BUTTERFLIES AMONG US - LUPUS/Fibromyalgia and more: Support for all

LUPUS/Fibromyalgia and more: Support for all

Autoimmune: Lupus, Fibromyalgia, CFS, Migraines, MS, and more. This site is NOT ONLY for people with illness, SUPPORTERS, are WELCOME!

CONTENT/CONDUCT ON THIS SITE

I AM ASKING THAT EVERY MEMBER HERE TO PLEASE KEEP YOUR COMMENTS CLEAN, NO OFFENSIVE LANGUAGE TO OTHER MEMBERS ON COMMENTS OR FORUMS. WE ARE ALL HERE TO SUPPORT EACH OTHER, TO BECOME FRIENDS WITH ONE ANOTHER, AND TO GIVE ADVICE, ETC. I ALSO ASK THAT YOU PLEASE KEEP GRAPHIC COMMENTS CLEAN AS TO NOT OFFEND OTHER MEMBERS. IF I BECOME AWARE OF ANY OFFENSIVE BEHAVIOR ON THIS SITE, YOU WILL BE NOTIFIED ONCE, AND IF IT HAPPENS AGAIN, YOU WILL BE ASKED TO LEAVE THIS SITE. THANK YOU FOR YOUR COOPERATION.

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ANNOUNCEMENT!! & UPDATES!!

HEY EVERYONE! I 1ST, I WANT TO THANK EACH AND EVERYONE OF YOU FOR JOINING AND MAKING THIS SITE SUCH A SUCCESS! I'M VERY PLEASED AND EXCITED WITH THE OUTCOME, THE SUPPORT, POSITIVE ATTITUDES AND FEEDBACK, FRIENDS, AND FAMILY WE HAVE ALL CREATED HERE!

PLEASE TAKE A LOOK AROUND THE MAIN PAGE FOR MOST RECENT FORUM TOPICS ON THE RIGHT (OR REPLIES) AND BLOGS ON THE LEFT! AND FOR ANY NEW INFO I MIGHT NEED TO POST. THANKS!

HOPE EVERYONE IS DOING WELL, AND IF NOT HOPE YOU FEEL BETTER VERY SOON. THOUGHTS AND PRAYERS ARE WITH YOU ALL, EVERY DAY!
THANKS, LOTS OF HUGS TO ALL ~ BUTTERFLY KIMBERLY

Blog Posts

H1N1 (Swine) Flu Advisory for People with Lupus

The LFA is consulting with the Centers for Disease Control and Prevention (CDC), as well as our National Medical-Scientific Advisory Council, on the possible impact of this virus on people with lupus. The Lupus Foundation of America (LFA) is aware of the concern that people with lupus may have about the recent outbreak of the H1N1 (Swine) Flu.

Get the latest update on H… Continue

Posted by William Davis on November 9, 2009 at 8:22am

MicroRNA’s Role in Interferon’s Contribution to Inflammation

Interferons (IFNs) are proteins produced by immune cells when the immune system is activated. They send different instructions to cells depending on the needs of the immune response; this can lead to cells making certain inflammatory proteins. IFNs communicate with the cells by linking up with receptor proteins along the cell surface, the way a key fits into a lock. This action sends a signal into the cell that eventually either turns on or turns off the process we recognize as inflammation.

Th… Continue

Posted by William Davis on November 6, 2009 at 8:19am

LFA's "Social Wellness ... and Helping Others Understand Lupus" Webchat to be Held Wednesday, November 11 at 3 p.m. Eastern

Reminder -- the Lupus Foundation of America's webchat is next Wednesday afternoon, November 11, at 3 p.m. Eastern Time.

The LFA welcomes Ms. Cindy Coney, who will serve as the guest expert for the "Social Wellness, Making Connections and Helping Others Understand What You Go through with Lupus" webchat.

This is your opportunity to ask questions and learn… Continue

Posted by William Davis on November 4, 2009 at 9:14am

Promise of a New Lupus Treatment is a Groundbreaking Achievement

BENLYSTA™ Successful in Second Pivotal Clinical Trial

Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) today announced positive results from BLISS-76, the second of two large-scale phase III clinical trials of BENLYSTA™ (belimumab) for treating systemic lupus. A full presentation of results from BLISS-52 was recently shared at the 73rd Annual Scientific meeting of the American College of Rheumatology. Both trials succeeded in meeting their primary endpoints, which should make BENLYS… Continue

Posted by William Davis on November 2, 2009 at 8:18am

Nominate the Lupus Foundation of America for “Best Non-Profit Use of Social Media” in Mashable's 2009 Open Web Awards

Mashable, in partnership with MOTOBLUR, is conducting the 3rd Annual Open Web Awards: Social Media Edition. The 2009 Open Web Awards is Mashable’s international online voting competition that covers major innovations in web technology and social media.

The Lupus Foundation of America (LFA) is participating, and would like to take the category of “Best Non-Profit Use of Social Media.” We need you and your friends and family to help us win!

How You Can Help

Once a day, every day between… Continue

Posted by William Davis on October 28, 2009 at 12:47pm

Factors That Influence Pregnancy Outcomes in Women with Lupus

Although women with lupus used to be advised to avoid getting pregnant, out of fear of complications for the mother, the baby, or both, a better understanding of the complications of lupus and improved management of lupus pregnancies have resulted in improved outcomes.

Today at least 85 percent of lupus pregnancies result in live births.

However, doctors still advise women who have active lupus kidney disease (lupus nephritis, or LN) not to get pregnant until their disease has been inactive fo… Continue

Posted by William Davis on October 26, 2009 at 7:56am

THANK GOD 4 WEEKENDS!!!

… Continue

Posted by GoldenLadyNiecy on October 25, 2009 at 1:30am

Help the LFA Win $50,000 via America’s Giving Challenge

The Lupus Foundation of America (LFA) is participating in America’s Giving Challenge ... and we need you and your friends and family to help us win!

Winning $50,000 would mean so much to LFA and the people we support. That amount would fund a national research grant seeking to find the causes and a cure for lupus. As you know, the FDA has not approved a new drug for lupus in more than 50 years!

Or, if LFA won three daily challenges then we could fund an additional Gina M. Finzi Memorial Studen… Continue

Posted by William Davis on October 21, 2009 at 4:08pm

living with stress

I have been under so much stress about alot of things thats going on in my life and most of it is now so good . eveyone around me has been very sick and i did get a flu shot but i sure do hope it works im afriad of getting very sick and not being able to do anything. I have been feeling pretty good for the last few days but i have been very tired and absolutly no appitite i dont want to eat but i have too because i am hypoglycemic and i cant let my sugar drop so i eat just enough to take care of… Continue

Posted by cris on October 21, 2009 at 11:21am

RAINBOW OF LOVE

RAINBOW OF LOVE

… Continue

Posted by GoldenLadyNiecy on October 20, 2009 at 1:06pm

GOD-Please take some of this pain from me

God please take some of this pain from me. My legs are swollen as you can see. My knees won't hardly hold me up anymore. Atleast I have the angels you have sent me to hold me up so I can walk. Lord, as you know I have ulcers popping up everywhere on my feet and legs from that Lupus. I try so very hard God to keep the devil in his place and away from me and my family but sometimes that is hard to do too with all the drama and hurt in this world. Whatever I have or might have done today dear God,… Continue

Posted by Tina Romine on October 17, 2009 at 2:08am — 1 Comment

Seeking People with Lupus to Participate in a Survey

Between October 19 – November 9, BioVid Corp. -- a market research firm – is conducting a survey. Specifically, they want to survey people living with lupus about their experiences with, and attitudes toward, the management of some health conditions.

Anyone living in the United States is eligible to participate. BioVid is looking for up to 100 people to take part in this survey, which will take about 45 minutes to complete. For those selected to participate in the survey, there’s a $75 stipend.… Continue

Posted by William Davis on October 16, 2009 at 8:25am — 2 Comments

rainy day

Its been a rainy day and i am having trouble breathing my lungs and ribs are hurting and acheing my legs are so stiff its hard to get up the stairs. I have not had any appitite for the last few days and i dont have any energy to think about what to cook.
I was watching my grandson today but had to have my daugter pick him up early because of the pain im in and the fatigue is really bad too. Its hard to run after a 12mo old when you are too tired to get up and get myself a drink

Posted by cris on October 14, 2009 at 7:17pm

Guest Blogger Amanda Davenport Dishes on "Hell's Kitchen" -- Week 9

Hello all once again!

Now this week was a pretty exciting week. Several of us from this season got together and watched the show while having some good food and drinks! We had a great evening and I so look forward to doing it again soon!!

Ok. Back to this week's episode. This week's challenge was a tough one. Cooking a vegetarian dish for 80 in one hour is a lot. And then on top of that finding out that your 80 guests are children who don't like vegetables! Wow -what a way to start the day!

I… Continue

Posted by William Davis on October 13, 2009 at 8:31am

Will This Pain Ever Stop???

My brother, James was here 2 weeks on Sunday. He seems to like it here which I'm grateful for. He couldn't live on his own anymore, and he had to give up his house which he had lived in for 30 years. I was very nervous he wouldn't be able to feel comfortable here.

My pain has been bad, but not as bad as it is today. I fell last week in the house and it took me a while to get up off the floor. I just hurt everywhere, and the pain meds really don't seem to be helping very much. I just wish for a… Continue

Posted by Dotti Obert on October 12, 2009 at 4:03pm — 1 Comment

Chana Garcia, an ovarian cancer survivor, who works for AOL Black Voices

Chana Garcia, an ovarian cancer survivor, who works for AOL Black Voices, The Root.com, and Essence, talks about her blog, black gyrl cancer slayer, and Dr. Christina S. Chu talks about clinical trials for the evaluation of novel chemotherapies and immunotherapies for gynecologic malignancies. http://budurl.com/cancerslayer1009

Posted by Amy Domestico on October 10, 2009 at 2:23pm

Not Here For A While Due To Pain

I haven't been on here in a long time due to the pain, and plus going on the computer was a problem with my eyes.
I'm so tired of the pain! It seems like the pain never stops. I never get a remission from the pain. I try to say, "tomorrow will be a better day". The fog is driving me nuts too. I keep forgetting things. The fatigue is bad also. I get tired so easily also, which I know happens with fibro. I haven't been sleeping too well, and then I end up waking up around 3am, with pain and I then… Continue

Posted by Dotti Obert on October 9, 2009 at 5:34pm — 1 Comment

Store Spotlight: "Coping with Lupus" by Dr. Robert H. Phillips

Written in a warm, engaging style, Coping with Lupus is a guide that will help you cope with the challenges of life with lupus.

Dr. Robert H. Phillips, a highly experienced psychologist and founder of The Center for Coping in Long Island, NY, wrote Coping with Lupus. The book offers useful information and practical coping strategies for dealing with the psychological aspects of chronic health problems, with chapters on coping with emotions, coping with others, and living with a sp… Continue

Posted by William Davis on October 9, 2009 at 8:04am

LUPUS MIXED WITH RSD makes pain twice as bad

On Monday morning when I awoke, I couldn't hardly move to get out of bed. The pain from the Lupus and RSD was so bad that I was crying. After a little while I struggled to get out of bed and made it to my computer chair but then as I sat there the pain got really intense and I was screaming and shakeing like I was being electrocuted, my whole body hurt. I am on the pain patch and strong pain pills and this should not be happening to me this bad. This was so bad it was worse then having a baby. I… Continue

Posted by Tina Romine on October 9, 2009 at 3:43am — 1 Comment

LFA's "Work Disability / SSDI / Health Insurance" Webchat to be Held Wednesday, October 14 at 3 p.m. Eastern

Reminder -- the Lupus Foundation of America's Webchat is next Wednesday afternoon, October 14, at 3 p.m. Eastern Time.

The LFA welcomes Ms. Sheri Abrams, who will serve as the guest expert for the Work Disability / SSDI / Health Insurance webchat.

This is your opportunity to ask questions and learn from an expert. Ms. Abrams is a Fairfax, Virginia, Attor… Continue

Posted by William Davis on October 7, 2009 at 8:16am

Latest Activity

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But I LOOK Good! and Art Kaminski are now friends

10 hours ago

joy updated their profile

13 hours ago

joy joined Zabac's group

For The Love of Fibro

This is a group for Fibro Sufferers that just want to be positive and give loving thoughts to each other. Also just talk of bad days and how we all get through them.

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joy is now a member of BUTTERFLIES AMONG US

Welcome Them!

13 hours ago

William Davis added a blog post

H1N1 (Swine) Flu Advisory for People with Lupus

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Donna J Farr DonnaJFarr328@lupusbutterflies.ning.com

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PLEASE READ ABOUT CONTENT ON THIS SITE ON THE LEFT. THANK YOU!

PLEASE CHECK THE FORUM TOPIC BUTTERFLY KIMBERLY ANNOUNCEMENTS FOR THE LATEST...THANKS!
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FLYERS AVAILABLE ABOUT LUPUS, THANKS TO ALI JORDAN! GREAT JOB! THIS IS A TRI-FOLD FLYER, AVAILABLE THROUGH THE FORUM!
Please watch the video below and help Howie Dorough from Backstreet Boys spread the word about the Howie Pendant! He lost his sister due to Lupus complications some years back. Listen about the meaning of the symbol, it's awesome! Post this on your pages, repost this bulletin.. anything you can think of!

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NEW NEWS!! MAY IS NOW LUPUS AWARENESS MONTH! SEE FORUM TOPIC ON THE NEWSLETTER! For additional information about this global effort to combat lupus, visit the World Lupus Day website at www. worldlupusday. org.
FIBROMYALGIA AWARENESS DAY IS MAY 12TH!!

PLEASE TAKE A MOMENT TO VISIT THE TAB CALLED EVENTS, YOU CAN NOW GO AND ENTER YOUR OWN EVENTS SUCH AS BIRTHDAYS, ANNIVERSARIES, ETC.!

RSS FEED! UP TO DATE INFO!!

PLEASE VISIT MAIA'S PAGE, SHE HAS AN RSS FEED ON LOTS AND LOTS OF LUPUS & RELATED TOPICS ON THE LEFT SIDE OF HER PAGE. VERY INTERESTING STUFF FOR EVERYONE! EVERYTIME THERE IS SOMETHING NEW, IT'S POSTED, PLEASE VISIT!

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WELCOME TO ALL! NEW ANNOUNCEMENTS/MSGS ON THE LEFT AND RIGHT UPDATED PERIODICALLY ALONG WITH FORUM TOPICS AND BLOGS. PERSONAL BLOGS ARE ON THE LEFT. FORUM TOPICS ARE ON THE RIGHT. FORUM TOPICS AND BLOGS WILL BE POSTED BY LATEST REPLY OR ENTRY. IF YOU KNOW OF A FUNDRAISER, WALK, ETC., COMING UP, PLEASE CLICK ON THE "EVENTS" TAB AT THE TOP AND ENTER YOUR INFO!

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MESSAGE UPDATE

The easiest way to get to me....click on my picture on this right side of the column that states I started the Social Network or anywhere you see my picture!

RECIEVING TOO MANY EMAILS AT THE EMAIL ADDRESS YOU SIGNED UP WITH? I would like to mention that you can chose what emails you recieve. Go to "My Settings" on the right side of the page. From there, you can control what emails you want to receive. Please be sure to CHECK the box to RECIEVE BROADCAST MESSAGES TO THIS NETWORK, as sometimes I may have to send out a mass mailing to the group. I really appreciate it :)

If you are experiencing any problems with the site, please send me a message directly or report a problem and I will get back to you as soon as I can. Thank you all! HUGS ~Butterfly Kimberly

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ANYBODY LIVING IN FLORIDA?? 3 Replies

I AM SERIOUSLY THINKING OF MOVING TO FLORIDA FROM PHILLY. THIS WILL HELP MY FINANCIAL AND EMOTIONAL STRESS GREATLY. SO I WAS WONDERING, IF WE HAVE ANY FLORIDA LUPIES, AND HOW THE CLIMATE THERE IS O...

Started by colsbutterflies in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by John A "Dad Butterfly" 1 day ago.

Surgery/Nov 10th 2 Replies

I am so afraid so afraid of this surgery, It is surgery on my back. I have degenerated disc disease in L4 and L5 is just about nothing there. The surgery will take 8 to 10 hours and I just pray eve...

Started by Donna J Farr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Donna J Farr 1 day ago.

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles

The 12 Principles of Attitudinal Healing ~ by Dr. Gerald Jampolsky based on A Course In Miracles ~ a way to see differently ~ not a quick fix but a process to apply to any situation that ultimately...

Tagged: on, based, Jampolsky, A, Course

Started by Sandy Medine in MISCELLANEOUS Oct 31.

The Cancer Cure Video that circled the globe in 31 minutes

Go watch the video by going to the following webpage: http://tracking.ilinkmd.com/Partner/14774

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

The Cancer Cure Video that circled the globe in 31 minutes

The Cancer Cure Video that circled the globe in 31 minutes by Danica Collins t's not everyday that I find a good reason to send an e-mail to my entire address list. Today, I sense a moral oblig...

Tagged: globe, in, 31, minutes, the

Started by Sandy Medine in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC Oct 22.

Scared about Cytoxan 2 Replies

I had a kidney biopsy last Friday. My Dr called today saying he was going to take me off the Imuran and start Cytoxan treatment for 2 months. I've been reading up on this med and it has me scared. ...

Started by Niki in MEDICATIONS. Last reply by Niki Oct 21.

New Here

Hi, my name is Roxanne I'm 21 years old. I was diagnosed with Lupus when I was 20. I also have another Autoimmune Disease Antiphospholipid Antibody Syndrome. I have Endometrosis, MTHFR Disease (blo...

Started by Roxanne in INTRODUCTIONS/PERSONAL STORIES Oct 20.

Finding a Cure

Your Lid Matters, with Yoplait and Dr. Funk The Wii Mommies would like to extend their welcome to Dr.Kristi Funk, a board-certified surgical breast specialist and an expert in minimally-invasive di...

Started by Amy Domestico in I'M IN NEED OF SUPPORT PLEASE!! Oct 20.

Quantum Physicist reveals how to master “The Secret”!!download free e-book

http://www.believeandmanifest.com/1/bam/index.php? “First Time I Used This Method, It Changed My Life Forever" Quantum Physicist reveals how to master “The Secret”!! From: Dr. Eric Amidi, Quant...

Tagged: http://www.believeandmanife...

Started by Sandy Medine in AWARENESS WORK Oct 19.

New Body Templates Coming Soon!

-------------------------------------------------- Beacons of Light ~ Re-minders from Home are now translated into 24 languages each month. Click on a flag below or see the Translation Page> -...

Tagged: Soon!, LIGHTWORKERS.COM, Coming, Templates, Body

Started by Sandy Medine in MISCELLANEOUS Oct 18.

In Severe Pain 4 Replies

I got up this morning, and the pain was so severe. I haven't felt pain so bad in a long time. I took my meds, and they didn't seem to make a difference at all. This makes me so tired to have to try...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Danielle McNeil Oct 18.

Has anybody been diagnosed with lupus with a negative ANA? 32 Replies

I've only met 2 persons, and obviously myself!!! Hope to read from you guys!!!!

Started by Kiara in BLOOD WORK. Last reply by Danielle McNeil Oct 14.

Lots of Pain

On the 25th of September I flew down to Florida with my youngest son to pick my up my brother, and bring him home to live with my husband and myself. He was on the job and on a ladder that was 30' ...

Started by Dotti Obert in I'M IN NEED OF SUPPORT PLEASE!! Oct 11.

Butterfly Kimberly Returning Soon 2 Replies

Hi everyone, Kimberly has been very busy over the past few months and had no access to her computer. She has moved from Boston back to Florida and her family. She just moved into a home and is try...

Started by John A "Dad Butterfly" in Butterfly Kimberly's ANNOUNCEMENTS. Last reply by Dotti Obert Oct 10.

Vigorous debate about health insurance reform 1 Reply

Dear Friend, This is probably one of the longest emails I’ve ever sent, but it could be the most important. Across the country we are seeing vigorous debate about health insurance reform. Unfortu...

Tagged: insurance, reform, health, about, debate

Started by Sandy Medine in MEDICAL INSURANCE. Last reply by ReneM Oct 10.

I need some advice. 2 Replies

I am new to this site and this is my first time posting. My name is Chelae and I was diagnosed with SLE and Lupus Nephritis in October 2008. I spent 9 weeks in the hospital with complications from ...

Started by Chelae in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Jayne Oct 4.

HAS ANY ONE HAD HIGH CALCIUM AND HIGH VITAMIN A LEVELS?

MY LEVELS ARE VERY HIGH AND MY DR'S CANT FIGURE OUT WHERE ITS COMING FROM. ONE DR SAID I WOULD HAVE TO EAT POLAR BEAR LIVER EVERYDAY TO GET A VITAMIN A LEVEL THAT HIGH! HELP!

Started by Danielle McNeil in I'M IN NEED OF SUPPORT PLEASE!! Oct 3.

A Triple Threat: Lupus, Heart Disease, and Osteoporosis 1 Reply

A Triple Threat: Lupus, Heart Disease, and Osteoporosis Reviewed by QualityHealth's Medical Advisory Board There's ample evidence showing that lupus increases a woman's risk of heart disease by fiv...

Tagged: Disease, and, Osteoporosis, Heart, Lupus

Started by Sandy Medine in MISCELLANEOUS. Last reply by GoldenLadyNiecy Oct 3.

Jesus the Great Fixer...

Its seem thier is so much bad news with all my dear friend latley I just want everyone to know Iam thinking of you all and you are all in my Prayers Many blessings You may be knocked down with you...

Started by MRS.YANKSTER in I'M IN NEED OF SUPPORT PLEASE!! Sep 30.

Dealing With Anger 17 Replies

A lot of things happen to bring out negative emotions in a person. Knowledge of an illness in oneself or a loved one, loss of a relationship and a host of other things that will cause someone to be...

Tagged: anger, aches, pain, body

Started by feeling2008 in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Jenny (G'ma) Sep 28.