LUPUS/Fibromyalgia and more: Support for all
Autoimmune: Lupus, Fibromyalgia, CFS, Migraines, MS, and more. This site is NOT ONLY for people with illness, SUPPORTERS, are WELCOME!
CONTENT/CONDUCT ON THIS SITE
Members
Music
ANNOUNCEMENT!! & UPDATES!!
PLEASE TAKE A LOOK AROUND THE MAIN PAGE FOR MOST RECENT FORUM TOPICS ON THE RIGHT (OR REPLIES) AND BLOGS ON THE LEFT! AND FOR ANY NEW INFO I MIGHT NEED TO POST. THANKS!
HOPE EVERYONE IS DOING WELL, AND IF NOT HOPE YOU FEEL BETTER VERY SOON. THOUGHTS AND PRAYERS ARE WITH YOU ALL, EVERY DAY!
THANKS, LOTS OF HUGS TO ALL ~ BUTTERFLY KIMBERLY
Blog Posts
LFA's "Your Skin & Lupus" Webchat to be Held Wednesday, July 15 at 3 p.m. Eastern
The LFA welcomes Dr. Andrew Franks, who will serve as the guest expert for the Your Skin & Lupus webchat.
This is your opportunity to ask questions and learn from a lupus expert. Dr. Franks is Clinical Professor of Dermatology and the D… Continue
Posted by William Davis on July 8, 2009 at 9:38am
Lupus Blog Spotlight: 710.0: A Life With Lupus
Let's jump back into things. It's been a while since I did a lupus blog spotlight, so I thought I would this morning.
I would like to share a lupus blog with you. It is called 710.0: A Life With Lupus. As an FYI ... "710.0 " is the ICD-9 (International Classification of Diseases) code for "SLE," aka systemic lupus… Continue
Posted by William Davis on July 6, 2009 at 7:10am
going ons at kimber house
Posted by Kimber on July 4, 2009 at 2:35am
Greetings Everyone!
This seems like a really great site - I look forward to meeting as many of you as possible!
Posted by Vee Marie on July 2, 2009 at 8:37pm
Lupus and Your Skin
To help make sure you’re as protected as possible when you venture outside … for a game of miniature golf while you’re on vacation, or while you’re working inside beneath fluorescent lights, the LFA has created this special section of content for… Continue
Posted by William Davis on June 30, 2009 at 9:26pm
Positive Long-Term Data for BENLYSTA (formerly LYMPHOSTAT-B®) in Patients with Active Lupus
Early results from a 52-week Phase III study of BENLYSTA™ are expected to be announced in July and results from a 76-week study are scheduled to be released in November.
BENLYSTA™ is b… Continue
Posted by William Davis on June 29, 2009 at 8:17am
In the Mix: Designing a Social Life around the Limits of Lupus
Posted by William Davis on June 26, 2009 at 8:28am
First Television Interview- FOX 17 news: LUPUS AWARNESS!!!
Posted by julie on June 25, 2009 at 3:07pm
The Summer 2009 Issue of Lupus Now Magazine Has Arrived
Understanding how lupus runs in families, and why, led to our cover story on the heredity of lupus. It will get you thinking about your own family history, and whether autoimmune diseases have a foothold in your family tree.
And if lupus has caused your path in life to skip outside the lines, or even turn a right angle,… Continue
Posted by William Davis on June 24, 2009 at 8:40am
hello everyone thanks for the welcome messages
You can learn more about me at http://www.copingwithdisability.com/
I have created and maintain several websites for people with disabilities and health conditions.
I'm feeling great about my life currently I hope I can help many people here by being a supportive member
Posted by Rudy on June 24, 2009 at 1:28am
Yes, Even Pastors become ill!
This way I can just laugh and enjoy myself w/o people judging me for what I DO
not for who I am. I am not a big deal just Ordained by the Evangelical Church.
I have always loved helping helping helping. I went to college to help and joined groups to help. Its in my heart. If anyone needs to chat it up or just get it out
in a kind gentle way I am here. God loves us one and all!
Peace and Love,
Pastor Lisa a.k.a. hippie… Continue
Posted by Lisa on June 22, 2009 at 4:50pm
![Stacey [Pinkdrgfly]](http://api.ning.com/files/nNlVF55NSv0l9zqYm9XlW7I5*xXpaBU2H1caVsZ88NWtvmjpeBd-9bYdlGctAzVUk*yrlnb22379apHSRkVLxwor6uA*opc8/me.jpg?width=32&height=32&crop=1%3A1){kind=small}
RAAM Durango, Colorado Monday Morning
Posted by Stacey [Pinkdrgfly] on June 22, 2009 at 1:52pm
Lupus Foundation of America Urges Department of Defense (DoD) to Expand Medical Research on Lupus
Last Friday, Sandra C. Raymond, President and Chief Executive Officer of the Lupus Foundation of America, appeared before the Senate Defense Appropriations Subcommittee to testify about lupus, the prototypical autoimmune disease that principally affects young women in their child-bearing years. Ms. Raymond also described the impact of the disease on men and young children and the disproportionate impact of the d… Continue
Posted by William Davis on June 22, 2009 at 8:32am
Greetings to all
Posted by Khara A.L. Woodside on June 21, 2009 at 8:42pm — 3 Comments
San Francisco Walk For Lupus Now
It is estimated that 1.5 million Americans and 170,000 in the state of California have a form of lupus. Lupus is an acute and chronic (lifelong) au… Continue
Posted by Stacey [Pinkdrgfly] on June 19, 2009 at 4:50pm
Latest Activity
PLEASE READ ABOUT CONTENT ON THIS SITE ON THE LEFT. THANK YOU!
PLEASE TAKE A MOMENT TO VISIT THE TAB CALLED EVENTS, YOU CAN NOW GO AND ENTER YOUR OWN EVENTS SUCH AS BIRTHDAYS, ANNIVERSARIES, ETC.!
RSS FEED! UP TO DATE INFO!!
PLEASE VISIT MAIA'S PAGE, SHE HAS AN RSS FEED ON LOTS AND LOTS OF LUPUS & RELATED TOPICS ON THE LEFT SIDE OF HER PAGE. VERY INTERESTING STUFF FOR EVERYONE! EVERYTIME THERE IS SOMETHING NEW, IT'S POSTED, PLEASE VISIT!
PLEASE VISIT HEALING HUGS! HUGS REALLY DO HELP!
http://www.myspace.com/healinghugs
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YOU ARE NEVER ALONE HERE AT BUTTERFLIES~!
Events
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Chicago's Walk for Lupus Now
May 4, 2009 at 6pm to September 19, 2009 at 12pm – Grant Park (corner of Columbus & Balbo)
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Felicia's Bday
August 13, 2009 all day – My house
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Kimber
August 17, 2009 all day – My home
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Esmeralda Carmona
September 4, 2009 all day – at my house
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Surgiversary (Anniversary of Bariatric Surgery)
October 2, 2009 all day – Cambria County, PA
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Teresa and her husband
October 27, 2009 all day – Our house
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Teresa
October 28, 2009 all day – My house
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Terri
October 28, 2009 all day – not sure
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Felicia (Anniv)
October 31, 2009 all day – My house
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Birthday
November 6, 2009 all day – Cambria County, PA
Groups
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PRAYERS FOR THE SICK A...
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hugs
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Butterfly Army
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Holiday CRAFT EXCHANGE
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Secret Santa
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the pagan group
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Card exchange
30 members
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Women Empowerment
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lebanese fibro
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MEMORY LANE
74 members
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Mountian of Hope
75 members
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Birthday Group
11 members
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New England Fibro and ...
6 members
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all topics-good, bad a...
30 members
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Soul Patrol
20 members
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Diabetic FMS and Lupus
20 members
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For The Love of Fibro
65 members
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A LOVE OF ALL THINGS A...
42 members
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Crystal Healing Family
10 members
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PH Chatters
42 members
MESSAGE UPDATE
The easiest way to get to me....click on my picture on this right side of the column that states I started the Social Network or anywhere you see my picture!
RECIEVING TOO MANY EMAILS AT THE EMAIL ADDRESS YOU SIGNED UP WITH? I would like to mention that you can chose what emails you recieve. Go to "My Settings" on the right side of the page. From there, you can control what emails you want to receive. Please be sure to CHECK the box to RECIEVE BROADCAST MESSAGES TO THIS NETWORK, as sometimes I may have to send out a mass mailing to the group. I really appreciate it :)
If you are experiencing any problems with the site, please send me a message directly or report a problem and I will get back to you as soon as I can. Thank you all! HUGS ~Butterfly Kimberly
Videos
VISITORS
About
Forum
Fibromyalgia & Disability Benefits? 7 Replies
Has anyone in here with Fibromyalgia had success being approved for SSA Disability Benefits? If yes: any helpful pointers? I just got off the phone with an advocate who told me that Fibromyalgia i...
Tagged: input, info, advice, ssa, disability
Started by Vee Marie in OTHER QUESTIONS. Last reply by Vee Marie 4 hours ago.
Need help with Neurontin 7 Replies
I was wondering if anyone is on Neurontin? Since I am in a bad flare again and my back has opened back up yet again, this time on it's own, he has prescribed Neurontin for the pain that is now goin...
Started by Shelia in MEDICATIONS. Last reply by MANDY 20 hours ago.
No more pain meds with tylenol????? 9 Replies
The news all over this morning was about how the FDA doesnt want vicodin or percocet or Nyquil or other OTC drugs~~~~NONE~~to be sold any more if up to them. My Mom called and woke me to turn on TV...
Started by Lisa in GAMES, CONTESTS. Last reply by Lisa Jul 8.
Hi guys! I'm back!
Hi guys! I know I've been gone for a bit! ok, actually a long time! but I'm back! I hadn't been feeling ok! been in and out of drs office wth flares and stuff! I've missed you all! So please put me...
Started by Kiara in I'M IN NEED OF SUPPORT PLEASE!! Jul 7.
We are a group of pretty fine people..... 4 Replies
I was wondering if anyone in here has become real "friends" outside of in here? Has there been any marriages? Man and woman finding love? Ever have a reunion picnic of sorts? Pick a place and leave...
Started by Lisa in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Lisa Jul 6.
DOES ANYONE LIVE IN INDIANA
DOES ANYONE LIVE IN INDIANA
Started by MRS.YANKSTER in MISCELLANEOUS Jul 2.
First television interview: FOX 17 NEWS: LUPUS AWARENESS!! 4 Replies
Tagged: awarness, book, Walk, Lupus
Started by julie in AWARENESS WORK. Last reply by Melinda Tucker Jun 30.
Pain in my upper back, shoulders, and neck 6 Replies
Can someone please help me I am getting horrible pain in my upper back, shoulders, and neck. I have tried rubs, ice, and sleep. When I sleep especially on my side it gets worse and my arms go numb....
Started by Pamela Rose Starr in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by ReneM Jun 28.
YOU ARE A LIVING VORTEX* * By Gillian MacBeth-Louthan*
YOU ARE A LIVING VORTEX* * By Gillian MacBeth-Louthan* You hold within you all possibility, but you see it not. Create as the Gods you are. Use your words, your thoughts, your intentions to bring t...
Tagged: By, Gillian, MacBeth-Louthan*, *, VORTEX*
Started by Sandy Medine in AWARENESS WORK Jun 27.
Rhumatiod Arthritis 4 Replies
I have had fybromyalgia since I was 11 so thats about 7 yrs. But last yr I had a lump on my right elbow found out it was a rhuematiod nodgle .Which that could mean lupus,rhuematiod arthris or many ...
Started by Darlene in DOCTORS: questions, experiences, do you know this doctor? Should I get a 2nd opinion??. Last reply by ReneM Jun 27.
Discoid Lupus Erythematosus 17 Replies
Has anyone with Discoid Lupus Erythematosus had a biopsy done of your head sores. A friend of mine told me to have the sores on my head biopsied. I've had these sores for years and they flare when ...
Started by Stacey [Pinkdrgfly] in SKIN ~ RASHES, DISCOID LUPUS, ETC. Last reply by clarice young Jun 27.
Have to find a New Rhumatologist :( 3 Replies
Does anyone live in mid michiagn and have a GOOD rhumotologist to recomed??? I just found out mine is moving out of the state in september.
Started by Jenn in DOCTORS: questions, experiences, do you know this doctor? Should I get a 2nd opinion??. Last reply by MRS.YANKSTER Jun 24.
About Fibromyalgia
About Fibromyalgia Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rathe...
Tagged: Fibromyalgia, About
Started by Sandy Medine in AWARENESS WORK Jun 22.
Emergancy Trauma 4 Replies
I had a Rheumy appt on Friday...so I thought...my body said differant apparently. All was fine and had been not too bad lately, too. I was sitting in the exam room chatting with mom while I waited ...
Started by Dawn in I'M IN NEED OF SUPPORT PLEASE!!. Last reply by Dawn Jun 19.
The Sun 9 Replies
Ok so this is my first offical summer being diagnoised with Lupus so I need some advice on what I need to do in the sun. I don't go back to the rhumy till june 18th and I already have a camping tri...
Started by Jenn in MEDICAL QUESTIONS. Last reply by Jenn Jun 19.
Aloe 3 Replies
A natural medicine for cancer, cholesterol, diabetes, inflammation, IBS, and other health conditions In fact, my yard is an aloe farm, and each day before I {Mike Adams} make my superfood breakfast...
Started by ReneM in NATURAL REMEDIES, HOLISTIC, HERBAL, ETC. Last reply by Sandy Medine Jun 16.
First Butterfly Rash? 3 Replies
Hey all, I think I may have experienced my first butterfly rash, but I was curious to hear what everyone else experiences when they get it. I had a recent flare that I'm just getting over, and one ...
Started by Kate in MEDICAL QUESTIONS. Last reply by Melinda Tucker Jun 16.
What in the world is PH chatters? 5 Replies
I have pulmonary hypertension and wonder if this is a group for that...it is a very serious illness that ends one way........Will someone pls let me know if this is others like me so it this area i...
Started by Lisa in MISCELLANEOUS. Last reply by mich111 Jun 16.
skin problems,discoid lupus
Hey all,yes i have had problems with this discoid lupus on my feet,had problems,a while with it ,long before i was told i had lupus,i thought at the time it was due to being on my feet all the time...
Tagged: feet, problems, lupus, discoid, rashes
Started by Dorothy Moniz in SKIN ~ RASHES, DISCOID LUPUS, ETC Jun 16.
I hope to let you know whats up! 2 Replies
I just left the dentist and due to Sjogrens I need thousands of dollars worth of dental care! YUK! Mom and Dad put braces on my teeth and mom really believes in Dental care and is quite heartbroken...
Started by Lisa in INTRODUCTIONS/PERSONAL STORIES. Last reply by Melinda Tucker Jun 15.
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