this problem please don't wait to get something done. My Rhuemy had given me many creams, meds to help this, needless to say it did not work time after time. Thankfully I have an awesome Dr and he would give me sample after sample. He sent me to a wonderful dermatologist, yes without a doubt it was my cutaneous/discoid lupus flaring up in a big way. (I will try to explain, but I warn you its long but something you all should know) :o)

As far as my head it started as small little scores and then the burning, itch came, the small sores that I "thought" would go away on their own weren't, when I talked to my Doctor he checked a few of them and said he's blah blah cream lets try it, STAY OUT OF THE SUN! (I'm an outside person, love to be out with the birds, breeze, my gardens, etc.) Yes, I did wear hats until they would be so hot or anoying and fall off when I bent over, etc. In time the sores became bigger and nothing was helping, I didn't want to go to another doctor even though my Rhuemy would ask and order me to go to the dermatologist, so him being the kind caring doctor that he is left the room and came back with an appt for me to her office the following week. A couple of days later the burning, stinging, was almost unbearable.....So I called the number and they took me right in. By then I had half dollar raw oozing sores with NO hair at all in those spots, also I want to mention my ear was so tender and could hardly wear my glasses.......The dermatologist took one look and then said oh my this is bad.....with that I started crying (I've had alot to deal with folks and enough is enough sometime that it takes me down) She wanted pictures I said sure but only if I could see them too since it is my head and never got a look at them. She then left the room and came back and said she had just gotten off the phone with my rhuemy and I MUST stay on my imuran (this replaced my methotreate) I also was given a cream VERY VERY PRICEY CREAM called clobex. With the cream and help with good ol' predisone things started to feel better...........Since then I have had to use the clobex alot......it cannot be used every day or every week you will have to listen to your doctor ok. But I now have many bald spots that will never get hair again and trust me its bad enough that I no longer have long hair to pull back because people would say hey you going bald girl (NOT funny!!)

PLEASE don't wait, get to the doctor and MAKE them listen to you! I do hope my experence helped to push you to not wait..........

I hope to meet many wonderful lupie friends, I know I myself can never have enough friendships to share the good, bad and even the ugly stuff of this crazy disease.

Have a great week!!
Barb

[clarice young]

hello barbra . my name is clarice. i'm also a new member. i know just what your feeling like at the moment! i've had this same happening to myself.i've had sle also dle for 42years. also my hair has falling out .[hardly any left now ] its horrible feeling when you need to go somewhere. and everyone is staring at you .[not very nice at all] but yes barbra i know what your going through. it would be lovley to keep intought.! you take care for now bye clarice