BUTTERFLIES AMONG US

LUPUS/Fibromyalgia and more: Support for all

LUPIEBIN

LUPIEBIN's Discussions (33)

Discussions Replied To (29) Replies Latest Activity
julie

"JULIE I AM SOOOO HAPPY!!! THANK YOU!!! I thought it was wondrful when you wrote your…"

LUPIEBIN replied Jun 25 to First television interview: FOX 17 NEWS: LUPUS AWARENESS!!

6 Aug 13
Reply by Melinda Tucker
Geoff Thomas

"Hi Geoff, I just plan on doing more Lupus awareness in the next few weeks (posters,…"

LUPIEBIN replied Apr 19 to World Lupus Day - May 10

5 Apr 23
Reply by Geoff Thomas
Kiara

"Yes, it could take weeks to months to feel the benfits of it..as for it being a "coi…"

LUPIEBIN replied Mar 23 to Going to start on metrotexate or how ever its spelled! (lol)

28 May 1
Reply by Kim Thrower
Kiara

"I did forget to mention one thing I noticed with using Methotrexate. Hair loss, sorr…"

LUPIEBIN replied Mar 21 to Going to start on metrotexate or how ever its spelled! (lol)

28 May 1
Reply by Kim Thrower
missnadia

"Hi Nadia, This is a wonderful idea! I support you 100%, if I can be of any use to y…"

LUPIEBIN replied Mar 21 to help me make your voice heard!

27 Mar 30
Reply by Cristina_V
jacqueline

"Awww, Jacqui..this is SAD! I can't believe they feel that way! Sure, most people loo…"

LUPIEBIN replied Mar 21 to Hi i'm new here

11 Apr 3
Reply by Jacquie
Melinda Tucker

"Hi Melinda, I don't have Sjogrens, but know many that do. I wanted to stop by and re…"

LUPIEBIN replied Mar 20 to Sjogrens..symptons and meds

7 Apr 5
Reply by Melinda Tucker
Felicia

"Hello Felicia! And welcome! Don't doubt yourself, you may be much more support in sh…"

LUPIEBIN replied Mar 20 to Hi! Newbie here.

2 Mar 20
Reply by Jenn
jacqueline

"Hello Jacqui ! And WELCOME, may you find many friends here and so much support! Some…"

LUPIEBIN replied Mar 20 to Hi i'm new here

11 Apr 3
Reply by Jacquie
Kiara

"Leslie I pray this DOES work well for you! I know everyone will have their own exper…"

LUPIEBIN replied Mar 20 to Going to start on metrotexate or how ever its spelled! (lol)

28 May 1
Reply by Kim Thrower
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colsbutterflies

ANYBODY LIVING IN FLORIDA?? 7 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS ON…

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 12 hours ago.

julie

Lymphoma, or just the lupus??? 23 Replies

Hi everyone! I recently saw my doctor who told me my lupus was flaring. But because my doc also noticed a swollen lymph node on my neck and I had some symptoms such as night sweats and itching, I was…

Tagged: lymphoma, Lupus

Started by julie in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by colsbutterflies 1 day ago.

Butterfly Kimberly

THE SPOON THEORY 39 Replies

ALL OF US SUFFERING FROM INVISIBLE ILLNESS AND DISABILITIES MUST READ THIS! IT IS AN EXCELLENT WAY TO DESCRIBE WHAT WE GO THROUGH TO OTHER PEOPLE WHO DON'T UNDERSTAND US. THIS GIRL SPOKE ABOUT LUPU…

Tagged: lupus, theory, don't, sick, spoons

Started by Butterfly Kimberly in MISCELLANEOUS. Last reply by Donna J Farr Dec 14.

Donna J Farr

Hello Everyone 6 Replies

My Back Surgery has been post poned, so I really don't know when they rescdudle again My Headake are getting worse so it will be a while before they reschdudle. I have to see my family Doctor on Mond…

Started by Donna J Farr in MISCELLANEOUS. Last reply by Donna J Farr Dec 9.

Allison Abrusci

Plaquenil/Memory 3 Replies

I have a few questions for my fellow Lupie's. I was diagnosed with Lupus at the age of 16 but it didn't become active with SLE until August (I'm 25 now). I have been on Plaquenil or about 6 weeks now…

Started by Allison Abrusci in MEDICAL QUESTIONS. Last reply by Tina Romine Dec 8.

Roxanne

New Here 2 Replies

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blood…

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES. Last reply by Donna J Farr Dec 3.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Sandy Medine

Update Dec. 1, 2009 by Sheldan Nidle

-------------------------------------------------- Dec. 1, 2009 by Sheldan Nidle for the Spiritual Hierarchy and the Galactic Federation 3 Chicchan, 8 Yaxk'in, 5 Caban -------------------------------…

Tagged: Sheldan, Nidle, by, 2009, Dec.

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Dec 2.

Niki

Scared about Cytoxan 3 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. Do…

Started by Niki in MEDICATIONS. Last reply by Carla Giacoio Dec 1.

joy

anyone with fibro living inyorkshire England 1 Reply

Hi my name is Joy I am 46yrs old I live in Barnsley sth Yorkshire, I was diagnosed with Fibro and CFS 2 years ago and searched many sites and places for other people with the same condition, I have h…

Started by joy in DO YOU LIVE NEAR ME?. Last reply by Carla Giacoio Dec 1.

Dotti Obert

In Severe Pain 5 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try a…

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Shelly Binkley Nov 30.

Michelle

My Hysterectomy and HRT 2 Replies

I have Lupus, MCT, Sjogrens syndrome and low b/p, my list does grow. I recently had a total abdominal hysterctomy. I was loaded with endometriosis, I no longer has my ovaries, cervix and everything f…

Started by Michelle in MEDICAL QUESTIONS. Last reply by Shelly Binkley Nov 30.

Kiara

Has anybody been diagnosed with lupus with a negative ANA? 34 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Shelly Binkley Nov 30.

Vee Marie

Fibromyalgia & Disability Benefits? 10 Replies

Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia is…

Tagged: input, info, advice, ssa, disability

Started by Vee Marie in OTHER QUESTIONS. Last reply by Shelly Binkley Nov 30.

Amy Jill

ANYONE HERE EVERY BEEN ON XYREM / SODIUM OXYBATE

Hello, I was just wondering if anybody here has tried Sodium Oxybate or Xyrem for sleep. I have been going back and forth with this for over a year. But last week when I got my pharmacy newsletter i…

Started by Amy Jill in MEDICATIONS Nov 24.

Sandy Medine

SOMETHING WONDERFUL IS ABOUT TO HAPPEN

August 28 , 2008 SOMETHING WONDERFUL IS ABOUT TO HAPPEN The What's Up On Planet Earth? energy alerts are offered several times per month by viewing them here. Your financial support makes it possib…

Tagged: TO, HAPPEN, ABOUT, IS, WONDERFUL

Started by Sandy Medine in MISCELLANEOUS Nov 17.

Joey

Need Buddies in OHIO 1 Reply

I live near Cleveland in Ohio.... anyone out there in the same area?? I have no friends with autoimmune diseases that live near me! :( Thanks, Joey

Tagged: ohio

Started by Joey in DO YOU LIVE NEAR ME?. Last reply by Michelle Nov 14.

Donna J Farr

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray evert…

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr Nov 9.

Sandy Medine

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately b…

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

Sandy Medine

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

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